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Topic: never met other ch suffers (Read 332 times) |
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painfulbrain
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I love YaBB 1G - SP1!
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never met other ch suffers
« on: Mar 22nd, 2004, 5:53pm » |
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I am just glad to hear that I am not alone.
For 15 years I have been suffering with clusters.
My doctors did not seem to understand. They thought
I was having mygrains. Need help with meds.
I am 43 years old and would like to see another 40.
Thanks for a place to relate with someone who understands.
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Luke63
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For sale: 1 BIG BARKING HEAD Price: Free
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Posts: 1182
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Re: never met other ch suffers
« Reply #1 on: Mar 22nd, 2004, 5:58pm » |
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Hey buddy...welcome...lots of help here for ya..there really is.You'll learn alot and get goin right away...a vast wealth of knowledge and wonderful people on here...so get goin...what are you waitin for......bet your head stopped hurtin just abit already..didn't it? Mine did when I found this place!  Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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thomas
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Re: never met other ch suffers
« Reply #2 on: Mar 22nd, 2004, 6:01pm » |
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Well, I guess you'll just have to walk down the street in July to Nashville and meet a whole bunch of us.  You need to find an abortive that works, that is the #1 priority. Then work on finding a preventive strategy that works.
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| « Last Edit: Mar 22nd, 2004, 6:03pm by thomas » |
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Superpain
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GOT O2!?
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Re: never met other ch suffers
« Reply #4 on: Mar 22nd, 2004, 6:46pm » |
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on Mar 22nd, 2004, 5:53pm, painfulbrain wrote: I am just glad to hear that I am not alone.
For 15 years I have been suffering with clusters.
My doctors did not seem to understand. They thought
I was having mygrains. Need help with meds.
I am 43 years old and would like to see another 40.
Thanks for a place to relate with someone who understands. |
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Me too. I just joined last week and have learned more in this week than any Dr told me in 18 yrs!
Mission #1 for you = GET A TANK OF OXYGEN! Medical or welding, there is no difference except for price. It's a life saver! No shit... 
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Chris
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Luke63
New Board Hall of Famer
For sale: 1 BIG BARKING HEAD Price: Free
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Posts: 1182
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Re: never met other ch suffers
« Reply #5 on: Mar 22nd, 2004, 6:50pm » |
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CONVENTION...CONVENTION...CONVENTION.....Gettin pumped for it man...just printed my form to send in. Go for it too painfulbrain!!!!  ...Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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christinenscott
New Board Newbie
I love YaBB 1G - SP1!
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Re: never met other ch suffers
« Reply #6 on: Mar 23rd, 2004, 1:19am » |
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Hi There!!
ClusterFolks understand!!
You are not alone! My husband (43) just started this shit. Nobody deserves this. NOBODY!!
Since we are first timers, we don't have sage advice, but we can tell you that there is strength in numbers. Knowing that we are not alone is a huge help.
Pain, pain, pain. What a demon. We call it the Enemy in this house. The Enemy attacks. We are currently looking for ways to attack the Enemy back. We'll let you know what those ways are when we know.
Get a neurologist. We just got one and he put my husband on Verapamil. 3 days into it. 10 hours pain free today, but one GrandDaddy of an attack tonight. Hopefully the pain free trend continues.
You are in our thoughts.
Christine and Scott
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TxBasslady
CH.com Alumnus
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Bass fishin' is a h00t It's the catchin' that sux
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Re: never met other ch suffers
« Reply #7 on: Mar 23rd, 2004, 1:30am » |
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Hi and welcome to the board.
Read all the info in the links on the left. You'll learn alot about meds and also home remedies that work for some.
Don't be afraid to ask questions and by all means, let us know how you're getting along.
Lots of knowledge, support and great folks here!
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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