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Topic: Re: 20 yrs is to long (Read 631 times) |
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Superpain
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Re: 20 yrs is to long
« on: Apr 30th, 2004, 5:13pm » |
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Sorry to hear it's been so long.
That sux...
You might suggest a prednisone taper to your doc. It helped me and alot of others. Not everyone, but alot of us.
Get some O2! And imitrex injections are fabulous!
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Chris
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Virginia
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Re: 20 yrs is to long
« Reply #1 on: Apr 30th, 2004, 6:52pm » |
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Definitely get your Dr. to hook you up with some Oxygen! Read the O2 info on the left.
V.
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Cathi04
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Re: 20 yrs is to long
« Reply #2 on: May 3rd, 2004, 2:22am » |
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Eddie...you've got mail...check yer PM's, please..
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Cathi04
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Re: 20 yrs is to long
« Reply #3 on: May 3rd, 2004, 2:27am » |
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heyyy!!! I'm not the perfect person, but I am here!!
it's been a rotten weekend, huh?? Man, I am sorry!!
NOw, at the very least, bring some info for your Neuro tomorrow...there is plenty here at the left....print some out, and then, when you get to him/her..please, calmly, but emphatically, tell this DR what you need....now, all ya have to do is get thru this night....you can DO this..
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| « Last Edit: May 3rd, 2004, 2:32am by Cathi04 » |
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Lizzie2
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Re: 20 yrs is to long
« Reply #4 on: May 3rd, 2004, 7:22pm » |
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Good luck tomorrow, Eddie!!!
It's gonna go great!!!!!!! 
Let us know how it goes. 
Lizzie
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Big Dan
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Re: 20 yrs is to long
« Reply #5 on: May 3rd, 2004, 7:24pm » |
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Hey Eddie!...
Glad you finally made it to the board...
Stick around and be sure to read the whole site... alot of information that you can take to your doctors appointment...
Good luck at the Neruo's... and let us know how it went, Bro..
-Big Dan
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TxBasslady
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Re: 20 yrs is to long
« Reply #6 on: May 4th, 2004, 1:29am » |
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Hi Eddie,
Welcome to the board.
Sorry you have been suffering for so long. Hopefully you will get what you need to fight the beast.
Good luck at the doc's office!
PF vibes,
Jean
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Lizzie2
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Re: 20 yrs is to long
« Reply #7 on: May 4th, 2004, 9:30pm » |
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Hey Eddie,
I'm really sorry to hear that it didn't go well. Did you ask him about O2? What did he say? Could you possibly call them tomorrow and ask them about it?
Hang in there, and know we are here to support you!!
Effexor is used for some headache conditions, but I don't think CH really. Vioxx is also used for some headache conditions, too. It is a NonSteroidal AntiInflammatory Drug.
Keep on posting!! Take care!
Lizzie
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OneEyeBlind
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Re: 20 yrs is to long
« Reply #8 on: May 4th, 2004, 9:37pm » |
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Eddie, hang in there. Call and DEMAND some O2. It's cheap and doesn't have any side effects so your doc can't say NO. Just tell him it worked for you and works for other CH sufferers as well.
Hang tough !
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Big Dan
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Re: 20 yrs is to long
« Reply #9 on: May 4th, 2004, 10:20pm » |
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Hey, Eddie...
Like the others said... call him back tomorrrow.. and DEMAND O2... he's a neuro... he know's that it'll help headaches... so it can't hurt to try.
Let us know how it goes, and hope you can get some relief...
We're here for ya, Bro..
-Big Dan
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HypnoticFreddy
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Vioxx? For CHs, I have never heard of any Neuro prescibing that. Did he diagnose you with CHs?
See a different doctor. Take the CH quiz too. Why would a Neuro prescibe Vioxx for CHs (am I missing something?)
