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Topic: Suicide and CH/Migraine Patients (Read 3233 times) |
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franticCH
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Suicide and CH/Migraine Patients
« on: Aug 18th, 2005, 10:50pm » |
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I once read an article that stated that the statistics of suicide for Clusterheads and Migraineurs was around 18%, but I can't remember where I read it. Any ideas? Has anyone read about the statistics for our disease?
Thanks
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My Blog: My Migraine Battle: On the Forefront go here: http://migraineforefront.blogspot.com/
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #1 on: Aug 18th, 2005, 11:03pm » |
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No clue but I'm sure the stats will be skewed towards survival here 
Do you, your spouse or someone dear to you have CH?
I noticed the plugs toward your migraineur sites.
We have several here with multiple HA type but have CH as there primary condition.
Either way, here you will find a millenia worth of knowledge regarding Clusters.
Best,
Eric
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LeLimey
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Re: Suicide and CH/Migraine Patients
« Reply #2 on: Aug 19th, 2005, 3:56am » |
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I've never heard anything of the like.
Considering that current statistics have it as something like 1 per 1000 of population having CH I think we would notice if 18% of us were topping ourselves too! 
The emphasis here is on living with it.. not dying because of it.
And we're doing a bloody good job with that. If you need a hand, let us know, we're pretty good at helping each other out of the mire when needs be!
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unsolved1
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Re: Suicide and CH/Migraine Patients
« Reply #3 on: Aug 19th, 2005, 7:20am » |
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I think that those 'stats' are totally ridiculous 
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yikes-another-one
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Re: Suicide and CH/Migraine Patients
« Reply #4 on: Aug 19th, 2005, 8:10pm » |
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When in a ton of pain,
people have many strange thoughts.
Most of us know the pain will disappear,
hopefully in an hour or less....
so we hang on....to our lives and loved ones,
because we know things will get better.
If you are lonely or scared....
and getting lower,
reach out to a doctor or loved one.
You do not have to suffer...for long.
There will be a sunrise tomorrow,
and a new chance to have a day without pain.
So hang in there
and please
don't give up.
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BobG
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Re: Suicide and CH/Migraine Patients
« Reply #5 on: Aug 20th, 2005, 3:26am » |
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I have been reading this message board for years and I have never heard of anyone offing themselve because of clusterheadaches.
But, I'm sure if may have crossed a few minds.
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Stay stressed. Never relax. Never sleep. Ever.
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don
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Re: Suicide and CH/Migraine Patients
« Reply #6 on: Aug 20th, 2005, 8:16am » |
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Quote:| I once read an article that stated that the statistics of suicide for Clusterheads and Migraineurs was around 18% |
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Probably in an article buy Ali Sultan
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pubgirl
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Re: Suicide and CH/Migraine Patients
« Reply #7 on: Aug 20th, 2005, 5:19pm » |
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I wouldn't even begin to guess how many Ch patients Prof G and his team have treated (many, many, many thousands at least) and he only says he knows of one suicide. That is a tiny precentage.
W
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kcopelin
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Re: Suicide and CH/Migraine Patients
« Reply #8 on: Aug 20th, 2005, 6:04pm » |
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Which is all very interesting since CH have been called "suicide headaches". Fact is we ain't just survivors, we're victors.
kathy
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BobG
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Re: Suicide and CH/Migraine Patients
« Reply #9 on: Aug 21st, 2005, 2:12am » |
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on Aug 20th, 2005, 6:04pm, kcopelin wrote:Which is all very interesting since CH have been called "suicide headaches". Fact is we ain't just survivors, we're victors.
kathy |
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Yep. They are also known as executive headaches. Something to do with persons that experience a lot of pressure and stress on the job then have cluster attacks while relaxing in the evenings and during sleep.
Don't know how many excutives we have here, I'd bet very few, most of us are just work-a-day slobs trying to make it payday to payday. That is stressful!
Stay stressed, it's good for you. 
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CHTom
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Re: Suicide and CH/Migraine Patients
« Reply #10 on: Aug 21st, 2005, 3:01am » |
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I've noticed that when under a lot of stress and have many things to accomplish in a short time, I don't usually feel my CH pain, even if it is at a kip 10; I think that the reason is that our brain is distracted from the pain by the stress and taskings, but, like you said, once the stress is over, the CH pain returns and, of course, like every other CHer, I get pain of varying degrees when life is beautiful and there is no stress. I actually have grown to fear the few PF times that I have (I am chronic) because I know what will follow. Its a wonderful life!
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Jonny
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Re: Suicide and CH/Migraine Patients
« Reply #11 on: Aug 21st, 2005, 4:14am » |
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on Aug 21st, 2005, 3:01am, CHTom wrote:| I don't usually feel my CH pain, even if it is at a kip 10; |
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How do you know you have a Kip 10 if you dont feel it?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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Ree
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Re: Suicide and CH/Migraine Patients
« Reply #12 on: Aug 21st, 2005, 9:57am » |
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that was an interesting way to put it..... you don't feel your pain???? No disrespect. But if you don't feel your pain what brought you here in the first place.... Could you maybe explain your comment CH.Tom....? Because if you aren't feeling your CH pain you aren't feeling CH. Be well Ree
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unsolved1
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Re: Suicide and CH/Migraine Patients
« Reply #13 on: Aug 21st, 2005, 12:14pm » |
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on Aug 21st, 2005, 3:01am, CHTom wrote:| I don't usually feel my CH pain, even if it is at a kip 10 |
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If you don't feel it, it's NEVER a Kip 10 
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Salvelinus
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Re: Suicide and CH/Migraine Patients
« Reply #14 on: Aug 21st, 2005, 4:38pm » |
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When I have a 10, I can't even walk. There is no distracting from a 10, at least for me.
