Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 22nd, 2024, 2:08pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Strange odors during CH hit? »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2005 Cluster Headache Specific Posts
(Moderator: DJ)
   Strange odors during CH hit?
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Strange odors during CH hit?  (Read 855 times)
jon019
Guest

Email

Strange odors during CH hit?
« on: Nov 21st, 2005, 3:30pm »
Quote Quote Modify Modify Remove Remove

Hello All,
 
The neurologist may have thought I was nuts (strange look) but did say "never heard THAT one, but I want you to tell me any and all symptoms, never know, it might help down the line".
 
What am I talking about? Well, for the past several years, when hit hard and breathing deeply through my nose, (trying to suck back the running faucet) I perceive a strong, distinct and unmistakeable odor of ammonia. In fact it has become a tell for me that this is going to be a bad one. Nothing like it for "regular" hits.
 
So, am I nuts? Anyone else here experience similar? Anyone with any idea what's going on?
 
Regards,
 
Jon
IP Logged
AussieBrian
New Board Hall of Famer
Australia 
*****




Got beer?

   


Gender: male
Posts: 1695
Re: Strange odors during CH hit?
« Reply #1 on: Nov 21st, 2005, 3:43pm »
Quote Quote Modify Modify

If you're nuts then I'm nuts, too.  You've described it exactly.  
 
It's my personal opinion that the inside of the nose becomes thoroughly washed and our scent sensors more exposed than usual.
IP Logged

Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
MJ
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 911
Re: Strange odors during CH hit?
« Reply #2 on: Nov 21st, 2005, 3:59pm »
Quote Quote Modify Modify


Can I offer you guys a breath mint.
 
Kidding aside, Yes I too, often, not allways, experience a noticeable odor, not ammonia like, just an indescribable odor that lasts for a bit "before" the onset of an attack.
 
I once asked someone if they smell something funny and they said no. So I just thought another oddball quirk.
IP Logged

MJ
brainfreeze
New Board Junior
USA 
**






   
Email

Gender: female
Posts: 79
Re: Strange odors during CH hit?
« Reply #3 on: Nov 21st, 2005, 5:28pm »
Quote Quote Modify Modify

I too experience the funky smell.   I haven't the words to describe it.  The ammonia scent is the 'hayfever' type tickle that accompanies it.  But there is a distinct odor prior to that.  Ick....
IP Logged

Susan
Spike_Inmyeye
New Board Junior
Syria 
**



Better living through oxygen!

   


Gender: male
Posts: 52
Re: Strange odors during CH hit?
« Reply #4 on: Nov 21st, 2005, 7:50pm »
Quote Quote Modify Modify

Mine is a moldy smell that is very transitory.  I ask people if they can smell it and they can't.  Talk about feeling stupid.
IP Logged

"If you can treat it over-the-counter it isn't a headache"
Killroy 2.0
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Kilroy 2.0 is Here! Kilroy 2.0 is Everywhere!

  gmlevenhagen  
Email

Posts: 1426
Re: Strange odors during CH hit?
« Reply #5 on: Nov 22nd, 2005, 8:53am »
Quote Quote Modify Modify

I own cats when ever I am very heavy in cycle I just thought I was more sensitive to the odors of the cat box.  
 
Poor kittys I was blamming them  Roll Eyes
IP Logged

Do the walls speak to you? Do you follow the Geek Messiah? DO YOU COMPLY?!
RobHealy
New Board Newbie
USA 
*




Pain is no evil unless it conquers us.

    robhealy5
WWW

Gender: male
Posts: 11
Re: Strange odors during CH hit?
« Reply #6 on: Nov 23rd, 2005, 12:18pm »
Quote Quote Modify Modify

The smell I get is like a dry cleaners or something.  Like a gym locker room.  Not musty in an organinc way, but sort of musty nonetheless.
 
I can only liken it to a dry, old person's apartment with the heat jacked up in the middle of winter.
 
It's weird that I sense it as an odor, because it seems to just sit there even when I'm not inhaling through my nostril.
 
Pain free wishes, all.
 
