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Topic: Debut (Read 555 times) |
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Tayoskey
New Board Newbie
whiff
 
 
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Hi Guys, i am just joining this website after realising there is quite a lot i can learn from other Cluster Headache suferers, i am a 32 year old guy with 15 years of agonizing cluster experience, i will be delighted if i can have some of your comments on how you are coping with the monster.
regards
'Tayo
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
   
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Re: Debut
« Reply #1 on: Feb 10th, 2004, 2:46am » |
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Welcome aboard and you should find lots of good ideas here for dealing with this horror. Here is a link to something that worked for me:
http://www.netsync.net/users/charlies/
Good luck and let us know how you're doing.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
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Posts: 6721
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Re: Debut
« Reply #2 on: Feb 10th, 2004, 2:58am » |
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Welcome to our world Tayo.
There is a ton of info here, and if you want to know how we all cope, just keep on reading all the posts and you'll get the whole picture, what meds work, what don't, etc.
Click on the OUCH website link to the left and read about what we're trying to do. Join OUCH!
Hang in there Tayo. LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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BarbaraD
CH.com Alumnus
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Hugs to ya
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Re: Debut
« Reply #3 on: Feb 10th, 2004, 5:28am » |
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Welcome to Clusterville Tayo
REad, read, read. If it's been done or tried, someone here has done it or tried it.
We're a great bunch of supporters and KNOW how you feel.
A lot of us have been here since before Clusterville ever got it's first red light. It's a damn shame that so many of us have to be here, but with CH it's the only place to be.
Let us know about you and what you're taking. Give support - take what you need and welcome....
Hugs BD
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What don't kill ya, Makes ya stonger!
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Giovanni
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I love YaBB 1G - SP1!
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Re: Debut
« Reply #4 on: Feb 10th, 2004, 5:51am » |
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Welcome to the board Tayo. I can't tell you how much this site has helped me. Read on.............
Regards,
John
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don
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Another guy wandering around in the bottom of the boat wondring where everybody went.
We are up here on deck! Grab an oar! Start rowing! (Or bailing)
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| « Last Edit: Feb 10th, 2004, 7:56am by don » |
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Woobie
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I luv you guys!!!!!!!!
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Re: Debut
« Reply #6 on: Feb 10th, 2004, 8:01am » |
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Hi Tayo - welcome!!
Check your messages - k?
who's that a picture of?? someone famous?? why are you snifflin at him? 
Stick around a while, you'll like it here -
Tina
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bobkip
New Board Old Timer
I love YaBB 1G - SP1!
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Re: Debut
« Reply #7 on: Feb 10th, 2004, 8:20am » |
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Welcome aboard Tayo,
Loads of good stuff here and at the OUCH site. I do oxygen and get fantastic relief from it.
best of luck,
Kip
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CJohnson
New Board Old Timer
Cannot kill the family, Battery is found in me
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Re: Debut
« Reply #8 on: Feb 10th, 2004, 8:27am » |
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1. Find a neurologist you can rely on.
2. Formulate and employ a preventive strategy.
3. Formulate and employ an abortive strategy.
4. Use what you have learned to help others.
PFDANs
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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Little Deb
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Please SPAY and NEUTER all dogs, cats and idiots!
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Re: Debut
« Reply #9 on: Feb 10th, 2004, 8:59am » |
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Welcome aboard Mate!
Here we swim together, and keep each other afloat.
No sinking allowed.....and no peeing in the water!!!!
Little Deb
NC
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Adopt a shelter pet!
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JDH
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We will get by, We will survive!
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Re: Debut
« Reply #10 on: Feb 10th, 2004, 9:21am » |
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Welcome aboard Tayo.
There's a lot of good people and valuable info here...stick around.
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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TxBasslady
CH.com Alumnus
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Bass fishin' is a h00t It's the catchin' that sux
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Re: Debut
« Reply #11 on: Feb 10th, 2004, 10:50am » |
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Hi Tayo,
Welcome to the board.
Sorry that you are a sufferer.....but really happy to have you on board. Lots of good information here, and the best damn group of supporters in the world.
I see you are from Bryan, Texas! We are having a TEXAS Meet & Greet in Dallas on Feb 28th. There are several of us sufferers here in Texas. Maybe you can make it to the Dallas get together.
Let us know how you are doing.
Sending you lots of PF vibes, from the HOUSTON area!
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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amen
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Re: Debut
« Reply #12 on: Feb 10th, 2004, 12:48pm » |
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welcome! Lot's of great folks here and lots of great info!
Andrea
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Cerberus
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Re: Debut
« Reply #13 on: Feb 10th, 2004, 3:40pm » |
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WELCOME! Tayo..
Hrrmmm...er......what THEY said. 
Ramon
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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thomas
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Welcome aboard. I like the smell of the sea, myself.
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cathy
CH.com Alumnus
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Not all those that wander are lost......
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Re: Debut
« Reply #15 on: Feb 10th, 2004, 4:35pm » |
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Tayo....Great to have you on board, lots of good info about, and a great crew to share thoughts with...
Cathy 
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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ZAIRA
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Brave to Stand !!!
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Re: Debut
« Reply #16 on: Feb 10th, 2004, 4:54pm » |
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Nice to meet you, Tayo!
And, sadly....... Welcome aboard. We all felt hopeless untill found this site. This message board has proved to be a major life line to some of us sufferers, and I am sure that you will find lots of help and support and love from people who understand what you are going through. If you post on this board, you can guarantee that somebody will reply to you.
Stay with us..... regards, Zaira
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Love yourself, Love others, Love often, Forever!
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: Debut
« Reply #17 on: Feb 10th, 2004, 5:21pm » |
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Welcome to the family Tayo. Sorry you needed to search us out. Glad you found us.
\
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Paigelle
Guest
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Happy you found us! We have been here awhile, just wandering around in circles, but you will get used to that. At least we wander together! You will find your best friends here, we are a family.
Paige
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Mr. Happy
CH.com Alumnus
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If I can do it, it ain't art.
 