About the suicides, I haven't been here long enough or have studied CH enough yet to have any idea of the stats. I do know it's crossed my mind often when the pain goes to 9 or above, but fortunately I'm so helpless by that point I could never accomplish it anyway.
When it goes away . . . nothing feels better, and life is good again.
Namaste,
--Scott
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Namaste,
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Jasmyn
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Re: Suicide and CH/Migraine Patients
« Reply #15 on: Aug 21st, 2005, 6:30pm » |
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When I first came here THAT was what was on my mind. But face it, when you have so much support and you fail in guts and then when the pain is gone you always wonder why you wanted to do it, you realize your problem is not so much Ch but the split personality disorder caused by CH! 
Besides when the rational mind(what rational mind I have left! ) after the pain, sets in, I remember I have children and it just wouldn't be right.
I think we all feel like that some time or the other (like a lot of people said) but we are actually really trying our best to live through this. Everytime we come out on the other end of a hit we are extremely glad to be alive because it is finally over... until the next time!
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bnfreeman
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Re: Suicide and CH/Migraine Patients
« Reply #16 on: Aug 21st, 2005, 6:48pm » |
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I don't know of any stats, but I have some books on headaches. And when talking of clusters it describes them as " the worst possible headache pain, and even leading to suicide" . I am sure many have thought it, but we never do it.
BF
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #17 on: Aug 21st, 2005, 8:51pm » |
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on Aug 21st, 2005, 3:01am, CHTom wrote:| I've noticed that when under a lot of stress and have many things to accomplish in a short time, I don't usually feel my CH pain, even if it is at a kip 10; I think that the reason is that our brain is distracted from the pain by the stress and taskings, but, like you said, once the stress is over, the CH pain returns and, of course, like every other CHer, I get pain of varying degrees when life is beautiful and there is no stress. I actually have grown to fear the few PF times that I have (I am chronic) because I know what will follow. Its a wonderful life! |
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Who let this guy through the back door. If you can't feel cluster pain you don't suffer from it Tom. Sorry to disapoint you dude.
Sean...................................
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AussieBrian
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Re: Suicide and CH/Migraine Patients
« Reply #18 on: Aug 21st, 2005, 8:57pm » |
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I'd been battling the monster for 10 years, not knowing what it was, when I eventually saw a neuro. He said, "Oh, it's just cluster headaches. You'll have them until your mid-40s." I asked if that's when I'd get better and he said, "Nah, you'll have shot yourself by then."
That was exactly the moment I swore to prove him wrong.
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #19 on: Aug 21st, 2005, 9:00pm » |
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on Aug 21st, 2005, 8:57pm, AussieBrian wrote:I'd been battling the monster for 10 years, not knowing what it was, when I eventually saw a neuro. He said, "Oh, it's just cluster headaches. You'll have them until your mid-40s." I asked if that's when I'd get better and he said, "Nah, you'll have shot yourself by then."
That was exactly the moment I swore to prove him wrong. |
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ROTFLMMFAO at least he has a sense of humor I'll take it
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Salvelinus
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Re: Suicide and CH/Migraine Patients
« Reply #20 on: Aug 21st, 2005, 9:13pm » |
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I think I might have said "Actually, that's when I'll die by lethal injection for shooting you . . . "
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Namaste,
--Scott ><>
"When no one else knows how I feel,
You run to me, with outstretched hands,
and you hold me in your arms.
Again."
--Building 429
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CHTom
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Re: Suicide and CH/Migraine Patients
« Reply #21 on: Aug 21st, 2005, 9:48pm » |
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Oh I have chronic cluster headaches, Sean-been diagnosed by several neurologists, including Dr. Diamond during an outpatient visit to the Diamond Clinic, and I DO feel the pain and get hit 4-6 times a day, usually starting when I wake up or about an hour later; but there are times when the mind can be distracted from the pain for short periods of time-one of my neurologists explained this to me when I questioned him about it...I'm sure that others have had this experience. It is not something special that I do, it just happens once in awhile and the pain always returns after the brief hiatus. Each year I lose several thousand dollars in salary because the pain is so bad that I can't go into work or have to leave early because I can't function due to the pain. For the past few months I've been getting hit with a very severe pain at about 1:30 PM-icepick in the eye, tearing, eyelid droops more than usual, etc. It lasts from 2-4 hours, then decreases and my eye feels as if someone socked me there.
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nani
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Re: Suicide and CH/Migraine Patients
« Reply #22 on: Aug 22nd, 2005, 12:38am » |
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I still have a hard time believing that anyone could be distracted enough from a k-10 to "not" feel it, even for a few seconds. JMHO
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Chillrmn1
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Re: Suicide and CH/Migraine Patients
« Reply #23 on: Aug 22nd, 2005, 5:36am » |
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Gotta agree with Nani...........A Kip 10 over powers all my "Mind Over Pain" thing.
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CHTom
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Re: Suicide and CH/Migraine Patients
« Reply #24 on: Aug 22nd, 2005, 5:58am » |
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If we are going to split hairs, yes, sometimes I do feel it for a few seconds when very distracted, sometimes even for a few minutes and sometimes I feel it very much no matter how distracted I am by other things, believe it or not.
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