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Topic: New From Colorado (Read 192 times) |
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reinholdt2
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New From Colorado
« on: Jan 24th, 2005, 10:16pm » |
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Hello everyone, I myself do not suffer from CH but my husband does. I am here looking for some coping ideas from him.
He has tried verapmill, zomig, imitrex injections (which work) but you can only take 2 a day. He gets about 6-8 CH a day for about 1 month a year.
I hate to see him suffer and do what I can which as you all know is not much.
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Renee
CH.com Alumnus
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May we all find some pf time! Is it summer yet?
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Re: New From Colorado
« Reply #1 on: Jan 24th, 2005, 10:41pm » |
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Hello Colorado,
Has he tried oxygen? Works best at 15 lpm and a non-rebreather mask.
Also, read on the left about the imitrex tip.
<<<<<<<
You've come to the right place to find coping ideas, support and understanding. I'm sorry though that you had to find us.
Renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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Redrum
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Doh!
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Re: New From Colorado
« Reply #2 on: Jan 25th, 2005, 9:23am » |
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Welcome sorry you have reason but glad you found us, Colorado here too (Woodland Park).
Lots of good info here. I use O2 and melatonin with good success. Verapimal is worth checking out and the Imitrix tip to the left is worth reading. Its also very important to find a good doctor and keep him/her educated.
PFDAN ~Andy
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It's hard to be an optimist when the glass is shattered on the floor!
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RichardN
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Re: New From Colorado
« Reply #3 on: Jan 25th, 2005, 1:25pm » |
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Welcome Reinholdt
Ditto to the above . . ., I also use Verapamil, Melatonin and 02.
If the 02 works for your hubby (as it does for 70%+ of us), he can kill the beast within minutes if used at the first sign the beast is knockin' on his door. Has helped me avoid many a "dance" . . . . I go nowhere without it. You'll need a script for it so copy the info here and take to your doctor.
When my wife found this site in Feb, o2', I was also having those 6-8 hits a day, KIP 5-9 . . . a year of mis-diagnosis, non-working meds and "normal" test(s) results. I will never forget the FEAR . . . not just the fear of an unknown condition (tumor? aneurism? cancer? #@%&?), but the very real fear of the next one which you know will come over and over . . . .how bad will this one be? . . .how long?. . . and all you can do is suffer . . . SUFFER through it. Within a few weeks of finding this site, I had my first PF day. Yes, I still have CH, but now I have the means to limit both the hits and intensity.
Identify triggers . . . for me (and many others here) alchohol is a major trigger.
How long has he suffered with CH? How does he normally deal with the hits? Coffee? Hot/Cold baths/shower, exercise?
There IS help here . . . people who truly understand his pain. . . . and the information to help alleviate same.
You have much reading to do, and many questions to ask . . . . keep us posted.
TRY SOME OXYGEN
Be safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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