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Topic: Look what I just found... (Read 463 times) |
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nani
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Look what I just found...
« on: Aug 6th, 2005, 10:19pm » |
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I know OUCH is discussing having a card for ER treatment, but while that's in the works...look what I found on Teri Robert's site! I think we would all benefit from something like this. Thanks Teri!
http://headaches.about.com/library/forms/f-emerg-doc-ch.htm
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| « Last Edit: Aug 6th, 2005, 10:20pm by nani » |
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AussieBrian
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Look what I just found...
« Reply #1 on: Aug 6th, 2005, 10:44pm » |
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Good one, Nani. While we're on the go I found this in Wikipedia, a free on-line encyclopaedia -
http://en.wikipedia.org/wiki/Cluster_headaches
Doesn't name the author but it's quite obviously written from the inside.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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clarence
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Re: Look what I just found...
« Reply #2 on: Aug 6th, 2005, 11:12pm » |
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Both of those are great. Thanks for the research.
Casey
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daniel_tn
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Re: Look what I just found...
« Reply #3 on: Aug 7th, 2005, 12:01am » |
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hi,
thanks for posting that form!
i'm going to bring it to my doctor on monday and give it to him.
i'm almost 100% sure i've got this stuff... but i'll give the doc his chance to do his magic.
best,
dan
ps. oh yeah, i'm waiting for the next one to hit early this morning, and if it does, off i go to the ER.
and, yes, this sucks.  
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kimmeesue
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Re: Look what I just found...
« Reply #4 on: Aug 7th, 2005, 1:16am » |
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Hey Daniel, I have been dancing with the beast this evening as well and doing my level best to avoid the ER. Decided baby dill pickles had to be the cure. HAsn't helped my HA but my dog is happy (she loves them).
Usually if I can make it this late I'm good to go but for some reason tonight he won't go back to his cave...he just lurks back there behind my eye waiting to pounce but good.
Here's hoping we both make it through the night without drastic measures.
Kim
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If I wasn't doing this I'd probably be doing something else.
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daniel_tn
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Re: Look what I just found...
« Reply #5 on: Aug 7th, 2005, 1:22am » |
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 hi kim,
wishing you a pleasant and pain free evening.
so far, shadows all day long.
for the last month, i would get hit within 10 minutes of a shadow so this is new.
i have no idea yet how my cycles run, because this is so new, just about 5 weeks now.
i'm learning every minute.
and thank goodness for you folks and this site!
best to you,.
daniel
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LeLimey
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Re: Look what I just found...
« Reply #6 on: Aug 7th, 2005, 4:53am » |
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Well done Nani, that is terrific.
We need to keep bumping this one I think!
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Jasmyn
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Re: Look what I just found...
« Reply #7 on: Aug 7th, 2005, 6:03am » |
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Nani this is great! All of these type of things contribute to us having ch with dignity!
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Jazz 
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paul_pero
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Re: Look what I just found...
« Reply #8 on: Aug 7th, 2005, 6:04am » |
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both great. I especially like the encyclopedia. If only all the doctors would read it BEFORE we went and saw them.
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burnt-toast
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Re: Look what I just found...
« Reply #9 on: Aug 7th, 2005, 6:46am » |
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Despite enduring hours of unimaginable agony on many nights while I consider begging someone to take me to a hospital. Despite this nightmare becoming so intense that I must remind myself to breathe. I have never gone to the emergency room for treatment.
I'm not being strong - on these very nights I am left in uncontrollable tears while I beg God and any other force in the universe to make it stop.
I don't go because I know that what I am dealing with will not be recognized in the emergency room and treatment will still be hours away.
I don't know if I can endure a car ride just to be treated with skepticism by a hospital staff that has no clue.
I don't know if I can endure endlessly parading myself back and forth in front of a room full of people who could only believe my antics are those of a drug addict who needs a fix.
I don't know if I can endure explaining that after my hours of displays of unimaginable agony that everything is just better now and that I miraculously no longer need help.
