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Topic: New Member (Read 377 times) |
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Ruth
New Board Veteran
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Posts: 129
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Hi to everyone, this is my first post, but have real plenty of yours, I am a 53 year old female and have clusters sense I was 18. Believe it or not I just went almost 10 years with out an episode and then I was hit in August.
I found out about imitrex from my chiropractor and it works for me, however I recently went on Prednisone and a channel blocker and that seems to have stopped the attacks from coming.
I am so grateful for this site, and the links. For all of those years with the headaches most times I just tuffed it out because nothing worked.
Good luck to you all
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lionsound
CH.com Alumnus
New Board Hall of Famer
breathe
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Posts: 2021
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Re: New Member
« Reply #1 on: Sep 10th, 2004, 10:21am » |
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Welcome Ruth!
Sorry the beast has found you again..... Glad to see you've also found some relief.
It seems like you've already done some reading. Yes, this place is great. Don't be afraid to ask questions.
PF wishes for you!
-lionsound
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Jonny
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Welcome aboard Ruth
I advise you to skip by all of my posts. (except this one)
Have you tried 02?
..................................jonny
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Ruth
New Board Veteran
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Posts: 129
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Re: New Member
« Reply #3 on: Sep 12th, 2004, 12:11pm » |
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No, I have never tried o2, I am on icky pred now and not verapamel but somthing similar, pluse I have the imitrex injections to use when I need them.
I am holding my own for now, but I have to admit when I got hit after 9 and a half years of being free from the beast, I was devastated.
I thought perhaps because I have been on antidepresants for the past 10 years that had kept the episodes away sense I only had one episode sense I started taking them. guess what I was wrong.
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Ruth
New Board Veteran
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Posts: 129
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Re: New Member
« Reply #4 on: Sep 12th, 2004, 12:16pm » |
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Also just wanted to say, going on a pic nic today with hubby, we live in the beautiful pacific NW, just going to take some time and try to relax, on the subject of 9-11 my son and daughter in law fly with United Airlines and that day 3 years ago was one of the saddest days, It took me a few hours to find out if he was safe or had been on one of those planes that went down. He was one on the lucky ones, thank God.
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clarence
CH.com Alumnus
New Board Hall of Famer
Wake up
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Posts: 1020
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Re: New Member
« Reply #5 on: Sep 13th, 2004, 5:03am » |
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Welcome Ruth,
Stinks to be found by the beast when you don't want to be...But glad you made it here. Hope the cycle ends soon.
Casey
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NY Yankees Suck!!!
"Bart, don't make fun of Grad students. They just made a terrible life decision," Marge Simpson
Where I live: http://rainfallsoneveryone.com
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Ruth
New Board Veteran
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Posts: 129
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Re: New Member
« Reply #6 on: Sep 13th, 2004, 3:00pm » |
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Thanks to all for the welcome, I have to tell you I don't like how this prednisone makes me feel. I have been on 80 mg for 5 days now, starting the taper down for the next 10 days and am on 90 mg of Procardia, nothing tastes good. Headaches are better seem to be just small ones now.
I guess you just have to weigh the bad verses the beast.
Have a good day,
Say, I read the thread from evil chopper, I have to tell you that was weird.
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Jonny
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Ask your doc for 02, it could make a world of difference.
...............................jonny
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Ruth
New Board Veteran
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Posts: 129
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Re: New Member
« Reply #8 on: Sep 13th, 2004, 3:10pm » |
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Thanks for the imput Jonny, I am sure I will be seeing him soon and will see what I can do.
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TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
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Posts: 3201
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Re: New Member
« Reply #9 on: Sep 14th, 2004, 2:46am » |
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Welcome to the board, Ruth.
The prednisone worked well for me....I went 197 days totally painfree. Got hit on day 198.....but that 197 days were heaven.
Guess we're just "doomed". LOL
Lots of great folks here......hope you enjoy!
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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nancyc
New Board Old Timer
Friends don't let friends post drunk on mbs......
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Posts: 384
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Re: New Member
« Reply #10 on: Sep 15th, 2004, 12:05pm » |
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Hi, Ruth...welcome to ch.com....see we are about the same age....btw, got any grandkids?  ...My favorite subject LOL. I have had chs for over 25 years and I am chronic. Thank God you had over 10 years remission. I can remember the first time I used imitrex...it was the day it came on the market...what a lifesaver...If you ever need to talk, just drop me an email...crnnurse12@aol.com smiles,nancyc
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Kris_in_SJ
New Board Hall of Famer
There's no place like home.
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Posts: 1539
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Re: New Member
« Reply #11 on: Sep 15th, 2004, 9:22pm » |
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Hi Ruth - Welcome!
You'll find many weird posts on this board (like whatever one you read from evil chopper). And as Jonny said, don't pay any attention to his posts (except the one about oxygen).
Everyone here suffers (or supports someone) who suffers from this hideous syndrome, and everyone is here to help others.
Glad you found us. Stick around ... keep reading ... it won't be long till you know much more than your doctor does!
Many Hugs,
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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Ruth
New Board Veteran
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Posts: 129
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Re: New Member
« Reply #12 on: Sep 17th, 2004, 10:27am » |
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Hi to everyone out there today.
Thank you all so much for the welcome posts.
Yes, I have grandchildren, 5 of them, their ages range from 14 to 6 months.
I was so fortunate to find this site and have read plenty and have even had some good laughs.
I am having a very hard time with the preventive meds. Last night I woke up at 12 and didn't get back to sleep until 3:30 am. No headache, just awake, then I had this freeky dream that woke me up at 5:30. Sometimes it feels like I am loosing my mind, I have never done drugs like LSD or anything like that, but I swear I feel like I am tripping out on something.
Well so much for all of that icky business, the light through all of this is that I have been CH free for a few days now, some shadows, but nothing serious.
Now to relocate my sanity, I no it is out there somewhere!
Hugs to yall
Ruth
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KanKan
New Board Newbie
 
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Posts: 32
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Re: New Member
« Reply #13 on: Sep 18th, 2004, 1:41am » |
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I got hit after 9 and a half years of being free from the beast, I was devastated.]
I went over a year and thought i beat them last year, due to my lack of knowledge, i couldnt imagine the feeling after 9 years..
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| « Last Edit: Sep 18th, 2004, 1:42am by KanKan » |
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Pain
People Think they know Pain
They know so little.
How can you explain Pain.
Its an Emptyness, A Hatred and Loss.
Its InDescribable.
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