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Topic: is facial numbess & paralysis part of a CH att (Read 904 times) |
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aladinsane
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is facial numbess & paralysis part of a CH att
« on: May 4th, 2005, 1:09am » |
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I woke up yesterday morning after an attack, then I noticed that the left side of me face feels numb, its been 24 hrs since and things have not changed. I havent had an attack for nearly 30 hrs now, but the left side of my face is still partially numb and has very litel movement. I know that I need to see a DR but my med insurance wont kick in till the first of june....I need your thoughts and guidance...PLEASE..
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TxBasslady
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Re: is facial numbess & paralysis part of a CH
« Reply #1 on: May 4th, 2005, 1:28am » |
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That has never happened to me..
Trying to think....if I recall anyone mentioning this.
I do get jaw pain....but it goes away after a while.
What meds are you on?
Could it possibly be a side effect from the meds?
Damn, wish I could give you an answer. Maybe someone will be along and do better with this than I did.
Do you take Imitrex???
PF vibes,
Jean
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #2 on: May 4th, 2005, 1:36am » |
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yes, I just stared taking them a week ago, I've never like the effects that TREX gives me, I feel so spent. My last episode was of january 2004 which lasted 22 days and I was given DHE, PREDS, TOPOMAX and of course the usual cocktail of painkillers. Sad to say that when I had my recent episode, I am not covered by med ins. so I had to rely on OTC drugs and a fellow worker of my mine who is a migraine sufferer gave me some imitrex...why do you think that imitrex may have caused this?
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TxBasslady
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Re: is facial numbess & paralysis part of a CH
« Reply #3 on: May 4th, 2005, 1:43am » |
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Well, I am not a doc....so I really don't know.
Some folks here have had problems with the Trex.
For some the Trex causes rebound ha's. Some have the tightning in the chest.
You do know, not to mix Triptan's...right?
Is the Trex the only med you took? Of course, I have to say that you should call your doc. I understand about the insurance...
I have never taken Trex....so this is a bit difficult for me.
I was hoping another would come along and maybe help.
Is the Trex pill form...or injections?
Jean
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TxBasslady
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Re: is facial numbess & paralysis part of a CH
« Reply #4 on: May 4th, 2005, 1:50am » |
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Hey Al..
There's a couple of guys gonna come see if they can help ya out.
Jean
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #5 on: May 4th, 2005, 1:54am » |
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I take metformin once daily for my diabetes & multivimins. I remember taking an OTC muscle relaxant that night, a few hours after took a dose of TREX. I have no prior experience with TREX, and that I just moved to LAS VEGAS from the northwest a few months ago (divorce -related), so bottom line is no DR and no insurance as of press time. 
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TxBasslady
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Re: is facial numbess & paralysis part of a CH
« Reply #6 on: May 4th, 2005, 2:00am » |
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I'm still here....I sent a message to Gator.
Maybe he'll be here in a sec.
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #7 on: May 4th, 2005, 2:05am » |
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Thank you so much.....my name is Lyndon, by the way... 
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| « Last Edit: May 4th, 2005, 2:06am by aladinsane » |
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TxBasslady
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Re: is facial numbess & paralysis part of a CH
« Reply #8 on: May 4th, 2005, 2:11am » |
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Nice to meet you!
Welcome to the board...
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Gator
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Re: is facial numbess & paralysis part of a CH
« Reply #9 on: May 4th, 2005, 2:14am » |
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Okay, to bring everyone that reads this up to speed: (from "what's a typical day like for a chronic" thread)
Quote:Posted by: aladinsane Posted on: 05/03/05 at 22:58:35
Hi guys, I am in the midst of an episode andd yesterday I woke up realizing that the left side of my face feels numb as if i just came from the dentsit office, is been 24 hrs hence and nothing has changed, I have very little movement on my left face, i can't eat nor drink properly without spilling liquid or food, I"M SCARED, I am new to my job and my med insurance won't kick in until the 1st of June, tell me, ive been properly diagnosed of CH 2 yrs ago, but ive been misdiagnosed for 14 years, is this numbness and lack of movement on the left side of my face normal, PLEASE I NEED ANSWERS, I'M SO SCARED
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Posted by: nani Posted on: 05/03/05 at 23:14:20
I think you should see a dr. There is something called Horton's Syndrome where your CH eye can droop permanently, but I'm not sure if there's any numbness. IMHO it would be best to rule out anything more serious. PF wishes, nani
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Posted by: Gator Posted on: 05/03/05 at 23:20:46
I've not seen this in anything that I have read and have definitely never experienced it. There may be others who have, though. I would suggest getting your butt to a doctor.
What meds (prescription, otc, vitamins, herbals, etc.) are you taking? Is it just in your face or is it in any part of the rest of your left side, arms, legs, etc? What were you doing the day before you woke up like this? While you are at it, go over your ch symptoms. Maybe that will give a clue as well.
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Posted by: aladinsane Posted on: 05/03/05 at 23:45:55
thank you so much, but in as much that i want to see a DR asap, my med insurance won't kick in by the 1st of june...Yes, i am very aware of the drooping eyelid syndrome, which I have, but what i experienced yesterday was totally different, i still feel pressure in my head. No other part of my body, as of press time, feels numb or dull. Did you think that I had a "silent stroke"?
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Posted by: Gator Posted on: Today at 00:05:22
Don't know enough about you or your situation to be able to say anything intelligent. Stroke and Bell's Palsy immediately come to mind. There are a few nurses that are members here. Hopefully one of them will be along soon. In the meantime, I'd Google your symptoms and see what you come up with.
Check out this page and see how your symptoms match up.
http://www.bellspalsy.ws/symptoms.htm
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Posted by: aladinsane Posted on: Today at 00:15:46
Thank you so much for the info, thought I've check the site earlier, however very few of the symtoms are related to mine. I certainly appreciate your concern, GATOR. I will try to cal my HR tomorrow and see if they can have my med insurance activated ASAP rather rather than June 1st |
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| « Last Edit: May 4th, 2005, 2:15am by Gator » |
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #10 on: May 4th, 2005, 2:14am » |
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thank you Ma'am, i certainly appreciated you concerns and attention, very few people outside this "circle of pain" truly understand what we go thru...again, gratis
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #11 on: May 4th, 2005, 2:19am » |
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Gator, thanks a lot too, I know that youve done what needs to be done, I am just very much concerned and am just looking if what had occured to me was typical to a CH sufferer....and as far as I've searched each one is uniquely different from the other. I cerainly hope that this is just an after effect of the meds that I took, or it could be worst....I have to make arrangements with my owrk to see if they can expedite my med. insurance, again, thank you so much...
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TxBasslady
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Re: is facial numbess & paralysis part of a CH
« Reply #12 on: May 4th, 2005, 2:19am » |
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You're welcome.
I hope things get better for ya.
Jean
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Gator
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Re: is facial numbess & paralysis part of a CH
« Reply #13 on: May 4th, 2005, 2:47am » |
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I'm sure we're not done here. Like I said, there are medical professionals here that should come along and be able to offer better assistance. In the meantime, I am still doing some research.
You say you are Diabetic and took metformin, imitrex and an OTC med the night before. Do you remember the name of the med? Do you take insulin? How were your blood sugar readings? Do you take any other OTC meds, vitamins, herbal supplements, etc? Did you consume any alcohol that night? Have you had any trauma to your head recently? Have you had any other illness recently? Any pain anywhere in the face or ringing of the ears?
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TxBasslady
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Re: is facial numbess & paralysis part of a CH
« Reply #14 on: May 4th, 2005, 3:13am » |
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Al,
I'm sure it would be helpful if you can maybe list what the muscle relaxer was...brand..how much you took.
Also, you didn't tell us what dosage of Trex you took.
It would be helpful if you can answer the questions Gator listed in the above post. I know you're offline now, but when you come back...list the meds and the amount you took, if possible.
Hope things get better....please let us know how you're doing.
PF vibes,
Jean
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #15 on: May 4th, 2005, 6:17am » |
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I just woke up from a fitful sleep...cried myself to sleep to be exact! I couldn't belive what has happened to me, thats all! my fiance is coming this friday, and I can't bear the thougth of her seeing me like this, how can I take her out to dinner, when I slubber al over myself? when I talk my face looks contorted, I look normal if I stay quite and not use any facial expressions or movement...sorry guys I gotta let it out...Okey, these are what I took the day before my facial incident...my usual metformin, vit e & c, centrum multi vitamin, oogoplex, enzyte and a muscle relaxant called ALAXAN (a mxture of ibuprophen and paracetamol) I don't know the exact dosage og each cap but I took 2, the TREX that I took was a pill not the injectables. My sugar levels are okey and no I did not have any recent or history of head trauma....My hearing and eyesight are still the same, my tongue is not swollen, I actually feel a bit better today than the days before, except of course for my face. At 8 am today I shall be calling our HR to see if they can help me so I can bring my butt to a DR ASAP....again, thanks for listening to my story and your invaluable inputs
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| « Last Edit: May 4th, 2005, 6:25am by aladinsane » |
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Bob P
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Re: is facial numbess & paralysis part of a CH
« Reply #16 on: May 4th, 2005, 6:46am » |
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During almost my entier cluster cycle the cluster side of my face feels numb and swollen. Over time I also tend to hold the cluster eye open wider than the other. I've always chalked it up to inflamtion of the trigeminal nerve (the pain source in cluster). I can't say that I've ever had parallysis.
Can't rule out a mini stroke.
I'd get medical attention quickly.
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #17 on: May 4th, 2005, 7:20am » |
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hi bob,
I cant really tell if it's paralysis, it feels like i had just come from a bad dentist appointment....
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Bob P
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Re: is facial numbess & paralysis part of a CH
« Reply #18 on: May 4th, 2005, 9:43am » |
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I think we're probab;y talking the same thing.
As you can see here: http://www.clusterheadaches.org/library/general/trigeminal_pic.htm the orange/yellow trigeminal nerve branches to 3 areas, lower jaw, cheek/nose and forehead. This is the nerve that is the source of cluster pain. I figure after being irritated multiple times a day for days on end, it just becomes constantly inflamed causing the feeling you describe.
The first time a neuro sent me for an MRI was because the eye on the cluster side was larger than on the other. Nothing showed on the MRI. It's just because I hold it like that due to the constant swollen feeling.
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LeeS
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Re: is facial numbess & paralysis part of a CH
« Reply #19 on: May 4th, 2005, 1:08pm » |
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Could be a form of 'partial Horner's Syndrome' and hence 'relatively' normal for CHers, however:
Quote:| Symptoms of CH can also be caused through abnormalities caused by disease or injury. Any such circumstances reported by the sufferer, with the exception of sinking in of the eyeball, drooping of the eyelid or pupil constriction (known as partial Horner's Syndrome) warrants further investigation by the neurologist to search for potential organic causes. |
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I believe that if it is partial Horner's, then it will disappear over time.
-Lee
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Ghost
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Re: is facial numbess & paralysis part of a CH
« Reply #20 on: May 4th, 2005, 1:19pm » |
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I have had that happen at first I thought it was a stroke along with the ch but went to doc they couldnt find anything ... it did clear about 3 weeks later. hope you get lucky too.
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John_Booth
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Re: is facial numbess & paralysis part of a CH
« Reply #21 on: May 4th, 2005, 2:06pm » |
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I am no doctor. First thing that came to my mind after reading the orig. post was stroke.
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thomas
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Re: is facial numbess & paralysis part of a CH
« Reply #22 on: May 4th, 2005, 2:50pm » |
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There is an error in the big quoted thingamabob you put up there Gator. The reference to Horton's syndrome should read HORNER'S syndrom. Horton's syndrome is actually almost identical to CH as far as I can tell. Horner's is the droopy eye.
http://www.focalpress.com/companions/0240804155/headache/head1.htm
http://www.eyemdlink.com/Condition.asp?ConditionID=227
We need to be sure of what we are speaking in order to help, not harm. Our first mission as a support group here, should be to do no harm.
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| « Last Edit: May 4th, 2005, 2:55pm by thomas » |
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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aladinsane
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Re: is facial numbess & paralysis part of a CH
« Reply #23 on: May 4th, 2005, 5:30pm » |
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GREAT NEWS!!! My employer had agreed to move my medical insurance date to totaday (05-04-05) I am seing a DR @ 4:30 p.m. My condition remains the same, just came out of a CH attk ( still having leftovers) which lasted nearly 4 hrs, the pain was a Kip 8, I believe the beast is losing its steam...Thank a lot guys, youv'e all been wonderful
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| « Last Edit: May 4th, 2005, 5:33pm by aladinsane » |
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Bob P
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Re: is facial numbess & paralysis part of a CH
« Reply #24 on: May 4th, 2005, 5:39pm » |
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Quote:| lasted nearly 4 hrs, the pain was a Kip 8, I believe the beast is losing its steam |
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If that's losing it's steam, you're one tough sumnabeech!
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
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