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Topic: Coping (Read 1193 times) |
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rextangle
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This may or may not help you...
The important thing about having this condition is to try to maintain your sanity. Don't let the beast win.
Since I stopped all meds a year ago, I rely mainly on 02.
Of course, it doesn't always work as fast or as well as we wish. Everytime I get hit, I go into a different mode. I try to focus on anything but the pain. And that's extremely difficult to do, no doubt.... but with practice I've been able to make those attacks more bearable.
Focus on music, bad TV, or think very hard about something and analyze it in your head as the beast messes you up.
When it's over, go back to be who you are... don't think about what just happened or what's coming up next.
Try to be happy about something no matter what it is...
a family member, your spouse, something good to eat...
As I get hit multiple times per night, day after day, I get to practice this method a lot. It truly helps me.
Look at CH as something you have to do on a daily basis, just like taking a crap. Yep, a painful crap or multiple crap indeed, but move on the minute it's over...
None of us (I hope, but could I be wrong) don't stay by the porcelain bowl after taking a dump and feel sorry about how bad it was, staring at it crying.. right???
So do the same with your CH attacks. Put the lid down, and flush it. Move on... do something you love...
Any questions?
Rex
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| « Last Edit: Oct 13th, 2005, 6:47pm by rextangle » |
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Kate in Oz
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Re: Coping
« Reply #1 on: Oct 13th, 2005, 8:51pm » |
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Good on you Rex, that is so true!!
If I get woken with a hit there's not much to do but ride it out... but during the day as soon as I get the twinge I get busy, frantic even, you've never seen me get up so quick to start on the house work!! And sometimes it even works.
Luckily for me I am pf at the moment but next time... I'm gonna remember what you said about crying over a shit. It might just help 
Thanks,
Kate
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nani
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Re: Coping
« Reply #2 on: Oct 13th, 2005, 9:00pm » |
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on Oct 13th, 2005, 5:14pm, rextangle wrote:
Look at CH as something you have to do on a daily basis, just like taking a crap. Yep, a painful crap or multiple crap indeed, but move on the minute it's over...
None of us (I hope, but could I be wrong) don't stay by the porcelain bowl after taking a dump and feel sorry about how bad it was, staring at it crying.. right???
So do the same with your CH attacks. Put the lid down, and flush it. Move on... do something you love...
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Truly, some of the most profound words of wisdom I've ever seen. Seriously. 
hugs, nani
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Others may come and go, but MY power is MINE.
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unsolved1
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That's some of the best advice I've seen on this website! I've had to learn to 'flush it' and move on years ago. I learned it the hard way too. 
Thanks for your valueable post Rex !
UNsolved
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jon019
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[quote author=rextangle lThis may or may not help you...
See the full quote above
Oh wow Rex, you are so 100% right. And coping is exactly the right word. We've all been there when the meds, or O2, or alternatives just did not work. Now what...
Ride it out? Been there. Wanna try something else? I know you do.
This may sound weird but as a wise man once told me "desperate people do desperate things". basically its a form of meditation (which I know nothing formally about) and another way of stating what Rex has already said.
When the hits come, and nothing else works, I FORCE myself to concentrate. Surround the center of the pain with a circle and enclose it. Tell myself it is not pain but a "thing", do not allow it out, slowly close the circle, squeeze the bastard out, DO NOT give in to the pain!
Does this work every time. Nope! Does this even work MOST of the time, NOPE!. Does this work once in a while? Damn right! The satisfaction and relief is indescribable (see descriptions of people finding O2 or triptans for the first time). Am convinced if I had the training AND the will power it would work more often.
It IS exhausting (as much as the CH itself). it takes enormous concentration (try that with a kip 8-10) but its another option that you should at least consider. What have you got to lose?
Regards
Jon019
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| « Last Edit: Oct 13th, 2005, 11:09pm by jon019 » |
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E-Double
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Re: Coping
« Reply #5 on: Oct 13th, 2005, 9:56pm » |
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You rock brother!!!!!
Follow the motto....It is what it is so live the life you've got
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Mr. Happy
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Re: Coping
« Reply #6 on: Oct 13th, 2005, 10:37pm » |
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So a decent CH is like passing a mental turd,
and we're left holding the shitty end of the stick.
I'm wearing gloves around y'all,
RJ
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May those who don't want any
Have memories of never getting any.
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jon019
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Put the gloves on Hap,
All I'm sayin' is that when you get served a shit sandwhich in proper company. Miss Manners be damned, there is more than one one to eat it.
Regards
Jon019
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BMoneeTheMoneeMan
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Re: Coping
« Reply #8 on: Oct 14th, 2005, 12:12am » |
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Thats some real good advice, Rex.
