Author |
Topic: chronic?????? (Read 370 times) |
|
HAMMERED
New Board Newbie
I love YaBB 1G - SP1!
Gender: 
Posts: 16
|
 |
chronic??????
« on: May 2nd, 2005, 9:55pm » |
 Quote  Modify
|
This is my fourth cycle with ch. The first two were 2 years apart. Number 2 and 3 where 2.5 apart and three and four were 3 years apart.
The first three lasted 4-6 weeks. This one is still with me for 10 weeks now. The last three weeks I have kip 3 and 4's, before that I had many 8 and 9's. I take 540mg verapamil and inject 2mg of trex when needed.
The big question is am i chronic?
Hammered
|
|
 IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
  
Gender:
Posts: 6458
|
|
Re: chronic??????
« Reply #1 on: May 2nd, 2005, 10:01pm » |
Quote Modify
|
1 yr or more without 30 consecutive PF days is how the IHS defines chronic.
It makes no difference to me...episodic/chronic.... the pain sucks...deal the best you can and don't worry about it!!!
you got a long way to go so just live and enjoy the moments!
E
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
HAMMERED
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 16
|
|
Re: chronic??????
« Reply #2 on: May 2nd, 2005, 10:20pm » |
Quote Modify
|
Thanks, I guess. I only have 9 and a half months to go and I too can say I am chronic.
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: chronic??????
« Reply #3 on: May 2nd, 2005, 10:24pm » |
Quote Modify
|
on May 2nd, 2005, 10:20pm, HAMMERED wrote:| Thanks, I guess. I only have 9 and a half months to go and I too can say I am chronic. |
|
Stop counting!!!!!
If it comes it does if not it doesn't..Don't let it rule you!!!
Best to ya and a PF night!!
Eric
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
HAMMERED
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 16
|
|
Re: chronic??????
« Reply #4 on: May 2nd, 2005, 10:47pm » |
Quote Modify
|
Yes, no counting.
What do most of you chronics do with meds. I mean, do you always carry a pouch of inject and or a tank in the trunk.......I do.
|
|
IP Logged |
|
|
|
Sean_C
Guest
|
on May 2nd, 2005, 10:47pm, HAMMERED wrote:Yes, no counting.
What do most of you chronics do with meds. I mean, do you always carry a pouch of inject and or a tank in the trunk.......I do. |
|
Me too 
|
|
IP Logged |
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
  
Gender:
Posts: 2217
|
|
Re: chronic??????
« Reply #6 on: May 3rd, 2005, 1:34am » |
Quote Modify
|
on May 2nd, 2005, 10:47pm, HAMMERED wrote:| always carry a pouch of inject and or a tank in the trunk.......I do. |
|
Yup. That's the ticket. Pocket triptans and canned air. Don't leave home w/o `em.
Unless you're feeling Lucky.
RJ
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: chronic??????
« Reply #7 on: May 3rd, 2005, 9:03am » |
Quote Modify
|
on May 3rd, 2005, 1:34am, Mr. Happy wrote:
Yup. That's the ticket. Pocket triptans and canned air. Don't leave home w/o `em.
Unless you're feeling Lucky.
RJ
|
|
Bingo.......
tanks decorating my house...the green blends in nicely with the houseplants 
Meds in every pocket and briefcase....
Even found an old statdose cartridge amongst my teaching supplies....not good for the kiddies to get into 
Always be prepared!!! unless you feel Lucky as Dirty Happy put it
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 2282
|
|
Re: chronic??????
« Reply #8 on: May 3rd, 2005, 11:29am » |
Quote Modify
|
on May 2nd, 2005, 9:55pm, HAMMERED wrote:| The big question is am i chronic? |
|
What in the world makes you think you are chronic?
Worry about that when it's been over a year, your still being hit five to six times a day with kip 10's.....and you've tried every med out there with no luck.
You sound very lucky to me.
Roxy 
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: chronic??????
« Reply #9 on: May 3rd, 2005, 1:53pm » |
Quote Modify
|
on May 2nd, 2005, 10:47pm, HAMMERED wrote:Yes, no counting.
What do most of you chronics do with meds. I mean, do you always carry a pouch of inject and or a tank in the trunk.......I do. |
|
Yup, except it's illegal to carry O2 in the trunk here. I carry it in the back seat on the passenger side so I can get to it quickly.
You may want to check with your O2 supplier to check if it's legal where you are to carry O2 in the trunk.
Oh, and quit worrying about going chronic. There are worse things. A lot can happen in 9 months. The disease is going to progress or not as it sees fit. You are worrying over something you have absolutely no control over. Don't borrow troubles, you have enough of your own. Live your life for today.
|
|
IP Logged |
|
|
|
thomas
CH.com Alumnus
New Board Hall of Famer
"Hit like a phillips head into my brain."
Gender:
Posts: 3281
|
|
Re: chronic??????
« Reply #10 on: May 3rd, 2005, 2:25pm » |
Quote Modify
|
Chronic, schmonick who cares? You are going to have short and long cycles, mild and severe cycles, and yes you may go chronic. But again, who cares? How you let CH affect your life is up to YOU and you alone. You can choose to let it rule your life, or you can be like most of us and fight the S.O.B. tooth and nail the whole way, never giving up. The choice is yours.
|
|
IP Logged |
Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: chronic??????
« Reply #11 on: May 3rd, 2005, 2:43pm » |
Quote Modify
|
I've been lucky and always had cycles less than 6 weeks. My Dad has had them all over the board, from a souple weeks to more than a year at a time. It is, as others have said, all over the board. And best not to focus on too much...
As for the statements that many make regarding the fact that they think they can handle being episodic, "but if I was chronic, I don't know what I'd do" Well, an extra long cycle will give you a chance to think about that and realize that those around are just as important during a long cycle as a short cycle, and that their love for you can carry you a long way.
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
BlueMeanie
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1178
|
|
Re: chronic??????
« Reply #12 on: May 3rd, 2005, 2:51pm » |
Quote Modify
|
Hi Hammered,
I understand your anxiety of being Chronic. Your cycles in the past where realitively short. At 10 weeks your closer to the norm of episodic cycles. Don't worry, they'll end. My last cycle lasted 18 weeks and many here have had cycles much longer, not counting Chronics.
As already mentioned, Chronic is a year long. I'm sure yours will be over much sooner than that. Take it one day at a time and try not to worry so much. Keep stocked on your Trex and 02 and you'll get through it.
Vibes to ya.
|
|
IP Logged |
|
|
|
Connie
New Board Junior
Gender:
Posts: 68
|
|
Re: chronic??????
« Reply #13 on: May 3rd, 2005, 8:56pm » |
Quote Modify
|
Routine, we never leave home without AX, trex and 02 in the trunk. I wonder if its legal here in NJ.
Sometimes a hassel when switching cars but well worth it if needed.
|
|
IP Logged |
Connie
|
|
|
purpleydog
CH.com Alumnus
New Board Hall of Famer
Posts: 2240
|
|
Re: chronic??????
« Reply #14 on: May 4th, 2005, 9:29pm » |
Quote Modify
|
on May 2nd, 2005, 10:20pm, HAMMERED wrote:| Thanks, I guess. I only have 9 and a half months to go and I too can say I am chronic. |
|
Quote: What in the world makes you think you are chronic?
Worry about that when it's been over a year, your still being hit five to six times a day with kip 10's.....and you've tried every med out there with no luck.
You sound very lucky to me. |
|
No worries.
Quote: Yup. That's the ticket. Pocket triptans and canned air. Don't leave home w/o `em.
Unless you're feeling Lucky. |
|
No kidding. I have one in every coat, jacket, desk, cabinets in every room, my truck, and one of my file cabinets at work. Be prepared.
Quote:| Chronic, schmonick who cares? You are going to have short and long cycles, mild and severe cycles, and yes you may go chronic. But again, who cares? How you let CH affect your life is up to YOU and you alone. You can choose to let it rule your life, or you can be like most of us and fight the S.O.B. tooth and nail the whole way, never giving up. The choice is yours. |
|
You got that right thomas. I've said it before, I refuse to let this fucker rule my life.
btw, "thomas", welcome back 
|
|
IP Logged |
|
|
|
thomas
CH.com Alumnus
New Board Hall of Famer
"Hit like a phillips head into my brain."
Gender:
Posts: 3281
|
|
Re: chronic??????
« Reply #15 on: May 5th, 2005, 12:39pm » |
Quote Modify
|
on May 3rd, 2005, 8:56pm, Connie wrote:Routine, we never leave home without AX, trex and 02 in the trunk. I wonder if its legal here in NJ.
Sometimes a hassel when switching cars but well worth it if needed.
|
|
Does "AX" mean axert? If so you must NOT take trex and AX in the same 24 hour period, unless of course you want to flirt with some major cardiovascular problems, ie death.
|
|
IP Logged |
Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
|
|
|
mynm156
New Board Hall of Famer
hope life isn't a big joke, because I don't get it
Gender:
Posts: 1708
|
|
Re: chronic??????
« Reply #16 on: May 5th, 2005, 1:19pm » |
Quote Modify
|
CHronics and drugs? Dont leave home without them.
|
|
IP Logged |
"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
|
|
|
Connie
New Board Junior
Gender:
Posts: 68
|
|
Re: chronic??????
« Reply #17 on: May 5th, 2005, 10:19pm » |
Quote Modify
|
Only card we carry, but I was trying to be funny.
Like the commercial used to say (not sure if its still around)
"American Express, don't leave home without it"
We have now expanded on it to include Imitrex and O2.
Hope I didn't say the wrong thing, like I did in another post "What's a typical day in the life of a chronic" Wouldn't want to offend anyone
|
|
IP Logged |
Connie
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
Gender:
Posts: 2217
|
|
Be chronic if you want, HAMMERED.
« Reply #18 on: May 5th, 2005, 11:38pm » |
Quote Modify
|
Funny how meanings change from state to state. When I take the AX along, she's usually sitting in the front passenger seat.
on May 5th, 2005, 10:19pm, Connie wrote:| Wouldn't want to offend anyone |
|
Heaven's no, lass. Not here.
RJ
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss