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Topic: Just in case any of you are confused. (Read 481 times) |
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broomhilda
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Re: Just in case any of you are confused.
« Reply #1 on: Jun 13th, 2004, 2:32pm » |
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BUMP 
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Suck it up Princess...
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Superpain
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Re: Just in case any of you are confused.
« Reply #2 on: Jun 15th, 2004, 12:48am » |
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I'm confused and this clears up nothing for me! 
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Chris
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jhammer
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Re: Just in case any of you are confused.
« Reply #3 on: Jun 15th, 2004, 8:10am » |
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That's one of the better articles I've read so far.
~Jake
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thomas
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Re: Just in case any of you are confused.
« Reply #4 on: Jun 15th, 2004, 8:39am » |
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on Jun 15th, 2004, 12:48am, Superpain wrote:| I'm confused and this clears up nothing for me! |
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It is my belief that there are people coming here with misdiagnosis, they need to read that article, if it isn't describing their condition, then this is not the place for them.
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Superpain
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Re: Just in case any of you are confused.
« Reply #5 on: Jun 15th, 2004, 3:27pm » |
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Well... That's good of you... But I remain confused. 
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Chris
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thomas
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Re: Just in case any of you are confused.
« Reply #6 on: Jun 22nd, 2004, 5:13pm » |
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I'm bumping my own thread, how egotistical.  I know you are still confused Superpain, but that can't be helped, now can it?
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Superpain
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Re: Just in case any of you are confused.
« Reply #7 on: Jun 22nd, 2004, 5:47pm » |
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Highly doubtful, unfortunately.
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Chris
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Superpain
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Re: Just in case any of you are confused.
« Reply #8 on: Jun 22nd, 2004, 5:59pm » |
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Actually, I propose a sticky thread in this forum. Or update the current sticky with links...
I know it's mostly all posted to the "left" anyway.... But I guess that gets overlooked sometimes, plus there are several links that have come about of late, like the future-drugs pdf that are very helpful.
I really like helping people and I feel it's my duty to do so since I suffered so long and finally found relief here with the help of others....
But I find that I keep repeating myself to every newbie saying the same thing over and over.
Gotta tell em to get a new doc. One that specializes in clusters... Tell em about O2 and the different ways to get it, and how to use it... Tell em about preventatives, abortives... Get edumacated.... etc...
I also think it would be helpful if we made our own list of doctors that have been helpful. I know ouch has that but I feel it's sort of short and maybe outdated, like enough people don't take time to report and update it. I mean, we've got people in NYC that are fucking around with dumbass docs that don't know shit about cluster's and I'm convinced there are several people here on at least a somewhat regular basis that have a great doc in that area (there's probably no less than 100 in NYC). People from the Phoenix area get on all the time with bad docs and I refer them to mine.... If all of us regular members listed our best docs, and maybe even make a "blacklist" of the dumbasses, I think it would help alot of people.
OK. Now back to the regular scheduled deprogramming of "why you do/don't have clusters"....
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| « Last Edit: Jun 22nd, 2004, 6:00pm by Superpain » |
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Chris
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Woobie
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Re: Just in case any of you are confused.
« Reply #9 on: Jun 22nd, 2004, 9:22pm » |
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BUMP!
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Crying
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Re: Just in case any of you are confused.
« Reply #10 on: Jun 23rd, 2004, 9:45am » |
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Thanks. Unfortunatly that describes the headaches I have had for last 2 months very well. I think I had migrains in the past but am now having CH. I need to change my treatments. Thanks again this helps alot. I am so glad I found this site! I didn't know anything about CH until I found you guys.
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Woobie
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Re: Just in case any of you are confused.
« Reply #11 on: Jun 24th, 2004, 1:54am » |
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BUMP!
hey superpain -
a sticky for this is a great idea.
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| « Last Edit: Jun 24th, 2004, 1:54am by Woobie » |
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thomas
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Re: Just in case any of you are confused.
« Reply #12 on: Jul 6th, 2004, 2:30pm » |
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on Jun 24th, 2004, 1:54am, Woobie wrote:BUMP!
hey superpain -
a sticky for this is a great idea.
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Whaddup? WOOBS!
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Smartin
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Re: Just in case any of you are confused.
« Reply #13 on: Jul 6th, 2004, 6:34pm » |
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Hey y'all,
Im a newbie sort of...I became aware of the site when I was on the down side of my cycle last winter...now my cycle is ready to start again and I'm prepared.
Superpain...you are correct when you say that all of the info is already presented to the left. I read and reread everything and then did some research on my own before I ever posted once. When I did finally post, I let the group know how much I appreciated their knowledge and that I was on my way to the doc loaded with print-outs and treatment suggestions.
I also went to the OUCH site to find a doc in the Phoenix area with little success. I finally contacted a couple of members in the Phoenix area to ask for referrals. I was lucky that my primary care doc took my information seriously, did some research on his own and prescribed O2 and verap. He also gave me many free samples of Zomig nasal. I am now back on the verap working to prevent the episode that usually comes in early August. I am hoping for a PF autumn.
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Kris_in_SJ
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Re: Just in case any of you are confused.
« Reply #14 on: Jul 6th, 2004, 8:41pm » |
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Good Luck!
Wishing you many PFNAD - Let us know if it works.
Kris
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Root
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Re: Just in case any of you are confused.
« Reply #15 on: Jul 7th, 2004, 6:54pm » |
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I'm confused. Whats a BUMP?
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In the land of the dark the Ship of the Sun is driven by the Grateful Dead. -- Egyptian Book of the Dead
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thomas
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Re: Just in case any of you are confused.
« Reply #16 on: Jul 8th, 2004, 8:44am » |
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on Jul 7th, 2004, 6:54pm, Root wrote:I'm confused. Whats a BUMP?
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You just did it.  
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