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Bethany1
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Just a question
« on: Jun 14th, 2005, 7:37am » |
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Whats the longest hit you have ever had? What if you had no meds?
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BobG
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Re: Just a question
« Reply #1 on: Jun 14th, 2005, 7:46am » |
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My longest was about 60 - 70 minutes. That was probably 25 years ago. I don't remember the exact kip number but it was probably 7 or 8. All mine were 7 - 8 back then.
I had not been diagnosed.
I had no meds.
I had no computer to Google.
There was no CH.com.
I did not know anyone that had the same pain. Or had even heard of it.
Life sucked back in the good-ol-days. 
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marlinsfan
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Re: Just a question
« Reply #2 on: Jun 14th, 2005, 8:14am » |
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I didn't know I was CH until this cycle. THe longest this cycle was 60 minutes. This was pre-oxygen. I took imitrex and nothing happened. Took another trex after 40 minutes and 20 minutes later in ended.
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E-Double
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Re: Just a question
« Reply #3 on: Jun 14th, 2005, 8:23am » |
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Hey Bethany,
Last June I went staright for nearly 3.5 hrs.,,That was one hit unmedicated.
In April I had a series of back to backs long, short but all high levels and mad intense that sent my ass to the hospital......Used my meds/O2 and nothing worked.
Earlier in the week I had a doozy that went over 2hrs. without.......
However, If I were you I would not worry about it 
You'll be fine!!!
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JJA
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Re: Just a question
« Reply #4 on: Jun 14th, 2005, 10:33am » |
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on Jun 14th, 2005, 8:23am, E-Double wrote:| I went staright for nearly 3.5 hrs |
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Me too. I've done the 3-4hr clusters many times...just lucky I guess. The deal with these for me is that I can't say it was exactly 3 hrs or 4 hrs. It just slowly fades into an intense shadow that lasts for 12 hrs or so, but the real agony lasts about 4 hrs. It sucks. I used to have half hour hits like clock work, then one cycle it just changed.
Jesse
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nani
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Re: Just a question
« Reply #5 on: Jun 14th, 2005, 10:35am » |
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2 hours
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pattik
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Re: Just a question
« Reply #6 on: Jun 14th, 2005, 10:39am » |
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About 3-4 hours--last summer while on vacation with no meds or O2 available. I don't ususally have summer hits.
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Karla
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Re: Just a question
« Reply #7 on: Jun 14th, 2005, 11:07am » |
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4 hours. No meds I went to the ER and got a shot of dilaudid which knocked me out so that took care of the problem. Usually my ch are only 1 1/2 hours.
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Karla
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burnt-toast
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Re: Just a question
« Reply #8 on: Jun 14th, 2005, 11:23am » |
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Bethany1-
My longest attack was nearly 4 hours. But frequent attacks between 2 - 3 hours are common for me - even with meds. An attack last night lasted nearly 2.5hrs.
If you don't mind my asking - what are your specific concerns regarding this issue?
Tom
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Bethany1
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Re: Just a question
« Reply #9 on: Jun 14th, 2005, 11:33am » |
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I was just curious. I'm pregnant and not taking any meds and have been hit pretty hard the last few nights, and they have lasted for 3 hours. I'm going to see if I can find some old threads regarding pregnancy and ch. Thanks for all of your input, I just wanted to make sure I wasen't crazy. It's been a long time since I havent been able to use any meds, I had forgotten how bad it can be. Well, not forgotten, just got used to having the meds around, ya know? Wierd. Wishing you all pfdans- thx-
B
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Candycane
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Bethany,
God, I don't have time today but saw this and just brought back (sorry to say) bad memories......I went thru being pregnant and I didn't know what was wrong with me then. All I did know is I was soooo scared of the headaches more than the birth of my child. I BEGGED the doctor for something........ I pray to god you are not hit too much during this wonderful time! Does 02 work for you and can you use it then.
Be Well, hon 
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nani
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Re: Just a question
« Reply #11 on: Jun 14th, 2005, 12:03pm » |
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Beth, damn, I'm sorry you're getting hit. 
I don't want this to be construed as advice...I AM NOT A DR. I am very curious to get opinions, though. Could you print out Flo's page on kudzu and talk to your OB and your Neuro about it? Early on in the first thread, there was talk of phyto-estrogens in kudzu possibly having an adverse effect if pregnant or nursing. There just isn't enough evidence (I think) to either support or invalidate that. And now for the BIG favor....could you talk to them about it even if you wouldn't consider using it?
I hope you get a break soon, sweetie. hugs, nani
Flo's page:
http://med-owl.com/clusterheadaches/tiki-index.php?page=Kudzu
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lionsound
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Re: Just a question
« Reply #12 on: Jun 14th, 2005, 1:39pm » |
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Bethany please check yer PM's
- Rori
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burnt-toast
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Re: Just a question
« Reply #13 on: Jun 14th, 2005, 2:04pm » |
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Bethany1 -
I don't know what to say. What you are going through must be awful.
Obviously your doctors and maybe others that have had to go med free for a period of time are going to be better sources of information.
My prayers shall include a request for Pain Free time for you during your pregnancy.
Congatulations and Best Wishes
Tom
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Margi
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Re: Just a question
« Reply #14 on: Jun 14th, 2005, 2:30pm » |
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Bethany, I am so sorry to hear you're getting hit hard again. Med free is so scary.