-Rob
IP Logged
jon019
Guest

Email

Re: Strange odors during CH hit?
« Reply #7 on: Nov 26th, 2005, 8:08pm »
Quote Quote Modify Modify Remove Remove

Thanks for the replies.
 
Good to know I'm only as nuts as AussieBrian. Nuts about seafood and beer.. Guess I'll need that breath mint MJ.
 
Guess there are thankfully few with this added bedevilment. Puzzling that it is similar odors like "NH3", "ick", "cat box", "moldy", "musty". Why can't it be roses?
 
Regards and roasting turkey odor to all,
 
Jon
IP Logged
kcopelin
CH.com Alumnus
New Board Hall of Famer
USA 
*****



good grief

   


Gender: female
Posts: 536
Re: Strange odors during CH hit?
« Reply #8 on: Nov 26th, 2005, 8:43pm »
Quote Quote Modify Modify

Okay, this is really interesting.  I too have always noticed a strange smell.  Now, I have alwasy had a very keen nose (have diagnosed car trouble by the smell) but this is an ammonia/metalic smell.  Wow, the fact that anyone else experiences this could be significant for the neuros.  And, you know what, my neuro never asked any questions about this.  
A definite research topic.  Thank you for a very interesting thread Jon
kathy
IP Logged

Words count, chose carefully.
BarbaraD
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Hugs to ya

   
Email

Gender: female
Posts: 5164
Re: Strange odors during CH hit?
« Reply #9 on: Nov 27th, 2005, 7:30am »
Quote Quote Modify Modify

I smell something like baking bread or other odd ball smells. I don't think anyone's baking bread in the car or outdoors or anywhere in the house at the times I get the "scent", but I know a headache is going to hit soon. I think they call that an "aura" in migraines - guess it's the same in CH.  
 
Hugs BD
IP Logged

What don't kill ya, Makes ya stonger!

Annette_Emond
New Board Veteran
Canada 
***



Family Member

   
Email

Gender: female
Posts: 189
Re: Strange odors during CH hit?
« Reply #10 on: Nov 27th, 2005, 9:05am »
Quote Quote Modify Modify

Interesting- Dave says no to odors.  But... years ago I learned that a lot of people who experience epiliptic seizures can smell a distinct odor of burnt toast prior to onset.  Is it possible that nerve activity is jumping around and there is a stimulation of olfactory memory?
IP Logged

Happiness runs in a circular motion..
you can sometimes come back around to what you thought was done.
BobG
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 5747
Re: Strange odors during CH hit?
« Reply #11 on: Nov 27th, 2005, 11:00am »
Quote Quote Modify Modify

on Nov 27th, 2005, 9:05am, Annette_Emond wrote:
years ago I learned that a lot of people who experience epiliptic seizures can smell a distinct odor of burnt toast prior to onset.  

I think Annette is right on this one. I've seen many reports/stories of someone's dog barking or other unusual behavior of a pet prior to the onset of the owner's seizure. Possibly the dog also picks up the same smell.
IP Logged

Stay stressed. Never relax. Never sleep. Ever.
BarbaraD
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Hugs to ya

   
Email

Gender: female
Posts: 5164
Re: Strange odors during CH hit?
« Reply #12 on: Nov 27th, 2005, 4:00pm »
Quote Quote Modify Modify

I saw a news story about dogs that are trained to pick up on epileptic seizures before they happen. They warn the family before onset and everyone is prepared. This story was about a child and the dog went to school with the child and slept with her - it was amazing. Maybe there is something to the smell thing.
 
Hugs BD
IP Logged

What don't kill ya, Makes ya stonger!

TonyG1
Guest

Email

Re: Strange odors during CH hit?
« Reply #13 on: Dec 1st, 2005, 7:37pm »
Quote Quote Modify Modify Remove Remove

I don't think I've ever had the ammonia smell but my sense of smell seems keenly stronger (bloodhound like) when I'm in a cycle ....
IP Logged
joke ten dam
New Board Junior
Netherlands 
**



I love YaBB 1G - SP1!

  poldertocht  
Email

Gender: female
Posts: 51
Re: Strange odors during CH hit?
« Reply #14 on: Dec 1st, 2005, 7:46pm »
Quote Quote Modify Modify

Grin well I am another crazy one I can smel all sorts of strange smels that are definitly not there. I do think we had someone that mentiond this a year or so ago but I could be mistaken. I shal ask the same question on the dutch massage board.
IP Logged
ScottEinDC
New Board Newbie
USA 
*






   
WWW

Gender: male
Posts: 26
Re: Strange odors during CH hit?
« Reply #15 on: Dec 1st, 2005, 9:39pm »
Quote Quote Modify Modify

I've noticed an increase sensitivity while experiencing a CH, very strange.   Huh
IP Logged
Karla
CH.com Alumnus
New Board Hall of Famer
USA 
*****




One of Many and Never Alone - Join OUCH

  Karlak_1313  
Email

Gender: female
Posts: 3090
Re: Strange odors during CH hit?
« Reply #16 on: Dec 8th, 2005, 1:31pm »
Quote Quote Modify Modify

I used to have epilepsy for 28 years.  I could always tell a seizure was comming because I would get a burnt toast/soapy smell and a pressure in my head.  It gave me enough time to lay down, tell someone, etc.
 
However, with my ch I have NO smells or ordors.  Sorry guys guess I am lucky with this one.
IP Logged

Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
NOLOGO
New Board Newbie
United_Kingdom 
*



Hummm.......... ...what next?

   


Gender: male
Posts: 5
Re: Strange odors during CH hit?
« Reply #17 on: Dec 9th, 2005, 4:29am »
Quote Quote Modify Modify

Hi everyone, hope all is good with you.
  This is most odd, for the first time(ever) last night
   I got the very Strong smell of "Acid" or "Amonia"  
   In my right nostril just before you know what.
   I woke this morning and the smell came right back.
   But it has now recceded, and no headache.
   It was very overpowering(if not painfull) most strange
IP Logged
Beastfodder
New Board Old Timer
United_Kingdom 
****



O2 and clusterbusters - naturally

   


Gender: male
Posts: 294
Re: Strange odors during CH hit?
« Reply #18 on: Dec 9th, 2005, 12:23pm »
Quote Quote Modify Modify

My nose is usually so blocked I struggle to smell anything unusual,
IP Logged

O2 and clusterbusters - naturally
writer
New Board Junior
USA 
**



I love YaBB 1G - SP1!

   


Posts: 52
Re: Strange odors during CH hit?
« Reply #19 on: Dec 11th, 2005, 4:06pm »
Quote Quote Modify Modify


 
Yes, frequently, with the odor noticeable as an attack ends.  Some years back I was researching in the Natl. Library of Medicine and read a hair-raising first-person account of a Kip 10 attack and was surprised to read there, too, about an odor surrounding the sufferer.  His wife noticed it too, when she came in the room as the attack was ending.  
 
I can't describe the smell--it's too weird, too vague.  But it's THERE.
IP Logged
tenacious
New Board Newbie
Canada 
*





   
Email

Gender: female
Posts: 27
Re: Strange odors during CH hit?
« Reply #20 on: Dec 12th, 2005, 8:01pm »
Quote Quote Modify Modify

on Nov 21st, 2005, 3:30pm, jon019 wrote:

(trying to suck back the running faucet)

 
Are you sure it's amonia you smell, or is it chlorine?   Grin
IP Logged

Ang
Melissa
Guest

Email

Re: Strange odors during CH hit?
« Reply #21 on: Dec 12th, 2005, 10:30pm »
Quote Quote Modify Modify Remove Remove

No odors, but my right nostril will just feel like someone shot some dry ice up into it where it is painfully acute.
IP Logged
E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: Strange odors during CH hit?
« Reply #22 on: Dec 12th, 2005, 10:37pm »
Quote Quote Modify Modify

I never really thought about it.
 
I guess there is a real burning kinda ammoni like when peaking at a high level attack
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss