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Topic: is anyone there coz this really hurts (Read 518 times) |
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cablemate
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I love YaBB 1G - SP1!
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is anyone there coz this really hurts
« on: Feb 6th, 2004, 7:02am » |
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if tehere is anyone online who really knows what it's like, i could do with some inspiration right about now
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BarbaraD
CH.com Alumnus
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Hugs to ya
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Re: is anyone there coz this really hurts
« Reply #1 on: Feb 6th, 2004, 7:10am » |
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Hang in there. There's a few of us in the same boat. And I have to go to work in a few minutes.... Think today I may scare little children and animals.... My left eye is swollen almost shut.
I still think it's the barometric pressure. It's going crazy right now. That's usually when I get hit.
But we're here for ya ...
Hugs BD
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What don't kill ya, Makes ya stonger!
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cablemate
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Re: is anyone there coz this really hurts
« Reply #2 on: Feb 6th, 2004, 7:20am » |
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Thank you,
This is only the third time in 2 years that i've had a CH but this is the first time that the medication hasn't worked and I'm scared shitless.
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bobkip
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Re: is anyone there coz this really hurts
« Reply #3 on: Feb 6th, 2004, 8:00am » |
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We're here. Woke up from a sound sleep around 4:30 am with a 6. Tried to tough it out but after 10 minutes it was pushing 7 and I hit the O2. 5 minutes later it was gone but couldn't get back to sleep. If you haven't tried O2, give it a go.
Kip
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benj
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15 year cluster vet...and counting...
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Re: is anyone there coz this really hurts
« Reply #4 on: Feb 6th, 2004, 8:02am » |
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hey cablemate,
stay strong - there are heaps of different meds to try - you don't have to put your faith in just one.
Same goes with personel support - lots of us here (some live close too).
We all fight this and we live through it - because we just have to. Some won't admit defeat to the beast, some just can't comtemplate anything else, and some are scared by the pain but fight the fucker anyway. Whatever you choose, don't back away.
Try different doctors, different meds, different combos. Your answer is out there, everyone's answer is out there - you just have to hold on - it's the only fucking way mate.
I'm in your neck of the woods - give me a buzz whenever you need someone who knows the pain to help.
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I don't think of all the misery, but of all the beauty that still remains - Anne Frank
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Tim_w
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Re: is anyone there coz this really hurts
« Reply #5 on: Feb 6th, 2004, 8:44am » |
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cablemate
Hang in there !
If you need to talk to someone go to headachesupportgropes.com Chat Ill be there for a while
wishing you some pain free time
TimW Happy Pappy
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We will all go to HEAVEN we have been to HELL! -(Personal Quote) YES There is life out There (Thank you to my new suporters)
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Tim_w
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Re: is anyone there coz this really hurts
« Reply #6 on: Feb 6th, 2004, 8:46am » |
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That Was to be headachesupportgroups.com
sorry cant spell worth a $hit LOL
TimW
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We will all go to HEAVEN we have been to HELL! -(Personal Quote) YES There is life out There (Thank you to my new suporters)
They say this will only make me stronger but I did not ask to be SUPERMAN
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jonny
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Re: is anyone there coz this really hurts
« Reply #7 on: Feb 6th, 2004, 3:23pm » |
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CableDude,
Turn up your speakers and click the link below, it ought to scare the beast right the fuck out of your head 
http://www.rathergood.com/lightsabre/
..................jonny
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Little Deb
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Re: is anyone there coz this really hurts
« Reply #8 on: Feb 6th, 2004, 5:06pm » |
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There are LOTS of us here....you will NEVER be alone again.
welcome to Clusterville......Little Deb
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Tiannia
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Re: is anyone there coz this really hurts
« Reply #9 on: Feb 6th, 2004, 5:14pm » |
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We are here. We will listen and we understand. THere are lots of different thigs to try and like many of us have learned not everything works everytime and forever. So dont be afraid to ask for / demand to have somethign different if what you have is not working. Stay stong.
Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Callico
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Re: is anyone there coz this really hurts
« Reply #10 on: Feb 7th, 2004, 1:17am » |
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There is almost always someone on line here. You will not find a more caring group of people anywhere. Pull up a chair and start reading and asking questions. You have met those who really do feel your pain.
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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TxBasslady
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Bass fishin' is a h00t It's the catchin' that sux
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Re: is anyone there coz this really hurts
« Reply #11 on: Feb 7th, 2004, 2:18am » |
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Hi Mate,
Welcome to the board......
Jerry is right..........we know and have felt your pain.
Did you send an email to benj????? You guys must live close to one another. Contact with another CH sufferer will do you a world of good. Nothing better than meeting one in person!!! Hope you guys live close enough that you can maybe meet.
I am so sorry that you are having a rough time right now. It WILL get better! I know it's hard to see that right now.
Always remember that you are not alone in this battle. Someone usually here 24/7. Post at any time...
Sending you lotz of pf vibes across the miles 
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
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www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Cooked Brain
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a.k.a. Max Payne, YOUCH this hurts...
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Re: is anyone there coz this really hurts
« Reply #12 on: Feb 15th, 2004, 9:08am » |
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be tough and hang in there cablemate!
might be easier said than done but still,
we understand that too...
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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Sean_C
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Re: is anyone there coz this really hurts
« Reply #13 on: Feb 16th, 2004, 9:26pm » |
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Cabledude,
Sounds like a kip 10 of sorts, hang on bro sometimes its a roller coaster ride.
Jonny my brother..........you are fukked LMMFAO I love it
Try to get some O2, you'll love it
PFDAN vibes comin your way
Sean
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Charlie
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Re: is anyone there coz this really hurts
« Reply #14 on: Feb 17th, 2004, 8:41pm » |
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Welcome and we know what you mean. Here you don't have the frustration of people not knowing that this horror has nothing in common with what people think of when they hear the word: "headache." Here are a couple links that may be helpful. The first being to a technique that worked for me:
http://www.netsync.net/~charlies/
[url]"http://www.ouch-uk.org/ch/note_colleagues.cfm" [/url]
Let us know how you're getting along.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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ClusterChuck
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Re: is anyone there coz this really hurts
« Reply #15 on: Feb 19th, 2004, 1:46am » |
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Cablemate, welcome aboard, and how are you doing?
We are concerned. Let us know how you are doing. this is the ONLY place where you will find a whole shitload of people that REALLY know what you are going thru. We are a family, and we need to know you are alright.
Tell us more about what you are going thru, what meds you have tried. Ask questions. Cry. Bitch. Vent. We all do it at one time or another.
We are here for you, Brother! We DO care. Give us an update.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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