Thanks to both of you for providing something that may make my decison to go to the ER easier the next time.
I only hope that I can get past the rest of my ER fears.
Tom
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KMT
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Re: Look what I just found...
« Reply #10 on: Aug 7th, 2005, 7:15am » |
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Thanks Nani & Teri
That was great. Saved it to the puter so I can print it off and take it in next time I see my Dr.
Kim
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aka...................................................... KimY
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unsolved1
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Re: Look what I just found...
« Reply #11 on: Aug 7th, 2005, 10:11am » |
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I've seen this before. What sucks is that they say "migraine" on the form. Too bad. They almost got it right.
UNsolved <-- Don't have migraines !!
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sassy_lady
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Re: Look what I just found...
« Reply #12 on: Aug 7th, 2005, 6:46pm » |
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That is great, will have Charlie print it out & take it to his next dr,s apointment, cause we did get Bullshit from the hospital before he found a dr. who knew what he had. that is great,
Thanks Nani
PFDANS TO ALL!!
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E-Double
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Re: Look what I just found...
« Reply #13 on: Aug 7th, 2005, 6:59pm » |
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It's a great letter and if you prefer, save it to your PC and edit the "migraine" out
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I can't believe that I have to bang my
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But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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brainfreeze
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Re: Look what I just found...
« Reply #14 on: Aug 7th, 2005, 8:09pm » |
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on Aug 7th, 2005, 6:46am, burnt-toast wrote:Despite enduring hours of unimaginable agony on many
I don't go because I know that what I am dealing with will not be recognized in the emergency room and treatment will still be hours away.
I don't know if I can endure a car ride just to be treated with skepticism by a hospital staff that has no clue.
I don't know if I can endure endlessly parading myself back and forth in front of a room full of people who could only believe my antics are those of a drug addict who needs a fix.
I don't know if I can endure explaining that after my hours of displays of unimaginable agony that everything is just better now and that I miraculously no longer need help. |
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I haven't been to the emergency room for these same reasons. I'm not sure if I'll ever go. I would like for someone in the medical field truly understand and identify an attack when looked upon. I believe even with paperwork in hand, I won't get the treatment until after my fit! (Sorry to be negative) On the sunnyside, I enjoyed the reading.
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Susan
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daniel_tn
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Re: Look what I just found...
« Reply #15 on: Aug 7th, 2005, 8:24pm » |
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i just got back from the ER. the doc knew about CH, and I explained everything I had learned so far. he said, well, it sure sounds like CH, but we need to do a CAT scan. so, i got the scan and it showed "clear".
so, diagnosis: CH.
damn
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Charlie
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Re: Look what I just found...
« Reply #16 on: Aug 7th, 2005, 10:48pm » |
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That's great stuff Nani!
I did a printout too. My neurologist says he can use more information. He says a brochure is what is needed. I hope we can get something to stick in the rack amidst all that drug company literature.
Do you have a copy of the wallet card, Helen? He likes that idea too. Just scan it or something. I should have kept one.
Nice going kids! 
Charlie
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don
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Re: Look what I just found...
« Reply #17 on: Aug 8th, 2005, 10:50pm » |
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That has been around for quite some time. It belongs to Terri Roberts and may be copy righted.
OUCH should be formatting one for CH ers.
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nani
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Re: Look what I just found...
« Reply #18 on: Aug 8th, 2005, 11:07pm » |
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Teri has it available on her site for CH sufferers. We can use it as individuals. I figured we should have it available while OUCH works on one. After reading a post of Chuck's on another thread... it would be great if somewhere on a card or letter, we can make it clear that we don't want to be touched or bothered during an attack. Just make O2 available and leave me alone until it's over.
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don
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Re: Look what I just found...
« Reply #19 on: Aug 8th, 2005, 11:17pm » |
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I've known Teri since way back when. Very territorial about her stuff. Not sure why.
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