Author |
Topic: CH Database Part 3-2 (Read 319 times) |
|
cluster
New Board Veteran
Water X 3 - It works !
Gender: 
Posts: 137
|
 |
CH Database Part 3-2
« on: Oct 1st, 2005, 5:27am » |
 Quote  Modify
|
Global Cluster Headache Database
Some ideas on how this could be made to work
* continued from part 3-1 *
- Within the questionnaires each ‘chapter’ of questions should also have a field to allow the patient to enter some free text for comments and additional information. Regarding triggers for example, I am sure there will be some news about triggers not commonly known yet.
- The first data collection should happen over a defined period of time, perhaps over a year or two. One important data field is the date the data was collected …. Well, if I continue to explain why all this is necessary, this posting will get endless.
- ‘Sample Size’: As many patients as possible. Ideally 100% to enable descriptive statistics. I don’t think it is possible yet to work statistically on cluster headaches using representative statistics.
- Finally, there will hopefully be a lot of patient’s data in the database. The evaluation itself is a peace of cake for database and statistics experts. The doctors would have defined their questions to be answered by the database together with the development of the questionnaires. Also linear regression analysis should be used to test relations between continuous variables. Fictitious example: Perhaps we will find out that treatment ‘X’ only works for blue eyed patients. Perhaps we will find out that there is no relation between anything at all. But this would also be a result, an advance in knowledge we haven’t got yet.
Next steps then (some years later): The more you know, the more questions you will have! – Global Cluster Headache Database second round: Develop new questionnaires based on the questions which arose from the first survey, include new knowledge and treatments. As Floridian wrote: “Privacy is one big consideration. Another is capturing change over time - maybe some treatment works for someone, then they report it is great, and later, it stops working - it is tricky to capture that type of phenomena.”
My first reaction was: Lets do one step after the other – but Floridian is right, the database will have to be designed to handle change over time.
I think, this is enough for today. There is much more to tell about it.
More to follow,
Friedrich
|
|
 IP Logged |
-> Click here to join O.U.C.H.
http://ck-wissen.de - German CH Site
"The greatest obstacle to discovery is not ignorance - it is the illusion of knowledge"
Daniel J.Boorstin
|
|
|
AussieBrian
New Board Hall of Famer
Got beer?
Gender:
Posts: 1695
|
 |
Re: CH Database Part 3-2
« Reply #1 on: Oct 1st, 2005, 6:22am » |
Quote Modify
|
Well you've certainly gone to alot of effort here, Cluster, and I can see only good from it.
I understand barely a word of what you've written so far but if I can be of any help from the the Australian standpoint then feel free to contact me anytime.
Kindest regards,
Brian.
|
|
IP Logged |
Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss