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ski
New Board Newbie
clusters grrrrrrrr
 
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Hello all I have had clusters for some time and now they are getting worse its like i have them weekly now . My DOC has been really helpful with them but he is out of things to do I have to go in all the time and get shots for them and any more they aint doing what they did befor . I am 33 years old and married to a loving wife and have two great kids one 14(son) and one 9(girl) they are my life . It is nice to find otheres that are dilling with the same thing but im also sorry at the same time because i know what you are going through .I have been put on ssi because of my clusters is any one else on it that cant work because of this.I used to only get them at night for the most part but anymore it dont matter and i get them for days at a time first it will start out as just a soft headache then slam it is all there and i cant sit or sleep have to move around its almost as if the cluster makes you move like you have no controle of your self well i just wanted to say hi to all and look forwerd to talking to you Thanks ski 
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JohnO
New Board Newbie
I love YaBB 1G - SP1!
Posts: 5
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Re: new
« Reply #1 on: Jan 24th, 2005, 12:39pm » |
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Hang in there, I am also 33 with a wife, a (2) year old & (3) year old at home. I just started getting them back after 4 years of being pain free. Have you tried all the fun drugs provided out there?
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Bob_Johnson
New Board Hall of Famer
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Re: new
« Reply #2 on: Jan 24th, 2005, 2:03pm » |
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Look at the "medication" button, left. You see the reported, acutal experience of folks here for various treatments. This info will be a good guide in talking to your doc.
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Bob Johnson
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Bob_Johnson
New Board Hall of Famer
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Re: new
« Reply #3 on: Jan 24th, 2005, 2:04pm » |
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Look at the "medication" button, left. It shows the actual, reported experience of folks here and will be a good guide for you when talking to your doc.
Might also look at:
WWW.MELDRUM.DEMON.CO.UK/migraine. At bottom of home page, look for FAQ on clusters: four sections of extensive material; strong on treatment options.
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Bob Johnson
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lionsound
CH.com Alumnus
New Board Hall of Famer
breathe
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Posts: 2021
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Re: new
« Reply #4 on: Jan 24th, 2005, 2:49pm » |
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Hi Ski,
I'm a cluster-mom with two kids. I understand it's hard to balance it all sometimes.
Are you seeing a neurologist? Can you tell us what medications you have tried? Have you tried Oxygen?
<--------------There's a link to the left about that.
We can help you better with info to take to your doctor if we know where you've been in medication-land. It's also helpful for doctors and you if you keep some kind of a headache journal.
Read, read, read ............lots of info here.
Welcome and be well,
lionsound
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mclexie
New Board Newbie
Hmmm..... nope, nothing witty yet
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Re: new
« Reply #5 on: Jan 24th, 2005, 11:40pm » |
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HA!! I like the "clusters Grrrrrrrr" Thats how I feel.
I found that ice cubes in some thing on your eye, or, this is soo, well, stupid, but it helped for me, I chomped on super hard ice cream, I think it froze my nerves. Brrrr!
Mel
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Re: new
« Reply #6 on: Jan 25th, 2005, 3:14am » |
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Welcome to CH family, ski! 
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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