We had a gal show up at OUCH Canada last week, (from Belgium actually) in the same situation as you. Her doctor actually advised her against even oxygen during pregnancy, poor girl, I'm still not sure why though.
Certainly not a time to try anything new and EVERYTHING must be discussed with your doctor in advance. My daughter's just been through her first pregnancy and her doctor told her in no uncertain terms - absolutely NO herbs of any kind. Not even echinacea when she was getting a cold. I know doctors tend to err on the side of caution most of the time, but during pregnancy I don't blame them. So, please, if you are considering anything alternative, include your doc's advice in your decision.
Hopefully, your hormones will balance out after the first trimester and you'll find the cluster break that most pregnant gals get. I don't doubt that that is why you're seeing an increase in cluster activity, not only because you're not on meds, but because of the hormone flux. My heart goes out to you. 
You should really PM Mel - she's pregnant now and this is her third child. She's been a cluster head for a long time and she would probably love to give you her tricks on how she deals with cluster pain while preggers. She's a jewel of a gal and I know she'd be happy to help you.
All the best, Bethany, hope you find some relief soon. Don't forget about using ice and water.
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| « Last Edit: Jun 14th, 2005, 2:32pm by Margi » |
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LeLimey
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Re: Just a question
« Reply #15 on: Jun 14th, 2005, 5:31pm » |
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I'm sorry you are getting hit Bethie.
I think Margi is right. When i was expecting Jasper I got told not to even use any aromatherapy oils. I guess they think you can't be too careful. Speak to your neuro and gynaecologist though. They will know what is best for you
lots of love
Helen
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Sean_C
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Congrats Bethany  Your gonna be an awesome mom I bet I'm happy for you guys
Hopefully the beast will pass soon, if your getting nailed hard now it usually means some relief is close by.
PF vibes headin your way sis
Sean..........................................................
(sp)
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| « Last Edit: Jun 14th, 2005, 5:58pm by Sean_C » |
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burnt-toast
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Re: Just a question
« Reply #17 on: Jun 14th, 2005, 7:54pm » |
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Bethany1 -
The Good Lord hasn't been real good at answering my prayers lately and I didn't feel right leaving you hang out there.
So far the references that I have found list 100% O2 as the best solution to stopping CH in your situation. Best to discuss with your Docs. to see if this may be of help and something you can use.
If I come across anything else, I'll try to get word to you.
Best Wishes
Tom
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| « Last Edit: Jun 14th, 2005, 8:48pm by burnt-toast » |
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jokrs2
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Re: Just a question
« Reply #18 on: Jun 14th, 2005, 8:07pm » |
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I have had hit's that have lasted well over 5 hours at k-10 with just a few minutes of perhaps hard shadow and then right back into another one for at least 5 hours. These happened while taking imitrex and lasted 14 days straight....End of imitrex as a treatment. LSA ended the cycle. Good luck Bethany. Blessings, Joe
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Flash
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During the peak of an episode I have experienced (more than once) 4 days of 6 attacks per day at 3 hours each attack with an intensity of kip 9-10. I'm lucky if I get an hour off in between the headaches, and ven during that hour the shadows are up to migraine levels of intensity.
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Langa
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Re: Just a question
« Reply #20 on: Jun 15th, 2005, 8:32am » |
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3.5 hours of a kip 10...I begged for death...
So sorry you're getting hit Beth...did you speak to your doctor yet about the 02?
Hang in there girl!
Love,
Langa
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sandie99
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Re: Just a question
« Reply #21 on: Jun 15th, 2005, 1:43pm » |
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Bethany,
I'm so sorry you're getting hit hard...
(((((((((Vibes)))))))))
My worst attack ever was nearly 3 hours. Luckily, it has been a long time since I had it. 
Best wishes,
Sanna/sandie99
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bnfreeman
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Re: Just a question
« Reply #22 on: Jun 15th, 2005, 2:27pm » |
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Bethany,
the longest I've been hit is about 10 hours. But I have been diagnosed with cluster-migraines. All symptoms of cluster, but they last longer and I vomit with the bad ones. I was pregnant not long ago and was getting hit really hard. The doctors told me demerol was all I can take. But it doesn't help much in pill form. O2 was the only thing I could do. I looked up past posts on women who where pregnant and many of them didn't get hit during that time. Maybe things with slow down soon. Hang in there. Unfortunatly I miscarried at 6 weeks. And I know it is from taking all kinds of meds before I knew I was pregnant. So stay strong!
Brandi
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Sandy_C
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Re: Just a question
« Reply #23 on: Jun 15th, 2005, 5:23pm » |
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"My longest was about 60 - 70 minutes. That was probably 25 years ago. I don't remember the exact kip number but it was probably 7 or 8. All mine were 7 - 8 back then.
I had not been diagnosed.
I had no meds.
I had no computer to Google.
There was no CH.com.
I did not know anyone that had the same pain. Or had even heard of it.
Life sucked back in the good-ol-days. "
Absolute ditto! My first cycle, since I thought I was going to die, each hit seemed to last for hours. Now that I've learned what it is that I have and ways to prevent/abort,
hits are really very short in comparison - 15 - 45 min each.
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ClusterChuck
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Re: Just a question
« Reply #24 on: Jun 15th, 2005, 6:29pm » |
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Longest hit, 3 hours 20 minutes. I have had several of 3 hours.
So sorry you are getting nailed so bad. Most ladies get a break while they are pregnant. I hope that happens to you!!!
Hang in there, gal, and CONGRATS on the "bun in the oven" !!!
Chuck
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