Yes the pain is bad, and the no sleep for 6 to 10 weeks sucks too, but keeping my sanity is probably the hardest thing for me.
Thanks a lot man.
BMonee
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LeLimey
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Re: Coping
« Reply #9 on: Oct 14th, 2005, 3:45am » |
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Rex that is bloody brilliant! I love it and you couldn't be more right!
Helen
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Sandy_C
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Re: Coping
« Reply #10 on: Oct 14th, 2005, 1:19pm » |
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Absolutely, Rex.
We all do whatever we have to do to cope, and then get on with our lives. I, personally as I'm rocking back and forth, say "go to He** you bitch"(my CH is female, I just know it), over and over until she's gone. And then, I get up and go about my business for the day. I try desperately not to think about the next hit.
Sandy
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Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
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sandie99
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Re: Coping
« Reply #11 on: Oct 16th, 2005, 3:46am » |
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Great post, Rex! 
Thank you. I keep that in mind...
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Jonny
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Re: Coping
« Reply #12 on: Oct 16th, 2005, 3:49am » |
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on Oct 13th, 2005, 5:14pm, rextangle wrote:
Yep....When do we get to see you throw down the unbreakable rifle? 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Jasmyn
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Re: Coping
« Reply #13 on: Oct 16th, 2005, 4:00am » |
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Jazz
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jcmquix
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Re: Coping
« Reply #14 on: Oct 16th, 2005, 1:18pm » |
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Rex... This is truely Great ADVISE and after reading it I just wanted to BUMP it back to the top..
Thank You
God Bless & PFDAN's
Charlie
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AussieBrian
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Re: Coping
« Reply #15 on: Oct 17th, 2005, 12:44am » |
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Putting the lid down and flushing is one thing, mate, but this one's stuck in the S-bend. Otherwise, great advice.
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zanychef
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Re: Coping
« Reply #16 on: Oct 17th, 2005, 8:17pm » |
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i flush mine daily!
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plenty of time to sleep now me headaches aint too bad
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rextangle
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Keep on flushing this shitty condition people!
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BlueMeanie
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Re: Coping
« Reply #18 on: Oct 17th, 2005, 10:27pm » |
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I never thought of CH's like taking a crap before. But since you put it that way, I think instead of taking a crap, it's more like taking a piss. When it's over, you shake it off. If you hold on too long, it's hard to let go.
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AussieBrian
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Re: Coping
« Reply #19 on: Oct 18th, 2005, 5:15am » |
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Flushing, flushing and flushing - and it just keeps floating back. Ever have one like that? Try every trick you've got and , gazoompah, it's still there looking you in the face and laughing.
Still, if that's the beast personified, it's also the best place for it.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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Phil L
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Re: Coping
« Reply #20 on: Oct 21st, 2005, 9:43pm » |
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I wonder if learning and saying a mantra would help. I'll try it and let you know.
Phil
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Kate in Oz
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Re: Coping
« Reply #21 on: Oct 21st, 2005, 10:32pm » |
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on Oct 21st, 2005, 9:43pm, Phil L wrote:I wonder if learning and saying a mantra would help. I'll try it and let you know.
Phil |
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I've got a few I use.... one goes kinda like this
shit fuck shit fuck shit fuck oh ouch shit fuck.... and so on and sometimes its just kind of
oooooh grunt grunty fuck grunt ooooh fuck
It doesn't necessarily help with the pain tho - but for the life of me if it's a bad one I'll be doing it - otherwise I'm reduced to tears, screaming and jumping about.
It's never a pretty sight 
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Kate in Oz
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Re: Coping
« Reply #22 on: Oct 23rd, 2005, 7:21am » |
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Sorry bout that last post 
I bought the whole 'inspired' theme of this post to a really rotten level  Guess I should have thought to flush the other shit in my life before posting - been a tough week. Sorry all 
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MJ
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Re: Coping
« Reply #23 on: Oct 23rd, 2005, 10:33am » |
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Thatta girl Kate.
We all have a mantra of sorts. Use it when you need it
then
Leave it behind and move on if only for a moment
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MJ
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jon019
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Oh Kate,
No apologies necessary as far as I'm concerned. It's called coping. You do whatever you gotta do.
A mantra happens most of the time (for me anyway). It just is; like the rocking, pacing, head squeezing, screaming...
Sometimes profane, sometimes stupid, sometimes pleading. Can't say whether it helps or not, it sure doesn't make it worse, and maybe, just maybe, it allows
the briefest respite we all crave if you can concentate on SOMETHING else, ANYTHING else.
Regards
Jon019
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