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Topic: I'm back, years later (Read 256 times) |
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slugdogmt
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I love YaBB 1G - SP1!
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I'm back, years later
« on: Jan 11th, 2005, 11:19pm » |
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Hi y'all. Everybody but my momma calls me JoJo. I've had clusters since '82. I got on the board first in '96, I think. I'm pretty sure it was this board. I was so { and still am } happy to find it. Then my ha's went chronic. I stood that for maybe 4 months, then started seeing docs. Ended up on 200mg Oxycontin, 40mg of Prednisone, Elivil @ night. For 7 years I did that. It did make life bearable. Finally had to get off the Oxy, as it was killing the rest of my life. But, I was basically ha free for those years, and quit the board. Having my first real run now, and don't see how I'm gonna make it. I'm a Registered Nurse, red headed, ruddy, smoke, and used to drink a bit { ok, ok, more than a bit }. Haven't tried shrooms, but seriously thinking about doing it. Hope y'all have a good night. JoJo
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Langa
CH.com Alumnus
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So many donuts, such little time...
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Re: I'm back, years later
« Reply #1 on: Jan 12th, 2005, 12:25pm » |
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Visit clusterbusters.com for more info on the shrooms...
PF wishes.
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When you saw only one set of footprints, it was then that I carried you.
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Bob_Johnson
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Re: I'm back, years later
« Reply #2 on: Jan 12th, 2005, 2:56pm » |
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Look at the "medications" button, left, and see the actual experience of folks here. This is a good empirical guide.
Since you are an R.N., you could really benefit from getting this book:
MANAGEMENT OF HEADACHE AND HEADACHE MEDICATIONS, 2nd ed. Lawrence D. Robbins, M.D.; pub. by Springer. $49 at Amazon.Com. It covers all types of headache and is primarily focused on medications. While the two chapters on CH total 42-pages, the actual relevant material is longer because of multiple references to material in chapters on migraine, reflecting the overlap in drugs used to treat. I'd suggest reading the chapters on migraine for three reasons: he makes references to CH & medications which are not in the index; there are "clinical pearls" about how to approach the treatment of headache; and, you gain better perspective on the nature of headache, in general, and the complexities of treatment (which need to be considered when we create expectations about what is possible). Finally, women will appreciate & benefit from his running information on hormones/menstrual cycles as they affect headache. Chapter on headache following head trauma, also. Obviously, I'm impressed with Robbins' work (even if the book needs the touch of a good editor!) (Somewhat longer review/content statement at 3/22/00, "Good book...."
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| « Last Edit: Jan 12th, 2005, 2:56pm by Bob_Johnson » |
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Bob Johnson
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slugdogmt
New Board Newbie
I love YaBB 1G - SP1!
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Re: I'm back, years later
« Reply #3 on: Jan 12th, 2005, 11:26pm » |
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Thanks y'all. Langa, I will go there now to check it out. Bob, seems like I remember a Bob, don't know how long you've been on the board though. I've looked at the med page, and have tried almost all of them at one time or the other. After years of trying different stuff with no luck, I gave up until they went chronic. At that point, it was either find something that would at least make them bearable or eat a .45. I will look for that book, as I do enjoy knowing new stuff. Thanks again.
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Lobster
CH.com Alumnus
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Re: I'm back, years later
« Reply #4 on: Jan 13th, 2005, 7:39am » |
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Hit the meds board. Lots of details on the current preventatives and abortives.
Verapamil & Lithium seem to be a pretty popular prevent combo with the chronics.
Being episodic, I have found success with Topamax.
Read up on the meds board. Practically anything any of us are taking is discussed out there.
Luck,
Lobster
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Rock beats Scissors.
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