-Scott
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| « Last Edit: May 4th, 2004, 11:43pm by HypnoticFreddy » |
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Lizzie2
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Re: 20 yrs is to long
« Reply #11 on: May 4th, 2004, 11:55pm » |
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freddy,
unfortunately...some docs don't have a clue...
lizz
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HypnoticFreddy
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Yeah I just saw someone elses post that they recently FDA-approved Vioxx for migraines. I have never heard of NSAIDs being successful for CHs.
God, if I saw a new Neuro, after all these years, after all this sufferring and pain beyond description and he said to take Vioxx and an anti-depressant I would have had a fit of agitation and prolly punched the guy. Sort of a joke. Sort of?
Of course, Eddie if you are new.....keep reading and getting yourself informed because as unfortunate as it sounds, often we, the patients have to educate the doctors. As a tip, when in cylces I keep a headache diary and when I do see a NEW Neuro I bring a bit of literature. It only helps. Unless the Neuro is some reject.
Most Neuros I have seen (hmmmm 4,5), all but one knew CH treatment fairly well. One even publishes in the medical literature as she is head of the Neurology Department at the Univ of Hartford.
Key is proper diagnosis and finding an educated doctor.
-Scott
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HypnoticFreddy
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Eddie,
Sounds like you are taking good steps in getting oxygen and finding a high flow rate regulator. Good job. You have done some reading!!!
Good luck and hope you get relief!
-Scott
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Lizzie2
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Re: 20 yrs is to long
« Reply #14 on: May 5th, 2004, 8:36pm » |
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Eddie,
That is GREAT!!!!!!!! Knew something would work out for ya!! Keep on fighting, buddy!!
Lizzie
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HypnoticFreddy
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Eddie,
I have never had these problems in the ear. Perhaps other CH'ers do though.
I might be concerned you have something other than CHs. Have you been diagnosed?
Good luck.
-Scott
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Cathi04
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Re: 20 yrs is to long
« Reply #16 on: May 8th, 2004, 11:01am » |
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Eddie....
keep talking, please....there are many here who are thinking about you and sending positive vibes.....
I wish I could fix it, but all I can do is tell you there are friends here for you, and I wish you PF SOONEST!!!!
Cathi
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Life is not measured by the number of breaths we take but by the moments that take our breath away.
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HypnoticFreddy
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Um Eddie.....I am a little worried about your mental state. Either you rush through your posts, and if you are in pain I understand but you said, and I quote,
Quote:there is something wrong with the left side of my
head no the neruo i went to. dont think he knows
or care but i will press on |
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Dude......I don't understand you. I asked if you have been DIAGNOSED with clusters. Pain on the top of the head is unusual for CHs. At least for me. It's all about the eye.
-Scott
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Little Deb
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Re: 20 yrs is to long
« Reply #18 on: May 11th, 2004, 10:56pm » |
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Uhhh............since you are so close Eddie, are you going to Nashville????????????????????????????
Just wondering.
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HypnoticFreddy
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Eddie,
For Crying out loud see another doctor. I think he must have you on medicine that makes your writing completely incoherent.
You need to see a doctor who has "at least heard of" clusterheadaches.
Take action!!!
-Scott
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Cathi04
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Re: 20 yrs is to long
« Reply #20 on: May 13th, 2004, 12:47pm » |
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Eddie...there are many here who want to help...sometimes they are quite direct, but as a CH er, you KNOW what they are going thru as well....
Have you checked your PM's??? Please keep reaching, Eddie...
Constantly wishing you were PF,
Cathi
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Life is not measured by the number of breaths we take but by the moments that take our breath away.
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eddie
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Re: 20 yrs is to long
« Reply #21 on: Jun 17th, 2004, 1:10am » |
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http://www.healthsquare.com/newrx/EFF1153.HTM
click on this and see what i have had to take
it has made everything worse the side affects
are bad eddie  some people here has
pissed me off i have read so much i know
im not stupid freddy but neuro are hard
to find not all of them give a shit i paid
cash to see him. i dont need crap from
anybody im sick of it and catshit yea
right. i know if you go to this web sight
above the info is there. this stuff was
killing me. so im on my on again.
EDDIE
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