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Topic: Sleep studies? (Read 306 times) |
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kimmeesue
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Sleep studies?
« on: Apr 6th, 2005, 3:35pm » |
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Saw my neuro yesterday. He upped my Topamax, dis continued Tramadol and prescribed Fiorinol. My memory is shot ( I had to go back to the bedroom twice before I could get fiorinol down here  ) and scheduled me for a sleep study. Has anyone else had a sleep study done in connection with clusters? Is this just another grasping at straws? Since adding melatonin to my arsenal I am sleeping most nights (pretty weird dreams though) but wake to stronger shadows. My neuro seems to think this waking to the shadows is related somehow to a sleep disturbance. Sound familiar to anyone? I don't have the study til the 21st so have plenty of time for input.
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mynm156
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Re: Sleep studies?
« Reply #1 on: Apr 6th, 2005, 3:48pm » |
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Yes I believe that more than a few of us have had sleep studies. I have had them and I do have moderate obstructive sleep apnea. I am forced to use CPAP at night. This hasnt had any real effect on my Clusters but it has decreased my morning headaches that I figured were shadows.
MYNM156
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Gator
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Re: Sleep studies?
« Reply #2 on: Apr 6th, 2005, 4:58pm » |
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Yup, did the sleep study thing. Problem was I am a raging insomniac. The next morning I heard my tech outside my door saying, "Mine never did go to sleep." They believe I have apnea, but didn't have enough time to evaluate whether the CPAP would be effective.
They want me to come in for a second study. Hell, I still owe them $300 from the first one. Not gonna happen any time soon.
Some doctors believe sleep apnea could contribute to CH, especially the night time attacks. Many here have had sleep studies. From what I remember, some of the people using the CPAP said it helped with the night time attacks, but did nothing for the daytime ones. At the very least being able to sleep through the night would allow you to be more alert and able to handle any hits during the daytime. Give it a shot.
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Bob P
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Re: Sleep studies?
« Reply #3 on: Apr 6th, 2005, 6:11pm » |
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Clusters cause sleep apnea.
Clusters, smoking, drinking are all caused by the same malfunction in our noggin's.
That's my story and I'm sticking to it.
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kimmeesue
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Re: Sleep studies?
« Reply #4 on: Apr 6th, 2005, 6:39pm » |
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So to paraphrase Shirley McClain in Steel Magnolias "I'm not a bitch, I've just had cluster headaches for the past 30 years."?
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eyes_afire
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Re: Sleep studies?
« Reply #5 on: Apr 6th, 2005, 6:47pm » |
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on Apr 6th, 2005, 3:35pm, kimmeesue wrote:| Has anyone else had a sleep study done in connection with clusters? |
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Yes... sorta... I had both the overnight and MSLT studies. Before being diagnosed with CH, I was having some other bizarre symptoms... of course at the time I thought they were all related (and in a way, they all may contribute to each other...). So I had a sleep study hoping we would find a reason for the horrible headaches. No apnea. However, I didn't do so well on the MSLT. Result: I still get CH. It was probably another year later that I got an official CH diagnosis.
--- Steve
BTW... Tramadol (Ultram) is one of the most worthless meds I've ever taken. I can't even understand how it can possibly kill pain. All it does is put me to sleep and give me a migraine.
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Redneck
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I did the sleep study 10 or 12 years ago. Moderate sleep apnea. Did the cpap for about a year, killed my sinuses. Didn't do anything for the CH, at least for me. Started back on the cpap a year ago, still got CH but not as damn tired in the morning. I cant use the cpap in the peak of a cycle, seems to trigger more nite attacks. As always "everyone is different"
I did just find out an SCBA and level B chem suit is a damn good trigger also 
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Kris_in_SJ
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Re: Sleep studies?
« Reply #7 on: Apr 6th, 2005, 8:39pm » |
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I certainly wouldn't think it would hurt to have the sleep study done, but how it would help, I don't know.
Chances are that since taking the Melatonin, you're delaying the beast's visit until morning, which is why you're waking to fairly hard shadows. The CPAP results above aren't very encouraging, are they? And, chances are, if you have some sleep apnea, that's what would be prescribed.
BTW - Be careful of the Topomax. That's why you're being forgetful most likely. And, I'm sorry to say that Fiorinal probably won't help much and might cause some rebound HA's.
Hang in there!
Kris
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Bob_Johnson
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Re: Sleep studies?
« Reply #8 on: Apr 7th, 2005, 7:44am » |
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: Headache. 2004 Jun;44(6):607-10.
Obstructive sleep apnea and cluster headache.
Graff-Radford SB, Newman A.
The Pain Center, Cedars Sinai Medical Center and UCLA School of Dentistry, Los Angeles, CA 90048, USA.
