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Topic: Question? Do we ever out grow ch? (Read 545 times) |
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TerryS
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Question? Do we ever out grow ch?
« on: May 28th, 2005, 3:05am » |
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34 years of cluster headaches and shadows. I'm 57 and just getting tired of losing out on family time vacations and work. 
God bless,
TerryS
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> It is only a tiny rosebud,
> A flower of God's design;
> But I cannot unfold the petals
> With these clumsy hands of mine.
> The secret of unfolding flowers
> Is not known to such as I.
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don
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Re: Question? Do we ever out grow ch?
« Reply #1 on: May 28th, 2005, 8:20am » |
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Mine started when I was nineteen. Every single year I would have 2-3 cycles.
I'm 47 now and have been out of cycle for going on 4 years.
I certainly hope we out grow them.
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Grandma_Sweet_Boy
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What Goes Around Comes Around!
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Re: Question? Do we ever out grow ch?
« Reply #2 on: May 28th, 2005, 9:37am » |
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Hate to pee on your parade here but I'm 62 now - have had this misery in my life for well more than half of it and continue to do so.
The good news is that I skipped a cycle this year and maybe that means I've finally outgrown it! We can always hope.
Carol
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BobG
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Re: Question? Do we ever out grow ch?
« Reply #3 on: May 28th, 2005, 6:43pm » |
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Hey Terry, good to see ya.
I'm 58 and been out of cycle for about 5 years. I have had cycles of just shadows from January to March each year since but that is something I can live with. I still get an individual attack now and then but usually it's my own fault by allowing myself to become overtired (damn rotating shifts) or by taking a nap.
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Stay stressed. Never relax. Never sleep. Ever.
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Kris_in_SJ
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Re: Question? Do we ever out grow ch?
« Reply #4 on: May 28th, 2005, 7:42pm » |
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Perhaps I'm different than most ... mine didn't start until I was 42. However, my cycles are pretty consistently 3-5 years apart. So, don't let me rain on your parade!
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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Sean_C
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Re: Question? Do we ever out grow ch?
« Reply #5 on: May 28th, 2005, 7:49pm » |
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Hang tough Terry, no matter how tough it gets always remember somebody is having a rougher time than you somewhere, someplace.
Sean................
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survivor13
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Re: Question? Do we ever out grow ch?
« Reply #6 on: May 28th, 2005, 11:22pm » |
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All I can say, if you've ever had them, always be prepared to have them!
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Jonny
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Re: Question? Do we ever out grow ch?
« Reply #7 on: May 29th, 2005, 3:25am » |
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on May 25th, 2005, 7:34pm, Jonny wrote:about my head, but I do post whenever something good is happening so others will have some hope (Newbies)
Ive been chronic for 30 years, been taking the magic cocktail of Lithium and Verapamil everyday for about the last 14 years. It has helped to kill 80% of the HA's from ever reaching my brain....LOL
Ok, now for the new news....6 weeks ago I made an appointment with my Neuro, it had been 18 months since I had blood work (I know....practice what you preach)
Knowing that I would run out of meds before I saw him I started half dosing, in the past this was a bad thing to do....I would get slammed every night cause of it. For some reason this time I had no daily shadows and when I did wake up at night it was just a shadow that 02 killed in 5 minutes (I have never killed a HA that woke me up with 02)
I told my Neuro this and he said "take what you feel you have to, you have been doing this so long you know more than I do".................I love that guy 
Im going to continue to half dose as long as I can and hopefully ween off.....Can I get a Fuckeneh? 
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I dont know if you saw this post Terry, but if someone told me that would happen I would have laughed at them....its happening and I dont know why.
If that can happen to me, even better can happen to you....If we are all lucky they will just go away like they did with Charlie (I still think he made a deal with the devil  )
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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TerryS
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Re: Question? Do we ever out grow ch?
« Reply #8 on: May 29th, 2005, 4:42am » |
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Yeah Jonny I agree......I think Charlie did Hahahaha
God bless Friend,
TerryS
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> It is only a tiny rosebud,
> A flower of God's design;
> But I cannot unfold the petals
> With these clumsy hands of mine.
> The secret of unfolding flowers
> Is not known to such as I.
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sandie99
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Re: Question? Do we ever out grow ch?
« Reply #9 on: May 30th, 2005, 12:15pm » |
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I hope we do!
Mine started when I was 21, I'm 25 now. So just few years of hell... But looking into the future with optimism. 
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Dave
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Re: Question? Do we ever out grow ch?
« Reply #10 on: Jun 4th, 2005, 8:41pm » |
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My physician told me that they get better in old age. I plan to cling onto that hope.
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alleyoop
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Re: Question? Do we ever out grow ch?
« Reply #11 on: Jun 5th, 2005, 11:51am » |
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I've got an episodic brother whom has been in remission going on ten years now.
.....................alley
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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cherokee
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Re: Question? Do we ever out grow ch?
« Reply #12 on: Jun 6th, 2005, 9:10pm » |
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I just came out of a 10 yr remission and I forgot how bad they really are. There is alot more info I have access to now thanks to the web.
Peace
cherokee
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Peace
cherokee
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Marc
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Re: Question? Do we ever out grow ch?
« Reply #13 on: Jun 6th, 2005, 9:50pm » |
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Wow, I missed this one so I didn't have a chance to say Howdy to Terry - Howdy Terry! Nice to see some of the long timers still popping in.
While I'll never be as old as BobG and that other geezer BobP, mine have gotten worse now that I'm in my 50's.
I WAS hoping that they would fade away into the sunset..... (The CH's - not the Bob's )
Marc
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BobG
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Re: Question? Do we ever out grow ch?
« Reply #14 on: Jun 7th, 2005, 10:24am » |
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on Jun 6th, 2005, 9:50pm, Marc wrote:While I'll never be as old as BobG and that other geezer BobP, mine have gotten worse now that I'm in my 50's.
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ROTFLMAO 
Nice shot Marc.
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Stay stressed. Never relax. Never sleep. Ever.
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Linda_Howell
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Re: Question? Do we ever out grow ch?
« Reply #15 on: Jun 7th, 2005, 5:57pm » |
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Terry,
I, too am glad to see you posting...
Charlie is a real good example. But then again you have KIP who is still fighting the beast.
Don't know what else to tell you except I am glad you are here.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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