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   Author  Topic: shadows or rebound ???  (Read 352 times)
kelliev
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shadows or rebound ???
« on: Sep 24th, 2005, 7:18pm »
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hi,  been having cluster headaches  4 weeks now, seems to be different than usual...getting them all night long, sometimes almost mild compared to what ive had in the past...still wake from sleep and pace and moan though....my eye quite often doesnt seem to be involved just awful pain right thru trimengal nerves..the full blown ones eye is still involved.  using a lot of imitrex, wonder if these are shadows or rebound headaches from the imigran ???  please help
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AussieBrian
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Re: shadows or rebound ???
« Reply #1 on: Sep 24th, 2005, 8:19pm »
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Kellie, g'day from across the ditch.
 
What you've just described is very similar to what I get at the end of a particularly vicious cycle.  I call it the hang-over effect and it's almost like something is bruised in there and throbbing.  Maybe it is.
 
Either way, perhaps it's worth getting it checked out as you should with any major change.
 
Cheers and beers,
 
Brian.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
Kate in Oz
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Re: shadows or rebound ???
« Reply #2 on: Sep 25th, 2005, 5:34am »
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Hey Kellie,
 
I got your PM, thanks  Wink ...  I don't know if this will help you... but for the past couple of weeks I've been having shadows that were really bad! and seemed to last all day long - however I was able to sleep thru the night despite the fear of a full blown attack   turns out no major hits - helped by use of 02??  
 
I had a cycle a couple of years ago that lasted for six months - turned out it was caused by rebound headaches due to the numerous medications I was trying  Undecided    
 
So... I've been getting quite worried about these shadows cos I don't want to go there again  Lips Sealed  and have been wondering if the cycle was coming to an end (no hits for 2 weeks)   anyway ... decided to cut down my meds - I'm taking verapamil.   I'm nearly off the stuff now and despite a really hairy time of it on Thursday - i was very tempted to get back on the drugs but stuck with the 02 on and off all day ...  
 
the shadows have now gone!  
 
Of course I wouldn't have called the beasts bluff without the 02 onboard...and I guess it's only early days .... but my fingers are firmly crossed.  
 
I know we're all different and what works for one.....  and you know you're cycles better than anyone....  
of course check in with your doctor...  
 
I just thought I'd share my experience  -  cos well you never know ????  I guess for me having that extended cycle freaked me out so much... I don't want to be going there again (especially now I'm on my own with a toddler).  I think sometimes the drugs can #!#! you up as much as the ch's.  Of course you gotta do something if you're still getting hit - highly recommend the 02.  This is the first cycle in many many years that I've had the 02 at home and I can't tell you what a relief it has been  Wink
 
I hope you get some relief soon !
 
Take care,
 
Kate
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Bob_Johnson
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Re: shadows or rebound ???
« Reply #3 on: Sep 25th, 2005, 7:16am »
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It's not always clear. Generally--by definition--a rebound attack feels like a "regular" cluster although it is caused by the overuse of an abortive/pain med.  
 
Your comment about using much triptan opens another possibility:
 
: Headache. 2004 Jul;44(7):713-8.  Related Articles, Links  
 
   
Subcutaneous sumatriptan induces changes in frequency pattern in cluster headache patients.
 
Rossi P, Lorenzo GD, Formisano R, Buzzi MG.
 
Objectives.-To document the relationship between the use of subcutaneous (SQ) sumatriptan (sum) and a change in frequency pattern of cluster headache (CH) in six patients. To discuss the clinical and pathophysiological implications of this observation in the context of available literature. Background.-Treatment with SQ sum may cause an increase in attack frequency of CH but data from literature are scant and controversial. Methods.-Six CH sum-naive patients (three episodic and three chronic according to the International Headache Society (IHS) criteria) are described. Results.-All six patients had very fast relief from pain and accompanying symptoms from the drug but they developed an increase in attack frequency soon after using SQ sum. In all patients, the CH returned to its usual frequency within a few days after SQ sum was withdrawn or replaced with other drugs. Five patients were not taking any prophylactic treatment and SQ sum was the only drug prescribed to treat their headache. Conclusions.-Physicians should recognize the possibility that treatment of CH with SQ sum may be associated with an increased frequency of headache attacks.
 
PMID: 15209695 [PubMed - in process]  
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Bob Johnson
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