Author |
Topic: Just got back from the neuro....... (Read 471 times) |
|
gravelgirl
New Board Newbie
 
Gender: 
Posts: 36
|
 |
Just got back from the neuro.......
« on: Apr 22nd, 2005, 4:44pm » |
 Quote  Modify
|
Just got back from the neuro.......
Well, I just got back from my first trip to the neurologist. It was a woman I saw. And after talking to me, looking into my eyes, making me walk a straight line, touching my finger to my nose, etc… She concluded (or best guessed) that I am her second female patient with cluster headaches.
Damnit.
My first headache was 4/5/05 and the last one I got was this morning. She prescribed Imitrex nasal spray to take when one hits and Verapamil to take daily for prevention. She said that they generally occur around the equinox or time change.
Although she ordered an MRI for me she thinks that it’s clusters. I have to make an appointment Monday to be scheduled for an MRI and have a second visit to her in 3 weeks.
They gave me a list of foods to avoid including caffeine, chocolate, fermented bread and stuff, yeasty stuff, etc. She told me to quit my Red Bull addiction cold turkey for at least a month. ;(
I’m a girl! I’m 20! I have no history of headaches in my family! Why me?!?!?!
I don’t know how I’ll deal with this. Thank you for this outlet of help and information.
~Bris~
|
|
 IP Logged |
|
|
|
kimmeesue
New Board Old Timer
Gender:
Posts: 291
|
|
Re: Just got back from the neuro.......
« Reply #1 on: Apr 22nd, 2005, 5:01pm » |
Quote Modify
|
I personally would advise against giving up the rd bull cold turkey. You are loking at some major rebound headaches. A gradual tapering off would be easier.
Just my personal, unsolicited but experienced opinion.
Hope everything else works. Did she suggest O2?
Kim
|
|
IP Logged |
If I wasn't doing this I'd probably be doing something else.
|
|
|
gravelgirl
New Board Newbie
Gender:
Posts: 36
|
|
Re: Just got back from the neuro.......
« Reply #2 on: Apr 22nd, 2005, 5:03pm » |
Quote Modify
|
While she did mention O2, she also said come back in 3 weeks and we'll see whats going on.
I'm worried about the Imitrex. I don't take to nasal sprays real well.
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
 
Gender: 
Posts: 6458
|
|
Re: Just got back from the neuro.......
« Reply #3 on: Apr 22nd, 2005, 5:15pm » |
Quote Modify
|
DO NOT DO ANYTHING COLD TURKEY!!
You will get massive caffiene withdrawl HA.
I satrted going to NECH and Dr. Sheftell wants me to start fading out caffiene...but...because do I drink close to 1.5 pots a day.
We are systematically fading......1.5 >>1.25>>1>>.75 etc until I can get to be like Joe America and drink 2-3.
Also don't wait and see as far as O2...go call your doc and say you want that now.
It should be a priority as much as her giving you a triptan even used more if ya can.....no side effects really except maybe a dry mouth.
AS far as the trex...could ask for injections over the spray.
What dosage of verapamil? and did she give ya a roid to use as a transitional therapy while verapamil builds?
Talk to her again but at least sh e is closer on target then many of us experience at first.
Hang in there!!!!
E
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
bigAl
New Board Junior
Live long and prosper ... \\//
Gender:
Posts: 100
|
|
Re: Just got back from the neuro.......
« Reply #4 on: Apr 22nd, 2005, 5:29pm » |
Quote Modify
|
Cold turkey of a good healthy caffeine diet, and then Verapemil on top of that will certainly dry up your digestion REAL good. Better go for some prunes and a serious mix of salads and bran flakes or it's gonna hurt. Oh, ehh, well CH 'hurts', this other would just be a long slow bothersome afternoon, maybe. 
Just a suggestion...
|
|
IP Logged |
>>>------- >>>------- >>>------- Once I thought I was wrong, but I was mistaken.
|
|
|
gravelgirl
New Board Newbie
Gender:
Posts: 36
|
|
Re: Just got back from the neuro.......
« Reply #5 on: Apr 22nd, 2005, 5:36pm » |
Quote Modify
|
What dosage of verapamil?
80mg
and did she give ya a roid to use as a transitional therapy while verapamil builds?
nope
triptan????
Go easy on the abbreviations for the newbie....
~Bris~
picking up prunes on the way home....
|
| « Last Edit: Apr 22nd, 2005, 5:37pm by gravelgirl » |
IP Logged |
|
|
|
gravelgirl
New Board Newbie
Gender:
Posts: 36
|
|
Re: Just got back from the neuro.......
