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Topic: Happening right now (Read 366 times) |
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Sandy_C
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Happening right now
« on: Sep 20th, 2005, 1:29pm » |
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The oddest thing is going on. My right eyelid/brow is sagging very low, to the point where it is beginning to interfere with my vision in my right eye. Like a window shade slowly being lowered. I have absolutely no other symptoms of a hit - no pain, no runny nose, nothing. Any ideas?
Sandy
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LeLimey
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Re: Happening right now
« Reply #1 on: Sep 20th, 2005, 1:37pm » |
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Thats what people call a phantom cluster to Sandy, its not a hit but you get all the symptoms and no pain.
Preferable to a hit anyday in my book!
I do believe its got a real name which is hortons syndrome but I hope someone will correct me if I'm wrong
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Sandy_C
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Re: Happening right now
« Reply #2 on: Sep 20th, 2005, 2:16pm » |
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But I'm not in cycle????? 
I had something like this toward the end of my last cycle, but I was still in the cycle. I'm completely out of cycle - this is weird!
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nani
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Re: Happening right now
« Reply #3 on: Sep 20th, 2005, 2:26pm » |
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That happened to my husband last Spring, Sandy. After a number of tests to rule out other things, they finally decided it must have been caused by stress. When he changed jobs, it improved over a few weeks. Perhaps you should call your dr. Just to rule out anything serious.
hugs, nani
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LeLimey
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Re: Happening right now
« Reply #4 on: Sep 20th, 2005, 2:31pm » |
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I'm almost certain that this happened to Margi's hubby out of cycle too.. drop her an IM and see. I know she has talked about it before too but I agree with Nani too, it never hurts to check with your doctor!
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Margi
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Re: Happening right now
« Reply #5 on: Sep 20th, 2005, 2:37pm » |
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Hi Sandy, I'll save you an IM. Yes, Mike gets the "silent" hit (as we call them). It started during remission, two cycles ago. However, this one cycle that he's STILL in, it's happening now, between attacks. I don't know what the heck is going on. Tomorrow this cycle hits the 9 month mark! I've noticed an increase in the silent hits lately, and a decrease in the full blown cluster attacks. I have no idea what's going on - he's never had a cycle last this long.
But for him with his silent hits, his eyelid doesn't droop - it never has even during a full blown hit though. His pupil dilates/constricts, while the unaffected side stays normal. It reverts to normal after about 45 minutes (typical attack length for him). No pain at all, just some congestion. Very strange to witness (and he often can't even tell it's happening unless he looks in the mirror).
I'm with Nani though - might be worth a call to your doc. If your eyelid drooping has happened suddenly it might be an indicator of something else going on. I wouldn't mess with it!
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Sandy_C
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Re: Happening right now
« Reply #6 on: Sep 20th, 2005, 2:46pm » |
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Thanks to all. I'm now noticing just a slight amount of tearing in the right eye. Strange?? still no pain. If this doesn't go away by tomorrow, I'll call my doc.
It's weird but it sure is better than getting hit with pain.
I'll take looking like a half a beagle if that's what it takes to keep me PF 
Sandy
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Lean on me when you're not strong
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Sandy_C
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Re: Happening right now
« Reply #7 on: Sep 20th, 2005, 2:49pm » |
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on Sep 20th, 2005, 2:37pm, Margi wrote: Tomorrow this cycle hits the 9 month mark! I've noticed an increase in the silent hits lately, and a decrease in the full blown cluster attacks. I have no idea what's going on - he's never had a cycle last this long.
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Thanks Margie. I' so sorry Mike's getting hit so long right now. The silent hits have to be a blessing over a full blown hit, but 9 months is a long time. Give him a hug from me, and here some for you.
Sandy
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Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
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lionsound
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Re: Happening right now
« Reply #8 on: Sep 20th, 2005, 3:10pm » |
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Sandy,
If it's new for you, call your doc.
I get all kinds of strange stuff without pain. Eye tearing, sneezing (non-allergy)are two of the big ones. Sometimes you can get the neuro symptoms with out the pain.
Hope it clears up soon.
Be well,
lionsound
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| « Last Edit: Sep 20th, 2005, 3:10pm by lionsound » |
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Kris_in_SJ
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Re: Happening right now
« Reply #9 on: Sep 20th, 2005, 7:49pm » |
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Sandy, I agree with the above - see your doc if this is something new.
However, I can tell you that my left eye droops to varying degrees ever since my first cycle. I especially notice it when I'm stressed or tired - and it always shows up in photos. Silent is good, just not good for your appearance, I guess.
Check it out anyway.
Hugs,
Kris
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Ree
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Re: Happening right now
« Reply #10 on: Sep 20th, 2005, 10:52pm » |
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Get a toothpick? My sister in Law...(Dave's sis) is complaining of the same symptoms.... funny thing is the doc told her its related to cluster headache....weird.... ree
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