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Topic: new with cluster questions (Read 291 times) |
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clustercole
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new with cluster questions
« on: Jun 2nd, 2004, 2:44pm » |
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Hi board, I can't wait to look around, but before I glue myself to this Cluster nightmare, I needed your advice. My Dr. when I was a kid diagnosed me as having Cluster headaches and ran all the head scans and everthing. Now that I am uninsurred and would never beable to pay for all those tests again, i come to the experts, you. Here's the deal. My symptoms are similar but not usual to what I have read from some of you and on-line. They do come in clusters but mine come 20-50 a day AND only last between 2 and 10 seconds (although today I think I reached over a minute. It's hard to tell time when you can't breath. I will have 3-5 within 15 minutes then could go hours before having another and they all reach different levels of pain. The pain is PIERCING always on the right temple to ear and shoots down my right arm. They come and go like yours, fast and when it's gone it's completely gone like nothing happened. My eye does not droop, no leakage of any kind and I don't necessarily get them at night although I can. They do wake me up. I look like I am seizing. I am afraid to go my daughters first swim meet tonight because I look like an idoit when I get one.
If anyone agrees that this sound like a cluster, what the hell do you do? Tylenol? Can I get meds from Canada w/o perscription?
Your time to read this lengthly one and advice is so appreciated in advance.
Cole
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Bob_Johnson
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Re: new with cluster questions
« Reply #2 on: Jun 2nd, 2004, 4:15pm » |
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Agree with Thomas: these are not Clusters.
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Bob Johnson
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Giovanni
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Re: new with cluster questions
« Reply #3 on: Jun 3rd, 2004, 7:32pm » |
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Ditto on Thomas.
John
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UN_SOLVED
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Re: new with cluster questions
« Reply #4 on: Jun 6th, 2004, 3:49pm » |
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I agree with the others that this is not clusters ALTHOUGH, the number of attacks suggest CPH...the duration of attacks is short. (a minute or less). I believe common CPH attacks last from 5 to 15 minutes. The pain in the arm sounds uncommon too. I would seek a neuro asap to rule out any other (potentially serious) problems.
on Jun 2nd, 2004, 2:44pm, clustercole wrote: They come and go like yours, fast and when it's gone it's completely gone like nothing happened.
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This is NOT always true. A CH attack can last anywhere from 15 minutes to a few hours (of hell)
on Jun 2nd, 2004, 2:44pm, clustercole wrote: Can I get meds from Canada w/o perscription?
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RX without a prescription is illegal.
Unsolved
PS... TYLENOL and CH don't belong together in the same sentence 
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Gator
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Re: new with cluster questions
« Reply #6 on: Jun 7th, 2004, 3:29pm » |
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It doesn't look like CPH. The attacks in CPH can last from 2 to 120 minutes.
It sounds more like SUNCT syndrome, where the attacks last from 5 to 250 seconds.
Do all the reading assignments suggested above.
Having said that, none of us are doctors. You absolutely should go to your doctor to get diagnosed and have tests done to rule out anything physical that might show up on an MRI. Self-medicating what the disorder "sounds like" may cause more harm then good. There are a lot of actual physical problems that can mimick any of the cluster related head pains. I know it is expensive to do them, but how much will it cost your family if you treat a tumor like a headache and die because of it.
Just my 2 cents worth.
Gator
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