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Redoubt.........
« Reply #19 on: Feb 11th, 2004, 12:04am » |
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Taaaaaaaaaaaaaaaaaaaa-Yo, me say Ta-aa-aa-Yo,
Daylight come, and we welcome you home.
Tally me bananas,
RJ
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| « Last Edit: Feb 11th, 2004, 12:12am by Mr. Happy » |
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May those who don't want any
Have memories of never getting any.
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ClusterChuck
CH.com Alumnus
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The BEAST rises again, and again, and again, and .
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Re: Debut
« Reply #20 on: Feb 11th, 2004, 1:02am » |
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Welcome aboard, Tayo.
You asked how we deal with this damn affliction. We all have our own ways. Most of us do whatever we can to keep this bastard from ruling our life. We have to make adjustments, yes, but we try to life our life to the fullest, regardless.
When I am getting hit, I work very hard not to think about the pain. I distract my mind. Many listen to heavy metal music. I prefer classical or opera.
When I get a bad hit, I bang my head. I used to do the wall, but I have patched too many holes. I now get down on my hands and knees and bang my head on the carpeted floor. I am not sure why so many of us do that, but we do. Maybe it is just to distract ourselves, or maybe it is just frustration.
I try not to let CH get me down, but it does. Many times, a phone call to another clusterhead works wonders. There have been many phone calls that involved crying, either myself crying to another, or my brother/sister crying to me. Do not be ashamed of crying. We all do it, and we all need it. It helps SO much to have some one who REALLY knows what you are going thru to relate with.
I am now into my 26th year with the beast, and I am still learning new tricks. The best treatment, is the support and love that is in this family!
Welcome aboard, and let us know more about you!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Callico
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Re: Debut
« Reply #21 on: Feb 11th, 2004, 1:19am » |
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How do I survive? Only by the grace of God and these crazy people here. They have said it all above. I would definately second Jean and Cluster Chuck. Find a way to get to Dallas on the 28th. It will be an awesome lifechanging occasion. You have suffered alone long enough. Just to meet another who knows what you are feeling is priceless. We laugh and joke and fight and argue like family around here, but the support is unmatched anywhere I have ever seen.
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Woobie
CH.com Alumnus
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I luv you guys!!!!!!!!
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Re: Debut
« Reply #22 on: Feb 11th, 2004, 7:13pm » |
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YO!
Tayo
You still with us or did we lose ya already???
check in - wuddya?
tina
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eyhavhedaches
New Board Newbie
I love YaBB 1G - SP1!
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Re: Debut
« Reply #23 on: Feb 12th, 2004, 12:41pm » |
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Tayo,
I am 2 days new to the board and your story sounds alot like mine! Started having ch's at age 13 and I am 32 years old now. I was just diagnosed last year. Keep reading and learning, your among fellow clusterheads here and you can learn alot from them. Take the medication survey by hitting the butten to the left, when you have completed it you will get the survey results and may help you in finding some good abortive and preventive suggestions to use with your docter
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When pain is a daily event, the smallest of things can be a miracle!
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