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   Author  Topic: I am glad I found this site  (Read 328 times)
BrianS
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I am glad I found this site
« on: Apr 16th, 2004, 11:37pm »
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Hi all!
 
Just when I thought I was nuts... I would explain my headaches to friends, doctors and others who would ask why my eye watered and why I would stick my finger in my eye or sit with my eyes shut as tight as I could till I got relief. I found this site.  
I would classify my CH as chronic. I am turning 27 on April 19 and have had CH for at least the last 3 years.  I am a minister in a fairly large church and there are times I walk in the hallway of the church with my eyes closed cause the CH is so bad.  My CH seem to be a little diffrent then what I have read thus far in that my CH occur at least 4-6 times a day, are at least 9's on your scale (and your saying how are they diffrent) mine last less than 3 minutes.  Sometimes I worry about driving because I can hardly keep my eyes open.  Like you guys I do wake up in the middle of the night crying and hitting the bed till they subside.  
Sometimes they are so bad 11's on your scale that I get up and chew asprin with shots of vodka now again I am a minister who has never drank in my life.  I am not sure if it works.  
Do any of you have CH like mine?
 
Blessings  
BrianS
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HypnoticFreddy
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Re: I am glad I found this site
« Reply #1 on: Apr 16th, 2004, 11:49pm »
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ummm doing vodka chasers certainly don't sound like clusters to me, but thats my opinion.
 
Also 3 min headaches could be something else. Perhaps someone else knows?
 
       -Scott
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BobG
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Re: I am glad I found this site
« Reply #2 on: Apr 17th, 2004, 4:34am »
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Welcome to the board Brian. Sorry you're hurting.
 
The description of your pain does not sound like cluster headache to me. But, I’m not a doctor so don’t go by my word. Because you say it only lasts 3 minutes it sounds more like pain called Chronic Paroxysmal Hemicrania (CPH)
Here’s a couple of sites to click on:
 
http://www.clusterheadaches.org/comparison_table.htm
 
About the asprin chewing…….click this:
And it has a little more about CPH just below the rebound headache paragraph.
http://mhni.com/faqs_other_headaches.html#CPH  
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pubgirl
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Re: I am glad I found this site
« Reply #3 on: Apr 17th, 2004, 9:15am »
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Bob is right
 
Your symptoms are much more like other TAC's e.g. PH/CPH/SUNCT/TN.
The good news is that some of these are eminently more treatable than CH.
 
Have a good read of the information available in the OUCH library and I think you may find your condition may not be CH at all. No less painful of course, but maybe less resistant to treatment
 
 
Wendy
« Last Edit: Apr 17th, 2004, 9:16am by pubgirl » IP Logged
Melissa
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Re: I am glad I found this site
« Reply #4 on: Apr 17th, 2004, 10:37am »
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Brian, since I really cannot add to the great advice that has already been given, I will just say welcome to ch.com and I am so sorry for your pain.
 
Take care,
Smileymel
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BrianS
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Re: I am glad I found this site
« Reply #5 on: Apr 17th, 2004, 10:25pm »
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Thank you guys very much I believe you are correct.  The cluster was the closest thing I had ever seen to what I experienced. Now I believe it is CPH. Thank you again
 
BrianS
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