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Topic: did the surgery bring on another episode? (Read 339 times) |
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catherinelane
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did the surgery bring on another episode?
« on: Aug 22nd, 2005, 4:14pm » |
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i have been cluster free for over 2 years my appendix were about to bust a few weeks ago so i had surgery to remove them next thing i know bang im in full blown ch cycle and am seriousley contemplating jumping off the nearest cliff so just wondered did the anasthetic bring on a cycle??
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LeLimey
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Re: did the surgery bring on another episode?
« Reply #1 on: Aug 22nd, 2005, 4:28pm » |
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Hi Catherine,
The simple answer is I don't know, it could have done.. how long do you usually have between your cycles? You have been pretty lucky to get two years PF in all honesty so it could just have been unlucky coincidence that the two have hit together OR.. it could be triggered by the anaesthetic.
Are you currently under a neuro in the UK? Do you have any meds or O2? You'll find alot has changed since your last cycle for the better I hope!
I don't know if you found OUCH UK last time round but they are great, the website is fantastic, a lot of useful info on drugsd available in the UK and O2 etc (which I have to say is FANTASTIC!!) If you haven't tried it please do.. I cna't believe the diffeence its made to my life!
The website for OUCH UK is
http://www.clusterheadaches.org.uk/home/index.cfm?address=../home/txt_we lcome.cfm&added=Dec2001&code=AD
They have a doctors site you might want to point your GP at here
http://gpinfo.ouchuk.org/
and they also have a helpline. I don't know if you have ever spoken to another ch'er but its an expereience like no other. To speak to someone who truly understands what you are going through is very liberating. Its an answerphone so leave your name and number and someone will call you back. 0161 2721702
I hope this all helps, let us know how you are getting on here regardless okay?
I hope you get some relief soon
Helen
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catherinelane
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wRe: did the surgery bring on another episode?
« Reply #2 on: Aug 22nd, 2005, 4:42pm » |
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ty helen this helps a lot i had my first cycle 3 years ago for 2 weeks then a months rest and another cycle for a week now ive not had a cycle for 2 years till now going into my 2 nd week (lost all track of time) the docs here know nothing about the condition and in my recent visit to hospital just sent me home with yet more painkillers i now have an appointment with a specialist after a 3 year wait on the 6th of septmber so i have my fingers firmly crossed
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marlinsfan
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Re: did the surgery bring on another episode?
« Reply #3 on: Aug 23rd, 2005, 7:29am » |
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Hi Catherine,
I had back surgery in April, and 3 days after it my cycle started. Like you, I had been pain free for 3 years.... The thing you must remember is that if you are episodic, which sounds like you are, the cycle WILL end.
Hang in there.
Jose
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catherinelane
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Re: did the surgery bring on another episode?
« Reply #4 on: Aug 24th, 2005, 1:48pm » |
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that is so freaky 3 days after my surgery my ch restarted im sooo glad to have found you all though.
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marlinsfan
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Re: did the surgery bring on another episode?
« Reply #5 on: Aug 24th, 2005, 3:51pm » |
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I think mine was either the anesthesia of the surgery, or the meds that I took after. I was on Vicadin and the CH started the day after I stopped the meds.
I'm glad I found this place too!
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don
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Re: did the surgery bring on another episode?
« Reply #6 on: Aug 25th, 2005, 7:37am » |
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I had an emergency appendectomy last year. At the time I had been cycle free for 3 years. I was lucky and a cycle wasn't triggered.
What worried me was the use of the narcotics. A sure trigger.
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hm54
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Re: did the surgery bring on another episode?
« Reply #7 on: Sep 4th, 2005, 2:45pm » |
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Had a RFTN for CH. Had all symptoms of CH but felt no pain for 5 years. Nerves grew back and pain began again. After 2 years of pain, I was again faced with no choice but surgery. The 2nd RFTN was unsuccessful (couldn't get electrode to brain). Another surgeon tried a few weeks later and was also technically unsuccessfull, however, after the two attempts, I was PF for 2years. It's thought that the trauma of the surgery stopped the pain.
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Sean_C
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Re: did the surgery bring on another episode?
« Reply #8 on: Sep 4th, 2005, 3:56pm » |
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on Aug 25th, 2005, 7:37am, don wrote:| I had an emergency body cavity search last year. At the time I had been cycle free for 3 years. I was lucky I've had them before and a cycle wasn't triggered. |
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Hope you get out soon my friend, bigtime vibes comin your way 
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sandie99
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Re: did the surgery bring on another episode?
« Reply #9 on: Sep 6th, 2005, 1:14am » |
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on Aug 24th, 2005, 1:48pm, catherinelane wrote:| that is so freaky 3 days after my surgery my ch restarted im sooo glad to have found you all though. |
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I'm so glad that you found us, we're here to help. I'm so sorry that your ch is back. 
Wishing you PF time,
Sanna
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"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Kevin_T
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Re: did the surgery bring on another episode?
« Reply #10 on: Sep 19th, 2005, 1:37pm » |
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I had an episode of bad headaches in April 2002 which were never properly diagnosed but disappeared after a month or so.
I have just had surgery (sigmoid colectomy for the boffins) and the day after leaving hospital I had a beer which triggered a massive headache. I've been getting these for the best part of a month now and they show all the symptoms of CH (although some mis-givings as I've explained in the thread I started).
Maybe there is something in this anesthesia thing?
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