A patient with cluster headache often wakes from sleep. The relationship to sleep apnea has been described. This study sought to confirm the relationship cluster may have with sleep apnea. METHODS: Thirty-nine consecutive patients diagnosed with episodic cluster headache according to the International Headache Society (IHS) criteria were sent for polysomnographic studies. All patients were in an active phase when they were in the study. Patients were told of the proposed relationship and were allowed to choose a sleep laboratory close to their home. RESULTS: Thirty-one patients with episodic cluster headache completed an overnight polysomnographic study. Twenty-three were male and eight female. The average age was 51 years (range 33 to 78 years). The average weight was 173 pounds (range 117 to 260 pounds). A total of 80.64% had sleep apnea (25/31). Average respiratory depression index (RDI) was 19.0 (SD 14.6) with 6 patients having no apnea, 10 having mild, 11 having moderate, and 4 having severe apnea (RDI < 5 = none; RDI 5 to 20 mild; RDI 20 to 40 moderate; RDI > 40 severe). Oxygen saturation decreased on average to 88.4% SD 4.5. Sleep efficiency was 76.2% (SD 13.4). CONCLUSIONS: The data closely approximate those of Chervin et al, where 80% had RDI > 5. The relationship sleep apnea has in the perpetuation or precipitation of cluster headache is still to be determined. There are some reports that treatment stops the cluster but there is no prospective study. The high incidence (80.64%) seen in this population suggests the cluster patient should receive a sleep evaluation and perhaps intervention with continuous positive airway pressure (CPAP) or an appropriate dental device.
PMID: 15186306 [PubMed - indexed for MEDLINE]
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BobG
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Re: Sleep studies?
« Reply #9 on: Apr 7th, 2005, 8:34am » |
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My son was diagnosed with sleep apnea. He's never had a headache in his life. He got one of those CPAP machines.
Now his wife gets headaches from the noise of the dammned machine.
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kimmeesue
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Re: Sleep studies?
« Reply #10 on: Apr 7th, 2005, 12:09pm » |
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My sleep cycle was totally whacked last night. Don't know if it was the extra topamax or change in the weather or who knows what but I was awake about every 30-45 minutes. HAd a constant throbby pressure but no pain. Woke to same shadows which by late morning have left me for the first time in weeks but I feel kind of hung over, dull ache in back of head. Weird. Funny, when you get used to the same retched mess a new retched mess is somehow disconcerting 
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mynm156
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Re: Sleep studies?
« Reply #11 on: Apr 7th, 2005, 2:52pm » |
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on Apr 6th, 2005, 6:47pm, eyes_afire wrote:
BTW... Tramadol (Ultram) is one of the most worthless meds I've ever taken. I can't even understand how it can possibly kill pain. All it does is put me to sleep and give me a migraine. |
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Yeah I was given about 200 of those by one of those Pill pushers. Didnt do squat! My son ended up usoing them for an ankle injury.
HAHAHAHA
MYNM156
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lionsound
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Re: Sleep studies?
« Reply #12 on: Apr 7th, 2005, 7:32pm » |
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I had a sleep study done that was ordered my my neuro a few years ago. He really didn't think it would reveal much, but it he did it on the interest of covering all bases before he moved on to medicating me for something that might have been solved by treating a simple sleep issue.
Funny thing is I have can have horrible nightmare filled sleep and they said that I was a model of REM sleep. Go figure. Nothing neuro or otherwise showed up.
good luck! Let us know how it turns out.
PF's,
-lionsound
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mcf69
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Re: Sleep studies?
« Reply #13 on: Apr 7th, 2005, 11:36pm » |
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I think a sleep study is a good idea if you suffer mostly night time attacks. I went in for a sleep study a couple weeks ago, my doc thinks there may be a link between my night time attacks and apnea. To make a long story short, I ended up not doing the study because I found out I'd have to do 2 nights, with no insurance, that would have added up to $3600 out of pocket. I went back to the doc, explained the situation to him and he prescribed me an auto-cpap, it basically tracks your apnea events through the night and adjusts the pressure to overcome them when they occur, all the while storing the data on a card for review. I'm not in cycle, so I don't know what effect the cpap is going to have on the clusters, but I have been waking up feeling more refreshed with no morning headaches like usual. I've done quite a bit of research and think that apnea may be a trigger while in cycle for nocturnal attacks, but as for daytime hits I'm not quite so sure. Best of luck with your study.
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Gator
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Re: Sleep studies?
« Reply #14 on: Apr 10th, 2005, 3:47am » |
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on Apr 6th, 2005, 6:47pm, eyes_afire wrote:
BTW... Tramadol (Ultram) is one of the most worthless meds I've ever taken. I can't even understand how it can possibly kill pain. All it does is put me to sleep and give me a migraine. |
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It doesn't even do THAT for me. 
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eyes_afire
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Re: Sleep studies?
« Reply #15 on: Apr 10th, 2005, 11:19am » |
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on Apr 10th, 2005, 3:47am, Gator wrote:
It doesn't even do THAT for me.
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Gator, sorry to hear of your continuing sleep problems. I'm lucky that I don't have any problems falling asleep (staying asleep is another matter)... it must be frustrating beyond belief.
I meant the sleep side effect thing to be a negative thing because it can cause me problems (especially since I didn't fare too well on my MSLT). Same reason why I don't take benedryl and anti-histamines. Stimulants are my friend.
Anyway, if I'm gonna feel that shitty on Tramadol, it better at least be a schedule II, LMAO (it's actually not even a controlled substance).
--- Steve
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