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Topic: Newbie to site but unfortunately..not to CH (Read 288 times) |
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Dallas_Denny
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Newbie to site but unfortunately..not to CH
« on: May 27th, 2005, 8:20am » |
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I feel so blessed to have stumbled onto this site!! Been dancin with the DEVIL for 20 years and have tried everything....I thought. About 10 years ago I read something about O2 therapy and ask the Drs. at the VA where I was being treated at the time if I could try it. Well, they gave me a bottle and a cannula at 2LPM. Not really much help and so I just stuck it in the closet and forgot about it. After almost a year and a half in remission my latest cycle started about 5 weeks ago now and in searching for any recent info on CH I came across this site a couple days ago and read about "the real deal" on O2 therapy!! Took off yesterday from work and jumped thru the hoops to get some O2 and facemask and guess what. Had my normal 5 to 7 attacks last nite...but....hit the O2 and none of em made it past a 2....WOW!!!! Used up almost the whole tank but you can bet your bippee I'll be makin it to the O2 store on my lunchbreak for a refill. Thanks ya'll!!! 
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lionsound
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Re: Newbie to site but unfortunately..not to CH
« Reply #1 on: May 27th, 2005, 8:24am » |
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Welcome Denny!
Sorry your getting hit, but very glad the 02 is helping you!!!
Lots more info here too....read, read, read!
be well and PF!
-lionsound
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Gator
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Re: Newbie to site but unfortunately..not to CH
« Reply #2 on: May 27th, 2005, 9:06am » |
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Welcome to the website. Sucks that you had a reason to come looking for us, but damn glad you found us.
As you have no doubt discovered, the links to the left have tons of good info in them. There is even more on the OUCH website. Read everything you can and print stuff out that seems applicable. Unfortunately, you may end up teaching whatever doctor about CH.
Here is a link to read and print and take to your doctor. It describes preventative, transitional, abortive and surgical treatments for CH.
http://www.brightok.net/~mnjday/chtherapy.pdf
Here is a link to some non-prescription alternatives different people have used to help with the pain:
http://www.clusterheadaches.org/resources/non_script_treat.htm
If you are currently taking medications, I would suggest you talk with your doctor before taking any of the nutritional supplements. At the very least check for interactions at a website such as:
http://www.drugdigest.org/DD/Home/AllAboutDrugs
Nutritional supplements can interact with prescription meds just the same as some prescription meds interact with each other. Better safe than sorry where your health is concerned.
I'm glad you have discovered the "real deal" on using oxygen. It kills off a good 75% of my hits. As well as it works, I have a hard time understanding why more doctors do not prescribe it. Here are some links that tells about using O2:
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
http://www.headaches.org/consumer/topicsheets/oxygen.html
http://www.chhelp.org/mhni.html
Here is a link to a letter that may help explain things to your friends, family and co-workers.
http://www.clusterheadaches.org.uk/home/index.cfm?address=../clusters/no te_colleagues.cfm&added=04/01/04&code=CB
Again, welcome to CH.com. There's no better place in the world for info and support of cluster headaches.
Gator
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jeff4ever
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Re: Newbie to site but unfortunately..not to CH
« Reply #3 on: May 27th, 2005, 10:36am » |
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Denny,
Wow, I just found it this year with my 23rd year of CH.
When you can't get an answer, just keep looking. Glad your Oxy is helping!
Welcome to the freshman class of CH website! Think we will ever graduate? 
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E-Double
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Re: Newbie to site but unfortunately..not to CH
« Reply #4 on: May 27th, 2005, 11:21am » |
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Ditto everything Gator especially posted 
and.......since you are in Dallas you may be interested in meeting a whole tribe of CHer's......
OUCH convention July 15-17
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=dallas2005
Good luck on your journey and know that you are no longer alone!
Eric
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I can't believe that I have to bang my
Head against this wall again
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Gonna take a breath and try again.
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Jasen
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Re: Newbie to site but unfortunately..not to CH
« Reply #5 on: May 27th, 2005, 12:05pm » |
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Dallas,
I've been here for a week or so. Lot's of good info and helpful folks here.
Better days 
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Giovanni
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Re: Newbie to site but unfortunately..not to CH
« Reply #6 on: May 27th, 2005, 12:08pm » |
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Try to obtain at least 4 to 5 e-tanks and a couple of M's. The M's will last you a few/several days. The E probably one night. Glad you're getting relief.
John
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Sean_C
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Re: Newbie to site but unfortunately..not to CH
« Reply #7 on: May 27th, 2005, 9:05pm » |
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Welcome Den.
Sean.................................. 
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Jonny
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Re: Newbie to site but unfortunately..not to CH
« Reply #8 on: May 28th, 2005, 5:16pm » |
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on May 27th, 2005, 10:36am, jeff4ever wrote:Denny,
Wow, I just found it this year with my 23rd year of CH.
When you can't get an answer, just keep looking. Glad your Oxy is helping!
Welcome to the freshman class of CH website! Think we will ever graduate? |
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Hey fuck face....please tell me where Dallas said ANYTHING about Oxy.
If you need to make shit up to justify your drug use....you are disturbed
Edit to add..........hope to see you at the convention, Dallas
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| « Last Edit: May 28th, 2005, 5:19pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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kissmyglass
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JonRe: Newbie to site but unfortunately..not to CH
« Reply #9 on: May 28th, 2005, 5:34pm » |
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Jonny,
Think he meant OXYgen....
K
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