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Topic: Remission? (Read 335 times) |
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gravelgirl
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Good news all around:
My last HA was back on 4/30… 9 PF days!!! After my visit to the neurologist back on 4/22, per her suggestion I quit all caffeine and chocolate. I also started taking Verapamil, but have forgot to take it the past week… I’m horrible at remembering pills.
Can anyone suggest what my PF days can be attributed to? Am I in some sort of remission? Or was it not CH’s to begin with? I have a follow-up neuro appointment on Friday and a MRI appointment on the 20th.
Suggestions? Thoughts?
Thanks to all!
~Bris~
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E-Double
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Are we ourselves?
 
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Re: Remission?
« Reply #1 on: May 9th, 2005, 3:20pm » |
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Hiya Bris,
glad you're PF....
It could have been just a very quick visit from our friend.
If I recall this was your very first experience....Many people who first experience CH have very brief cycles to begin with.
I hope it never comes back......BUT....Be prepared regardless!!!!
Keep stock of your meds and if ever (hope not) you get that familiar twinge.....you will know what to do.
Go have fun!!
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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sandie99
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Re: Remission?
« Reply #2 on: May 10th, 2005, 11:54am » |
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I hope you also stay PF! 
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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ArCane
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Onward through the fog
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Re: Remission?
« Reply #3 on: May 11th, 2005, 11:45am » |
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Totally agree with Eric. When CH first comes on, the cycles can sometimes be irregular. I remember my first cycle was 1 week followed by 2 weeks PF and then another week of pain. Now that I have had numerous cycles, its alot more regular. Get hit everyday for 1-2 months.
I hope the beast leaves you alone. Stock up on your meds and get prepared for next time. There is always a next time. Its enough just to worry about the headaches when they come, let alone trying to get meds.
PF wishes,
Allen
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Alchemy’s First Law of Equivalent Exchange: To obtain, something of equal value must be lost.
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bnfreeman
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Re: Remission?
« Reply #4 on: May 13th, 2005, 2:55pm » |
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When I first got clusters I didn't know what they were. I thought they were bad migraines. I had them periodically until 7 months later when they stopped. I didn't know if I was cured or if it was medicine that I was on until October. They started again just like the year before last. So be prepaired because the beast is probably just sleeping! Good Luck- BF
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Langa
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Re: Remission?
« Reply #5 on: May 14th, 2005, 7:34am » |
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Ditto on what Eric said...
Glad your PF and may it continue...
Langa
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When you saw only one set of footprints, it was then that I carried you.
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don
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Have you been diagnosed with cluster or Migraine?
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SusieWong
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Re: Remission?
« Reply #7 on: May 14th, 2005, 12:23pm » |
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I was told 30 days PF with no medication before being considered to be in remission. 
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Tomorrow is another day.
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gravelgirl
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Re: Remission?
« Reply #8 on: May 16th, 2005, 4:07pm » |
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16 PF days! I even had 2 mikes hard lemonades the other night and I was fine!
I have a MRI friday... so we'll see how that goes.
Thanks All!!!!
~Bris~
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Remission?
« Reply #9 on: May 16th, 2005, 4:17pm » |
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on May 16th, 2005, 4:07pm, gravelgirl wrote:I have a MRI friday... so we'll see how that goes.
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Goo luck to your MRI...
and lots of PF days,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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zebb37
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God damn the pain
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Re: Remission?
« Reply #10 on: May 16th, 2005, 5:06pm » |
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1 day pf would be nice
seriously though - i tend to know when my cycle is over.
good luck with the pf days and i really, really hope they last
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gravelgirl
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Re: Remission?
« Reply #11 on: May 17th, 2005, 3:43pm » |
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on May 16th, 2005, 5:06pm, zebb37 wrote:seriously though - i tend to know when my cycle is over.
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how do you KNOW? how often are your cycles?
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seasonalboomer
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Re: Remission?
« Reply #12 on: May 17th, 2005, 3:50pm » |
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many people know. many of us differently. For instance I have a pretty good idea my cycle over because there is a "clarity" that I wake up with in conjunction with a pain-free day or two. It's just a feeling. The only way I know for sure is when I take the leap of doing things that are triggers and there is no HA triggered.
If you're doing trigger behaviors and not getting hit -- your cycle is over -- no need to overanalyze it.
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seasonal boomer
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