Author |
Topic: 7 hours at pain8 yesterday (Read 307 times) |
|
scarmig
New Board Newbie
Gender: 
Posts: 18
|
 |
7 hours at pain8 yesterday
« on: Jul 29th, 2005, 8:34am » |
 Quote  Modify
|
trip to the ER and mainlining demerol kept me sane. and now this morning we're counting up again. 1 at 6am, 3 at 7, 5 at 8:30. damn pharmacy lost the script for imitrex. Damned to hell. popping some leftover hydrocoden from a wrist surgery I recently had. Maybe I'll survive through work with that. verpamil, cafergot, used up all my zomig already, and this is just week 1. every cycle gets worse faster and lasts longer. I hate that my 2 year old daughter deals with the weight of my pain. Her sick daddy with the broken head. she stroked my head while I cried despair last night. this sucks.
|
|
 IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender: 
Posts: 7953
|
|
Re: 7 hours at pain8 yesterday
« Reply #1 on: Jul 29th, 2005, 8:37am » |
Quote Modify
|
 
Hang in there. Give your little one an extra hug from me. Something I read here: Have a box of "special" toys or art supplies that can occupy her when you're getting hit. That box only comes out at those times.
pain free wishes, nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
The_Shadow
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 6
|
|
Re: 7 hours at pain8 yesterday
« Reply #2 on: Jul 29th, 2005, 9:53am » |
Quote Modify
|
Man I can understand how you feel with the Daughter. I have 2. My oldest knows that Daddy head is not right and when he is have a bad time she helps with her Sister. Before her sister was born she would go and play by her self and get me something to drink if I need it.
|
|
IP Logged |
|
|
|
scarmig
New Board Newbie
Gender:
Posts: 18
|
|
Re: 7 hours at pain8 yesterday
« Reply #3 on: Jul 29th, 2005, 10:00am » |
Quote Modify
|
yeah, my second daughter is 3 weeks old. My wife is being super-woman trying to hold the house together for all of us. i should send her flowers. A clusterhead wasn't part of the deal she signed up for.
|
|
IP Logged |
|
|
|
lmarkins
New Board Newbie
I love YaBB 1G - SP1!
Posts: 11
|
|
Re: 7 hours at pain8 yesterday
« Reply #4 on: Jul 29th, 2005, 10:28am » |
Quote Modify
|
I know the feeling. My daughter is now 14 and has learned compassion from this ordeal. Wifes and daughters are angels. Stay strong my friend. None of us wants our families to see us this way. Thank them every day for thier support.
|
|
IP Logged |
|
|
|
scarmig
New Board Newbie
Gender:
Posts: 18
|
|
Re: 7 hours at pain8 yesterday
« Reply #5 on: Jul 29th, 2005, 11:04am » |
Quote Modify
|
4 hours and still going strong. I'm keeping ice cold water on my teeth so they don't hurt so bad for a few seconds. Sent my wife some flowers. At least I feel better about that. 
|
|
IP Logged |
|
|
|
scarmig
New Board Newbie
Gender:
Posts: 18
|
|
Re: 7 hours at pain8 yesterday
« Reply #6 on: Jul 29th, 2005, 11:08am » |
Quote Modify
|
woohoo... Apria says they might be able to get my oxygen setup as early as this evening. Assuming the red tape is well-oiled enough.
|
|
IP Logged |
|
|
|
bnfreeman
New Board Veteran
Gender:
Posts: 165
|
|
Re: 7 hours at pain8 yesterday
« Reply #7 on: Jul 29th, 2005, 1:45pm » |
Quote Modify
|
Everytime my 2 year old gets hurt he wants ice and my oxygen mask! It's cute, but I hate it that he sees me like this. PF days to all.
BF
|
|
IP Logged |
|
|
|
scarmig
New Board Newbie
Gender:
Posts: 18
|
|
Re: 7 hours at pain8 yesterday
« Reply #8 on: Jul 29th, 2005, 1:56pm » |
Quote Modify
|
Well, it's been 7 hours, and it's finally backed off to a more work-friendly 3. yeesh. I could use a nap.
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: 7 hours at pain8 yesterday
« Reply #9 on: Jul 29th, 2005, 3:05pm » |
Quote Modify
|
Scarmig, do your HAs always last this long?
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
Sandy_C
CH.com Alumnus
New Board Hall of Famer
Burn that bra!
Gender:
Posts: 2585
|
|
Re: 7 hours at pain8 yesterday
« Reply #10 on: Jul 29th, 2005, 3:06pm » |
Quote Modify
|
God Scarmig, I am so sorry you are having such a rough time of it.
Get that O2 going fast and hang in there. 
|
|
IP Logged |
Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
|
|
|
scarmig
New Board Newbie
Gender:
Posts: 18
|
|
Re: 7 hours at pain8 yesterday
« Reply #11 on: Jul 31st, 2005, 8:55pm » |
Quote Modify
|
on Jul 29th, 2005, 3:05pm, nani wrote:| Scarmig, do your HAs always last this long? |
|
No. When I was first diagnosed they were about 90 to 120 minutes. The next cluster upped it to between 3 and 4 hours. This one seems to have doubled yet again.
My clusters have also been increasing in length, 4 weeks, to 8 weeks, to 12 weeks. If the trend continues I expect to end this round mid November. Seems like eons away.
Read up on the melatonin stuff, and grabbed some yesterday. Slept pain-free last night, so maybe some relief to be found there.
Thanks everyone. Helps just to have someplace to write it down.
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: 7 hours at pain8 yesterday
« Reply #12 on: Jul 31st, 2005, 8:59pm » |
Quote Modify
|
You should probably mention this to your dr. Anytime things change, you should tell him. I hope you have many more pfdans. ~nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
Jasmyn
CH.com Alumnus
New Board Hall of Famer
Each day will be a new trick in life's journey
 
Gender:
Posts: 2762
|
|
Re: 7 hours at pain8 yesterday
« Reply #13 on: Aug 1st, 2005, 1:48am » |
Quote Modify
|
on Jul 31st, 2005, 8:55pm, scarmig wrote:
No. When I was first diagnosed they were about 90 to 120 minutes. The next cluster upped it to between 3 and 4 hours. This one seems to have doubled yet again.
My clusters have also been increasing in length, 4 weeks, to 8 weeks, to 12 weeks. If the trend continues I expect to end this round mid November. Seems like eons away.
Read up on the melatonin stuff, and grabbed some yesterday. Slept pain-free last night, so maybe some relief to be found there.
Thanks everyone. Helps just to have someplace to write it down. |
|
Scarmig, sorry about the bad time you're going through.
About 3 years ago my attacks also got out of hand and lasted between 3 to 4 hours with the frequency per day increasing. The only thing eventually that broke the duration and frequency of the attacks was donating blood.
Luckily I live in a country with a desperate shortage of blood, so they did not care about meds, blood pressure, weight or bloodsugar levels.
What nani said is true, go see your doc. Wishing you Pf days and nights.
|
|
IP Logged |
Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
|
|
|
scarmig
New Board Newbie
Gender:
Posts: 18
|
|
Re: 7 hours at pain8 yesterday
« Reply #14 on: Aug 1st, 2005, 10:24am » |
Quote Modify
|
Donating blood?
Huh. I've never donated blood. I have that wierd thing where if I get stuck with needles I pass out. Blood techs hate that. I think it had something to do with weekly injections for allergies from age 4 through 16.
Although I just had surgery recently so I'm sure I'm out.
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss