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Topic: Hemicrania Continua (Read 398 times) |
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gMike
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Hemicrania Continua
« on: May 27th, 2005, 8:29am » |
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It looks like HC is what I have! Neuro put me on Indomethacin a couple days ago and I have been headache free since then!!  The Indo messes with your stomach but it is a small price to pay for a clear head. Have not been PF since last November so it is a big day for me.
Thanks for all the info on this site and the help provided.
I'm going to continue to read and occasionally comment if I have anything relevant to say.
Thanks to all of you!!!
Mike
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E-Double
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Re: Hemicrania Continua
« Reply #1 on: May 27th, 2005, 11:23am » |
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Very happy that you got "your Demon" under control!!!!!
It will be very treatable!!!!
Glad we were able to be there for you!!!
Best,
Eric
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| « Last Edit: May 27th, 2005, 11:23am by E-Double » |
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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seasonalboomer
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Re: Hemicrania Continua
« Reply #2 on: May 27th, 2005, 11:32am » |
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Congrats. Sounds like you had a good Dr. to distinguish HC and give the right answer. Happy days for you!
Scott
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Jasen
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Re: Hemicrania Continua
« Reply #3 on: May 27th, 2005, 12:03pm » |
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Just got put on that yesterday. Took it this AM and O2 and was fine in 5 mins.
Better days 
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If it was clusters of cash, I wouldn't complain
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KMT
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Re: Hemicrania Continua
« Reply #4 on: May 27th, 2005, 2:27pm » |
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Quote:The Indo messes with your stomach but it is a small price to pay for a clear head. Have not been PF since last November so it is a big day for me.
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Drink a glass of milk or eat before you take the pill and then it shouldn't be as bad. It coats the stomach. Then follow with a full 8 oz of fluid.
Congrates on finding what it is and what works.
Kim
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aka...................................................... KimY
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yikes-another-one
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Re: Hemicrania Continua
« Reply #5 on: May 27th, 2005, 6:37pm » |
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Awesome news Mike!!!!!!
See, vibes and prayers do work 
Hope you continue to be pain free,
and that you celebrate this weekend with your
friends and loved ones.
Take care and write often!
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Psalm 23 - Goodness and mercy shall follow US all the days of our lives and WE will dwell in the house of LOVE forever.
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Sean_C
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Mike I'm happy your getting the medical attention you deserve and treated with awesome results bud
Stick around we'd love to have ya
Sean........................
What is Hemicrania Continua?
Hemicrania continua is a rare form of chronic headache marked by continuous pain on one side of the face that varies in severity. Superimposed on the continuous but fluctuating pain are occasional attacks of more severe pain. Symptoms fall into two main categories: autonomic, including runny nose, tearing, eye redness, eye discomfort, sweating, and swollen and drooping eyelids; and migraine-like, including nausea, vomiting, and sensitivity to light and sound. The disorder has two forms: continuous, with daily headaches, and remitting, where headaches may occur for as long as 6 months and are followed by a pain-free period of weeks to months until they recur. Most patients experience attacks of increased pain three to five times per 24-hour cycle. This disorder is more common in women than in men. Physical exertion and alcohol use may increase the severity of headache pain in some patients. The cause of this disorder is unknown.
Sounds familiar doesn't it. For all of you that can nap during a cluster PF days are around the corner.
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| « Last Edit: May 27th, 2005, 9:28pm by Sean_C » |
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gMike
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Re: Hemicrania Continua
« Reply #7 on: May 27th, 2005, 10:00pm » |
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Sean,
The fact that I could "sleep" a headache away was what caused me to go back to the Neuro and argue for Indomethacin. I realized that you can't "sleep" a cluster away from the descriptions on this site.
I never would have even heard of Hemicrania Continua until I came to this site and did some research. I may not have Clusters but the Cluster site certainly gave me the info I needed to get "fixed".
I'll hang around and support and help where I can.
Mike
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Sean_C
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Mike, I definately think you should stay. I don't think your alone here and you may of helped some people out with that info  Your effort to resolve what condition you have has given you what we all want.......................relief
I'm happy for you Mike
Cheers bro
Sean....................................
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Gator
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Re: Hemicrania Continua
« Reply #9 on: May 28th, 2005, 1:54am » |
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on May 27th, 2005, 8:29am, gMike wrote:The Indo messes with your stomach but it is a small price to pay for a clear head.
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Glad to hear some good news. Besides taking the meds with food or milk, you may want to ask your doc about adding an antacid to the mix. I took Indomethacin up to 300mg. My doc had me taking OTC Zantac with it to avoid the stomach problems.
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Jasen
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Re: Hemicrania Continua
« Reply #10 on: May 28th, 2005, 2:47am » |
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Sean,
Thanx for that info. That hitting right down the middle of my skull
I'm still hoping I have Synalgia, but either way, the Neur/ seems to have narrowed it to these two.
Better days
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If it was clusters of cash, I wouldn't complain
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gMike
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Re: Hemicrania Continua
« Reply #11 on: May 30th, 2005, 9:49am » |
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6 days PF with the Indomethacin. Almost starting to believe it's going to work!! 
If there's even a remote chance that you could have either type of Hemicrania, run, don't walk to your doctor and demand an Indomethacin trial. If it clears your HA up you're waaaaaaay ahead, and if not you haven't lost anything other than time.
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Gator
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Re: Hemicrania Continua
« Reply #12 on: May 30th, 2005, 12:36pm » |
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on May 30th, 2005, 9:49am, gMike wrote:6 days PF with the Indomethacin. Almost starting to believe it's going to work!!
If there's even a remote chance that you could have either type of Hemicrania, run, don't walk to your doctor and demand an Indomethacin trial. If it clears your HA up you're waaaaaaay ahead, and if not you haven't lost anything other than time. |
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For some doctors, I think responsiveness to indomethacin is a factor in the diagnosis of ch. It probably should be for all doctors. It was one of the first meds tried by my first 2 neurologists. It would sure cut out on a lot of time wasted chasing expensive and possibly dangerous medicinal treatments. I still correspond with someone whose doctors dove right into the ch stuff and didn't try the indomethacin until it was suggested here first. Low and behold, the indo knocked out the attacks. Last I heard, she was still doing great on the indo. Just another item to add to the "Education" column of things to do for OUCH.
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kissmyglass
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Re: Hemicrania Continua
« Reply #13 on: May 30th, 2005, 12:44pm » |
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Since Indo is pretty much 100% effective in treating HC, I think all Clusterheads should try it just to be sure..
Kev
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lionsound
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Re: Hemicrania Continua
« Reply #14 on: May 31st, 2005, 9:41am » |
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Mike,
Good for you for being educated and getting what you needed!
So happy you're PF!
(you can also try yoghurt for your stomach)
Be well,
lionsound
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