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Topic: Newbie here but long time sufferer (Read 320 times) |
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Darlyc
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Newbie here but long time sufferer
« on: Sep 3rd, 2004, 9:41pm » |
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Hi, I have had cluster headaches for over 18 years. I was in remission for 3 years but last year they came back. Mine are always in September. I was a non-smoker for the 3 years they were gone but due to cumulative stress I am back a smoker and it is September and I am started to see some signs. Scared to death. I will have 8 weeks of them.
I really want to know about St. John's Wort. I feel depressed and stressed and usually that brings them on too. I have a new neurologist appt in 2 weeks.
I am a strong believer in oxygen therapy. I have used it twice. It makes the attacks shorter.
Any advice about the St. John's Wort? I know I need to quit the cigarettes and quit them fast.
Thanks guys for your input. 
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synergy
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There is a rainbow out there somewhere....
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Re: Newbie here but long time sufferer
« Reply #1 on: Sep 4th, 2004, 5:29am » |
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Hi and welcome to the board - not sure what the St johns wart thing is but 02 is the best! It has saved my partner (as well as all the support from this board).
All i know about St johns wart is that is was the antibiotic that was used in the victorian age! Not sure about its effect on CH - cant see any though!
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BobG
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Re: Newbie here but long time sufferer
« Reply #2 on: Sep 4th, 2004, 7:04am » |
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on Sep 3rd, 2004, 9:41pm, Darlyc wrote:Hi, I have had cluster headaches for over 18 years. I was in remission for 3 years but last year they came back. Mine are always in September. I was a non-smoker for the 3 years they were gone but due to cumulative stress I am back a smoker and it is September and I am started to see some signs. Scared to death. I will have 8 weeks of them.
I really want to know about St. John's Wort. I feel depressed and stressed and usually that brings them on too. I'm a believer that stress helps to keep the attacks away. Don't know anything about the depressed part. I have a new neurologist appt in 2 weeks.
I am a strong believer in oxygen therapy. I have used it twice. It makes the attacks shorter.
Any advice about the St. John's Wort? I have seen reports that St John can maybe help with the depression but I'm not convinced. For the stress, I doubt it will do anything
I know I need to quit the cigarettes and quit them fast.Giving up the smokes is always a positive move. Cluster sufferers seem to smoke more than the general population. I am a smoker. I have smoked before, during and after attacks and it didn't seem to matter one way or the other for me. I smoked for at least 6 years before I had my first cluster.
Thanks guys for your input. |
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There is a wealth of information under the buttons on the left side of your screen. Read it, print it, educate yourself so you can talk with authority to your neurologist.
I'm not a doctor and what I said above is only my opinion.
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Stay stressed. Never relax. Never sleep. Ever.
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BlueMeanie
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Re: Newbie here but long time sufferer
« Reply #3 on: Sep 7th, 2004, 7:27pm » |
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Welcome Darlyc,
Yes, you should quit smoking. It's not gonna do squat to end your cycle, but it'll make you a healthier person.
Hope you cycle is a short one this time around.
Bob, who smokes like a chimney.
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writer
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I love YaBB 1G - SP1!
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Re: Newbie here but long time sufferer
« Reply #4 on: Sep 20th, 2004, 1:29pm » |
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If I were you, I would wait until later to quit smoking. When in a cluster cycle, you're already under great stress, and trying to kick the habit will only add to it (a lot).
By the way, I was a smoker for many, many years and was only able to give it up 8 years ago. I know how hard it is, assuming you're a true addict, as I was.
Anyway, here are a hundred wishes for more pain-free times--
Writer
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thebbz
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Re: Newbie here but long time sufferer
« Reply #5 on: Sep 22nd, 2004, 7:40pm » |
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Houdy and welcome,
St.johns wart, Hmmm Im into more traditional medical therapy. Study all the information on CH you can get your hands on . Hope for the best and I hate it for ya.
BB 
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