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Topic: Just to say Hi x x x (Read 240 times) |
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Night_Zombie
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If u obey all the rules, u miss all the fun......
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Just to say Hi x x x
« on: Jan 28th, 2005, 5:17pm » |
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Thought I have been mad,  Thank god for all u lotxxx
I have been having what I now know is chronic clusters for abour 14 weeks or so, at first hadent a clue what was wrong had tests and more tests ,sent to one doc after another, until I was sent to see one guy who took one look at my eye and said cluster,gave me some pills and sent me home...did some reserch and went back to him and asked now will u lister to whats going on with my head.(Brave) no just very much needed.
after 4 weeks I had been on lots of pills my tummy was in bits but had to go on, steriods were the last straw.
Demanded oxygen which I now have but totally the wrong type, this I shall sort Monday first thing.Started on lithium so give that a try and pray for the best.HUGSto all XXX
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love and hugs xxx
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Jonny
CH.com Alumnus
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Give me a shovel Ill dig my own grave!
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Re: Just to say Hi x x x
« Reply #1 on: Jan 28th, 2005, 5:26pm » |
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on Jan 28th, 2005, 5:17pm, Night_Zombie wrote:| I have been having what I now know is chronic clusters for abour 14 weeks or so |
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Not even a Doc can tell you that you have chronic clusters after only 14 weeks or so, it takes about a year to make that call.
Welcome aboard, read all that you can....sorry you have to be here.
.............................jonny
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Night_Zombie
New Board Junior
If u obey all the rules, u miss all the fun......
Gender:
Posts: 76
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Re: Just to say Hi x x x
« Reply #2 on: Jan 28th, 2005, 5:37pm » |
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Hi,
My doc is a total Ass with a very large (A) I cant belive much what comes out of his mouth,but he's all I got at moment the place I live I dont have much choice!!!I just have to learn all I can from all u lot and do the best I can. I realy dont have much of a clue, all I know is he told me, and that these headaches are I have are never going to stop 5/6 per day I just want to sleep (yawn)
XXX
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love and hugs xxx
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Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
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Posts: 26213
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Re: Just to say Hi x x x
« Reply #3 on: Jan 28th, 2005, 8:07pm » |
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Like I said....read, read, read.....there is no place on this planet with more info on CH like this site has.
The more you read the more you can fill your Doc in 
Good luck...and bounce on over to the general board, thats where the family shoots the shit.
.............................................jonny
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Re: Just to say Hi x x x
« Reply #4 on: Jan 29th, 2005, 5:01am » |
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Welcome to CH. family!
So sorry that you have CH... 
For your sake I wish that you're episodic... I'm a chronic. Jonny is right, it takes time before you know which one you are.
Best wishes & lots of PFdays,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Bob_Johnson
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Re: Just to say Hi x x x
« Reply #5 on: Jan 29th, 2005, 1:03pm » |
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See my message in this section, under "Medicare".
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Bob Johnson
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