Author |
Topic: CH and having Surgery (Read 377 times) |
|
islandsonja
New Board Newbie
Wishin I was sleepin!
Gender: 
Posts: 7
|
 |
CH and having Surgery
« on: Aug 18th, 2005, 9:15am » |
 Quote  Modify
|
Has anyone had an attack while recovering from surgery?
Im having surgery this next week and I am a little nervous about the days following when I am laying in a hospital bed with limitedy mobility due to stitches and whatever else they decide to attach to my body. Being in a place where no one understands why you cant handle the light, struggling to raise up because you cant bare laying day, requesting oxygen immediately but not getting it until the nurse gets good and ready and having a bunch of "professionals" see me going through an attack and having no idea what is going on. These are some of the things that I am dreading.
Hopefully I am getting all worked up for nothing. Talk to me. Please!
|
|
 IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: CH and having Surgery
« Reply #1 on: Aug 18th, 2005, 9:23am » |
Quote Modify
|
Hi Sonja!
I think your concerns are valid and you should dicuss them with both your surgeon and anesthesiologist. Probably wouldn't hurt for the doc to relay all that to the charge nurses, too. I can't imagine it would be hard to be sure there's an O2 tank ready to go at your bedside, BEFORE you may need it. As far as mobility... I don't know. I once had a k9 while strapped in an ambulance gurney. All I could do was rock my head and squirm...but it didn't make it any worse. Just more frustrating. Good luck, hon...let us know how things go. hugs and pf wishes, nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
marlinsfan
New Board Hall of Famer
I love this place!
Gender: 
Posts: 876
|
|
Re: CH and having Surgery
« Reply #2 on: Aug 18th, 2005, 10:55am » |
Quote Modify
|
Hi Sonja, my last cycle started 3 days after back surgery in April. I was laid up and only got out of bed to go to the bathroom, and it was a real struggle. When the cycle started, I was jumping out of bed and doing the dance, and everyone thougth I was nuts.... While doing the dance, I was very aware of my back and believe it or not, I was able to dance without hurting myself.
As masochistic as this may sound, the head pain was a welcome relief to the back pain, it seemed to take over my pain receptors. My back did not hurt during CH attacks, probably because the CH hits were so hard.
Nani makes a good point. Tell your surgeon and nursing staff that you have CH. They will do a pre-surgery questionnaire, and that is the perfect time to do it. They will ask about what meds you're on, etc. Make sure that you tell them everything. The Doc doing the questionnaire is a different one than who will operate on you, and it's his job to ensure you have everything you need post-op.
Good luck, and pf wishes.
Jose
|
|
IP Logged |
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
 
Gender:
Posts: 3090
|
|
Re: CH and having Surgery
« Reply #3 on: Aug 18th, 2005, 3:23pm » |
Quote Modify
|
I have had surgery several times over the last 5 years. It never impacted my ha or brought them on. However, I always found myself with morphine or oxycontin or some strong narcotic for pain. So that may have kept the ch at bay. However they do shortly return a couple of days after surgery.
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
unsolved1
Guest
|
|
Re: CH and having Surgery
« Reply #4 on: Aug 18th, 2005, 5:56pm » |
Quote Modify
 Remove
|
I had a CH Attack in the recovery room. Woke up to it. I think it was from the anesthesia. Anyways, they got me Imitrex quick so I didn't suffer long. I went right back to sleep.
Goodluck
UNsolved
|
|
IP Logged |
|
|
|
Jasmyn
CH.com Alumnus
New Board Hall of Famer
Each day will be a new trick in life's journey
Gender:
Posts: 2762
|
|
Re: CH and having Surgery
« Reply #5 on: Aug 21st, 2005, 5:14pm » |
Quote Modify
|
If I could ever be a drug addict (Ha-Ha-ha...!) it will be on anaesthetic. That is the best sleep I ever get and I feel really GOOD afterwards.
So different strokes for different folkes!
The best advise is like the previous, when in doubt tell your surgeon everything and have your meds or at least O2 on stand-by!
Good luck! 
|
|
IP Logged |
Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss