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Topic: 7% (Read 593 times) |
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maffumatt
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How many people here have family members with CH? The ones that can attribute Ch to hereditary factors, how many got it from the maternal side?
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sandie99
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Re: 7%
« Reply #1 on: Apr 17th, 2005, 10:00am » |
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I'm the only one in my family. That's why they don't get it... One of my great aunts did have migraine, but the others (lucky) don't even get HAs!
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pattik
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Re: 7%
« Reply #2 on: Apr 17th, 2005, 10:02am » |
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I had one great aunt (maternal side) who suffered greatly from headaches. But, it is impossible to say from the stories I have heard weather or not they were cluster or migraine. Back in those days, she was probably drugged into a stupor from narcotics by her docs for her relief. This was in the 1930"s and 40's. 
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maffumatt
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I have found two family members that could have Ch, both being on the maternal side. Both have passed now but they reported that it felt like their eye was going to explode. Sound familar? Also CH has had so many names that its hard to pinpoint what is what. One was diagnosed with histamine headaches ( that is CH right? ).
The reason I am asking is that we are expecting, and I was looking into the chances of me passing this crap on.
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| « Last Edit: Apr 17th, 2005, 10:15am by maffumatt » |
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Jonny
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Re: 7%
« Reply #4 on: Apr 17th, 2005, 10:29am » |
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Only one in my clan to battle the beast...and im glad its me rather than someone I love.
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Langa
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Re: 7%
« Reply #5 on: Apr 17th, 2005, 11:24am » |
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No one in my family that I know of...Thank God...
Langa
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nani
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Re: 7%
« Reply #6 on: Apr 17th, 2005, 11:52am » |
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My sister has ECH. Our mother had migraines. No other family history that I know of.
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TonyG1
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My uncle (mother's brother) had terrible headaches from the way my mother describes them -- don't know if they were clusters or not as he passed away when I was two. From her description in terms of things that would go on with his autonomic functions when he was having a HA --- it sounded a lot like cluster symtoms. My mother's twin sister has migranes. Other than that I can't think of anyone else in the family besides me.
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Marta
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Re: 7%
« Reply #8 on: Apr 17th, 2005, 1:40pm » |
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No, just little old me!
Marta
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samsara
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Re: 7%
« Reply #9 on: Apr 17th, 2005, 2:11pm » |
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I'm the only one in my fam too... my 10 year old daughter has been complaining of HA's that seem similar but different for the few months, but I can't pin it down. She gets them at the same time of day, they only last an hour or hour and a half, but they are not unilateral. And they seem to mostly be at the top of her head. Hmmm.. I'm thinkin just pre-pubescent hormones.
So, to answer... I'm the only one in my family that I am aware of.
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LMVK
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Re: 7%
« Reply #10 on: Apr 17th, 2005, 3:35pm » |
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My husband is the one who suffers from the Cluster Headaches.
His sister suffers from nasty migraines.
His father used to get seriously mean headaches that was always thought to be migraines. But, after talking to my mother-in-law, the symptoms sound a lot more like Cluster Headaches.
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BikerBob
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Re: 7%
« Reply #11 on: Apr 17th, 2005, 3:44pm » |
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My father's sister is a clusterhead.
Bob
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the_old_man
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Re: 7%
« Reply #12 on: Apr 17th, 2005, 5:52pm » |
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My mother had migraines. My oldest son has an occassional migraine. My daughter has migraines and so does her 9 year old son. I'm the only one in the family with ch, which makes it hard because they equate my ch pain with their migraine pain and think I just have a low threshhold of pain. It's actually the opposite because I battle the beast completely med free and O2 doesn't work for me to abort. Thankfully I'm out of cycle right now.
The Old Man
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pubgirl
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Professor Trembath, the man here doing the genetic research into CH will be reporting back at our annual conference in June, I'll let you know what he says.
As far as I'm aware he has the biggest "collection" (I know that is the wrong word) of blood samples from CH sufferers as he took them at what was at the time (maybe still is??) the largest get together of CH sufferers ever.
Hope he has come up with something worth reporting!
W
By the way maffumatt, I'm being dim but what is the 7% thing?
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purpleydog
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Re: 7%
« Reply #14 on: Apr 17th, 2005, 6:38pm » |
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I get them, my dad gets them, his mother used to get them, not in a few years, though, she is 83 now, and her mother, my great grandmother used to get them. Interesting.
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Ueli
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I have a sister with CH. No other relatives with any sort of headaches, including another sister and a brother.
Two of my uncles had a brain tumor in their thirties, does that count?
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Kevin_M
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Re: 7%
« Reply #16 on: Apr 17th, 2005, 7:42pm » |
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on Apr 17th, 2005, 6:19pm, pubgirl wrote:| By the way maffumatt, I'm being dim but what is the 7% thing? |
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It's fuzzy now but there was something mentioned in Nashville in the doctor's presentation of a figure like 7% or 8% of clusters had seemed to be hereditary.
Kevin M
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BarbaraD
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Re: 7%
« Reply #17 on: Apr 17th, 2005, 7:47pm » |
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My grandmother (paternal), my father and my son have migraines... But no one else has CH in our family,.
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Kris_in_SJ
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Re: 7%
« Reply #18 on: Apr 17th, 2005, 8:14pm » |
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I have a maternal aunt who gets Migraines. No CH history that I know of ... and I've done alot of questioning.
Kris
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BlueMeanie
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Re: 7%
« Reply #19 on: Apr 21st, 2005, 2:13am » |
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If I remember correctly, Kevin is right. In Nashville the doc said it was around 7-8% hereditary. We had 8 kids in our family. I'm the only lucky one to get CH's.  Mom had migraines.
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ArCane
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Re: 7%
« Reply #21 on: Apr 21st, 2005, 11:21am » |
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I have them, my father has them, my aunt (father side) has them, and my grandfather has them. It probably goes further back then that, but these are the only people I know for sure. CH seems to run strong in my family. If I have a kid it will be literaly like flipping a coin to see wiether or not they get it. My grandfather had 2 out of 3 kids have it and my father had 1 out of 2. The thing I want to find out is if my brother's kids will have them. This would mean that people that don't have them could still be carriers of CH. If this is true, this could be why people are the first ones in their family to get it. CH, in atleast my family, is hereditary.
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seasonalboomer
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Re: 7%
« Reply #22 on: Apr 21st, 2005, 11:36am » |
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My father is a clusterhead. It allowed me to quickly recognize what was happening when I got them too.
Going back further there were a series of public stonings, on my father's side, something about "the SIGN OF THE BEAST in his right eye!" Each time my ancestor would kept asking the people throwing stones to aim better, "right here above my my cheek!" they'd yell. Glad that the neuro's finally diagnosed them as something other than "diablo's eye", or the curse of the "evil eyeball".
Disclaimer: I frequently digress into stories filled with mendacity. This is one of those times.
Scott
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Judge_Smails
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Re: 7%
« Reply #23 on: Apr 21st, 2005, 3:49pm » |
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2 brothers with occasional migrains as well as 2 or 3 cousins. But no CH as far as I know.
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Braindead
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Re: 7%
« Reply #24 on: Apr 21st, 2005, 5:02pm » |
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No one else in my family. Just the lucky one- ME 
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