« Reply #6 on: Apr 22nd, 2005, 5:45pm » |
Quote Modify
|
I have one really big question.....
WHY ME???
Why you? Why us? Why anyone?
What causes these??? Why are they here for anyone to experience???? Whats the point????
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Just got back from the neuro.......
« Reply #7 on: Apr 22nd, 2005, 5:45pm » |
Quote Modify
|
on Apr 22nd, 2005, 5:36pm, gravelgirl wrote:What dosage of verapamil?
80mg
and did she give ya a roid to use as a transitional therapy while verapamil builds?
nope
triptan????
Go easy on the abbreviations for the newbie....
~Bris~
picking up prunes on the way home.... |
|
I've had these for yrs my friends but am a relative newbie to meds too.....only been this yr out of 10
Ok
80mg X how many or how often???? not once a day?
too low if your blood pressure and heart are fine....
unless the doctor's plan is to increase towards 480+
Something like prednisone used while your preventative is increasing to a therapeutic level
Triptans are the class of medications : Imitrex, Zomig, Relpax, Frova, Amerge.....
Cool Website!!!
Read and try to become more knowledgable then the docs so you can take control and get your pseudo boy-toy to help you get a hold of some Oxygen and someone here can help with the regulator probably if you ask for some help.
Hang in there Red bull
E 2
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender:
Posts: 26213
|
|
Re: Just got back from the neuro.......
« Reply #8 on: Apr 22nd, 2005, 5:53pm » |
Quote Modify
|
on Apr 22nd, 2005, 5:45pm, gravelgirl wrote:I have one really big question.....
WHY ME???
Why you? Why us? Why anyone?
What causes these??? Why are they here for anyone to experience???? Whats the point???? |
|
Why ask why?...theres no answer.
Focus on managing your pain, find what works for you and what triggers your head....then ask "why"
Ive been asking why for 30 yrs and still have not got an answer that satisfies me.
.......................jonny
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
hdido
Guest
|
|
Re: Just got back from the neuro.......
« Reply #9 on: Apr 23rd, 2005, 12:56pm » |
Quote Modify
 Remove
|
Just a FYI post-gravelgirl, the name that you sign off with, "bris", is the name of the Jewish ceremony when a male infant is circumcised!  
|
|
IP Logged |
|
|
|
gravelgirl
New Board Newbie
Gender:
Posts: 36
|
|
Re: Just got back from the neuro.......
« Reply #10 on: Apr 25th, 2005, 1:10pm » |
Quote Modify
|
on Apr 23rd, 2005, 12:56pm, hdido wrote:| Just a FYI post-gravelgirl, the name that you sign off with, "bris", is the name of the Jewish ceremony when a male infant is circumcised! |
|
Yeah I know.... My name is Bristol and I don't like using my full name. Bris is fine and I prefer it. Surprisingly most people don't know what a bris is or at least don't make the connection.
|
|
IP Logged |
|
|
|
hdido
Guest
|
|
Re: Just got back from the neuro.......
« Reply #11 on: Apr 26th, 2005, 12:05am » |
Quote Modify
Remove
|
Well, what can you expect from the Goyem?
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Just got back from the neuro.......
« Reply #12 on: Apr 26th, 2005, 12:44pm » |
Quote Modify
|
on Apr 26th, 2005, 12:05am, hdido wrote:| Well, what can you expect from the Goyem? |
|
Leave the new girl alone 
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
HAMMERED
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 16
|
|
Re: Just got back from the neuro.......
« Reply #13 on: May 2nd, 2005, 10:28pm » |
Quote Modify
|
Find another Doctor!! Nasal spray usually does not work. You should have O2
|
|
IP Logged |
|
|
|
Cooked Brain
New Board Old Timer
a.k.a. Max Payne, YOUCH this hurts...
Gender:
Posts: 411
|
|
Re: Just got back from the neuro.......
« Reply #14 on: May 3rd, 2005, 11:46am » |
Quote Modify
|
on May 2nd, 2005, 10:28pm, HAMMERED wrote:| Find another Doctor!! Nasal spray usually does not work. You should have O2 |
|
Have to disagree with you there hammer, nasal works for me 9 out of 10. Timing is crucial though. But of course still prefer the O2 when at home.
Hang in there Bris, we all do!
|
|
IP Logged |
"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: Just got back from the neuro.......
« Reply #15 on: May 3rd, 2005, 12:33pm » |
Quote Modify
|
Ditto - nasal Imitrex spray aborts for my husband 99.9% of the time. Overuse does cause more attacks though. Overuse for Mike is more than once a day. Twice a day will cause him probably double the attacks he would normally get.
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss