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Topic: Newbie in Las Vegas (Read 210 times) |
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BigRick
New Board Newbie
Please remove the axe
Posts: 20
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Newbie in Las Vegas
« on: Jan 26th, 2005, 3:55pm » |
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Newbie to the board that is not these terrible headaches.Im 33 now and have dealt with clusters since I was 18.Ive been in remission for 3 years until 2 weeks ago and now they are back full force.I spent last night pacing my garage and vomiting in the trash can.Im sure you guys know what I mean.
My girlfriend seems to think they are stress related,I wish it were that simple.I have a doctors appointment today and will get back on the Zomig,Keppra and Stadol NS to help control them.One thing I have learned over the years is its extremely hard to find a Dr. who seems to care.I been to a dozen different Dr.'s and only one who was fairly effective in his treatment.
Oh well,Ill rough it out like I have before.Of course thats alot easier to say when Im not having a headache right now.
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| « Last Edit: Jan 26th, 2005, 3:57pm by BigRick » |
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miapet
New Board Hall of Famer
what doesn't kill me makes me stronger
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Posts: 676
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Re: Newbie in Las Vegas
« Reply #1 on: Jan 26th, 2005, 4:02pm » |
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sorry the beast came back . . .have you tried o2?
*positive light and energy*
miapet
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Clusterbusters Rock
www.clusterbusters.com
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Re: Newbie in Las Vegas
« Reply #2 on: Jan 26th, 2005, 4:07pm » |
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I am so sorry that you have to battle against CH again... 
But I am glad that you found CH.com. Welcome aboard!
By the way, when I was episodic (I'm chronic now) noticed that stress increases the possibility to get CH, but it didn't mean by 100% that I had one. Now they are daily companion, stress or not.
And I have been to bunch of docs, too.  I know exactly what you mean...
I hope that you'll find the meds which work. 02 should be good.
Best wishes & PFdays,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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dagger
New Board Newbie
I love YaBB 1G - SP1!
Posts: 43
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Re: Newbie in Las Vegas
« Reply #3 on: Jan 26th, 2005, 5:16pm » |
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Hi BigRick - Welcome to the board. My experience (altho everyone is different) has been that stress has not been a factor or a trigger. I have never begun a cycle during any of the most stressful periods of my life. In fact, the opposite seems to be true. I have often been visited by the "beast" when I was doing something relaxing like spending a month in Negril Jamaica. (many moons ago - it has really changed!) But I suppose for some it may be stress related. Good luck and try 02!! dagger
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BigRick
New Board Newbie
Please remove the axe
Posts: 20
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Re: Newbie in Las Vegas
« Reply #4 on: Jan 27th, 2005, 1:25am » |
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Ive tried the o2,it was one of the first things prescibed to me.I had a big tank in my living room and several smaller bottles(and cart)to take in my car.It worked sometimes but the vast majority of the time it just delayed them.As soon as I took off the mask the headache would startup again.Ive taken lithium,o2,imitrex,migranol,lidocane,indocin,depakote,stadol ns,maxallt,zomig,percocet,lorcet and keppra.Some ive probably forgot.
Anyways my Dr gave me Keppra,Zomig(very effective for me,80%)Stadol NS and Lorcet today.Last time I was on Keppra it was very effective and after 8 weeks on it I went into my 3 year remission.Hopefully that will happen again(fingers crossed).
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Night_Zombie
New Board Junior
If u obey all the rules, u miss all the fun......
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Posts: 76
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Re: Newbie in Las Vegas
« Reply #5 on: Jan 27th, 2005, 3:54pm » |
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Im new to this too, and havent had a a day over the last 7 weeks that I can say has been nice pain pain and more pain,
I have just started O2 and I think it helps a bit it also helps you focus so you dont be all over the place as much. Hope u get over this bunch not too bad.
Good luck,
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love and hugs xxx
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