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Topic: Episodic in 6th week of cycle! (Read 331 times) |
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Conrad
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Episodic in 6th week of cycle!
« on: May 24th, 2005, 11:55pm » |
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Hello everyone. Have not posted anything in awhile, been busy with work and my headaches of course. I'm an air force recruiter. Still having 1 headache a day but I can manage them with oxygen for the most part and really shut it down with a zomig, get my new refill of those tomorrow. I apologize for not being here as much supporting, feel like I have not done my part here totally. I can say this though. I do pray for everyone with this problem before I go to bed at night, I really do. I know it hurts and I pray for a fix. So I hope that is worth something? For those of you that are episodic for around 6-8 weeks like me, do they all of a sudden just vanish for you?? I'm still on my 360mg verapamil and 100mg topamax a day in the mornings. God Bless all of you and long sleepy nights to all! 
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thomas
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Re: Episodic in 6th week of cycle!
« Reply #1 on: May 25th, 2005, 8:41am » |
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Yeah, they go away when they decide to. I am a little concerned that you are using topomax and are episodic, it just seems to me to be one of the last-restort type preventives. 
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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pattik
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Re: Episodic in 6th week of cycle!
« Reply #2 on: May 25th, 2005, 10:04am » |
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Hi Conrad. I'm episodic too. My cycles last 5-6 weeks, and typically, they ramp up in intensity from the middle to the end of the cycle when I can get Kip 8's and 9's. Then they suddenly stop, and that's the end of that cycle. I don't use preventative meds other than magnesium supplements as I am approching my usual autumn cycle time. I have found O2 to work very well, most of the time. Imitrex became less and less effective, mostly because of rebounds, so I haven't used that much lately. I'm going to try kudzu next time around. I have a full bottle just waiting in the medicine cabinet. 
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aprilbee
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Re: Episodic in 6th week of cycle!
« Reply #3 on: May 25th, 2005, 11:02am » |
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I am an episodic and mine last about 3 months I have CH on both sides of my head (yes I am one of the lucky ones) the first half of my cycle, they are on one side then switch in the other side half way through, I start counting down the days once it switches...and then...they stop...my neuro always wants me to try preventatives, but I have yet to find one that works.
wishing you pfdan too!
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kcopelin
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Re: Episodic in 6th week of cycle!
« Reply #4 on: May 25th, 2005, 11:18am » |
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Yes, they all of the sudden vanish-after reaching a peak. Am on verapamil and just started a prednisone taper-cause the beast is not responding-in fact it has morphed to nights AND days which really sucks. My CH started when I was in the AF. Am retired now and get my treatment through VA. How is the AF treating you with these headaches?
Kathy
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Kris_in_SJ
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Re: Episodic in 6th week of cycle!
« Reply #5 on: May 26th, 2005, 8:29pm » |
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I'm a 10-12 week person. Mine ramp up - 1 every third day, then every other, then every, then twice a day. By then, the Verapamil is kicking in. At peak, I have 2/day with constant kip 2-4 shadows. Then, they slowly ramp down just the way they started, except those damned shadows stick around for quite awhile. I usually only have to use Trex injects for a few weeks until the Verap kicks in. Then a really strong cup of coffee helps a little.
Word of caution ... it took me a full 4-5 months to wean off the Verapamil this last cycle .... slow wins the race, so they say.
PF Wishes,
Kris
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