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Topic: Do you grow out of CH? (Read 472 times) |
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Marta
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Do you grow out of CH?
« on: Mar 31st, 2005, 8:07am » |
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When I was younger I was told I would grow out of CH in my30s. Now I've started my 40s and I still have these killer clusters. If anyone knows please let me know.
Hope your CHs aren't giving you too much of a had time today.
Pajak
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nani
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Re: Do you grow out of CH?
« Reply #1 on: Mar 31st, 2005, 8:23am » |
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Some people do. Some don't. Some don't start getting them until later in life. That's the thing about CH. Everybody's different. I hope it's true for me. I've had them for 32 years (since age 16).
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Ruth
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Re: Do you grow out of CH?
« Reply #2 on: Mar 31st, 2005, 9:08am » |
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I would love to believe that someday I will grow out it, but I am with Nani, it has been 35 years and they still manage to find me.
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javi_spain
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Re: Do you grow out of CH?
« Reply #3 on: Mar 31st, 2005, 12:26pm » |
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Hi there
I have heard (or most likely read), that CH become less frequent after your fifties.
I dont know whether or not that has any basis... can anyone confirm?
Kind regards
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maureen
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Re: Do you grow out of CH?
« Reply #4 on: Mar 31st, 2005, 12:33pm » |
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that is so sad to hear I'm into 20 yrs with it and up to this point was looking forward to menopause with the thought maybe I could lose the beast, just gonna have to be one of those scarey old cat ladies and scare em away.  If only it were that easy
Take care all,
Maureen
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EvertBoer
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Re: Do you grow out of CH?
« Reply #5 on: Mar 31st, 2005, 6:43pm » |
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In answer to the question whether CH's diminish when you hit your fifties. In my case a resounding yes. And I have read posts by other older CH sufferers on this board that mirror mine. When I hit my forties (started at age 19), I started having cycles every 2 years or so, instead of every year. Now I'm in my fifties, and am having up to 5 years between episodes. The episode also lasts longer (7 months instead of 2 or 3 months), but the HA's are not as bad, or at least more easily abortable.
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eyes_afire
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Re: Do you grow out of CH?
« Reply #6 on: Mar 31st, 2005, 7:06pm » |
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Wishful thinking. Probably not. It's time to kill Santa Claus. There are enough people here and in the medical literature that are much older and still have CH (even past their fifties). If you 'grow out of them', consider yourself lucky and not part of the norm.
As you get older, there may be an increased likelihood of having longer remissions... but then again, maybe not.
--- Steve
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Grandma_Sweet_Boy
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Re: Do you grow out of CH?
« Reply #7 on: Mar 31st, 2005, 7:12pm » |
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Wishin' I could tell you that you'd grow too old to have them - sadly I don't believe it's truem or at least not for me.
I can give you this though - I've been known to skip a cycle here and there but I found the intesity of them was more as I got older.
Good luck!
Carol
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| « Last Edit: Mar 31st, 2005, 7:13pm by Grandma_Sweet_Boy » |
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Giovanni
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Re: Do you grow out of CH?
« Reply #8 on: Mar 31st, 2005, 7:19pm » |
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My doc told me that she had patients in their 70's with active clusters. I'm 58 and have them under control with the alternative treatment.
BTW, didn't know that CHers would live that long!! 
John
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jokrs2
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Re: Do you grow out of CH?
« Reply #9 on: Apr 1st, 2005, 12:58am » |
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Unfortunately for me, (I'm like Nani). They started at 14 and I'm 48 now and I get hit 6 times a day like clockwork. My wife is now in menopause and I don't know how she's getting through it. They diagnosed possible gall stones today and she is scheduled for ultrasound first thing in the morning. And then there is the uncontrollable itching thing WTF. The beautifully mature ladies got it rough, (just when I've learned that they are always right) . I'm glad my wife doesn't have CH, but if I could I would take all of her suffering and put on me...she's my supporter  . Sorry about that, back to the subject. Like the lyrics from Rush "Presto"... If I could wave my magic wand, I'd make everything alright. Praying for a miracle to stop the demon. Best wishes, Joe
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Mr. Happy
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Re: Do you grow out of CH?
« Reply #10 on: Apr 1st, 2005, 1:35am » |
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I've outgrown shoes, underwear and flannel shirts, but I haven't outgrown CH. How old is old enough?
Curséd be my luck.
RJ
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Kevin_M
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Re: Do you grow out of CH?
« Reply #11 on: Apr 1st, 2005, 1:53am » |
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on Mar 31st, 2005, 7:06pm, eyes_afire wrote:| There are enough people here and in the medical literature that are much older and still have CH (even past their fifties). |
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Heeeey. That "much older" comment is... close to home Steve and spoils my denial of such true facts.
it still happens... oh, the CH.
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| « Last Edit: Apr 1st, 2005, 8:36am by Kevin_M » |
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The mad viking
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Re: Do you grow out of CH?
« Reply #12 on: Apr 1st, 2005, 2:04am » |
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nobody cant take that hope away from you
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Bob P
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Re: Do you grow out of CH?
« Reply #13 on: Apr 1st, 2005, 10:06am » |
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It is said that many outgrow clusters in middle age.
For me, I go along with Evert. I started at age 20 and am now 54. When I turned 40 mine went from a 6 week cluster every 8 or 9 months to an 8 to 16 week cluster every 2 years. Each remission gets a few months longer, the last one being 3 years and 3 months long. I am currently in a cycle but the attacks are 2 to 6 on the Kip scale and only last 10 to 15 minutes (that may be due to age, shrooms or kudzu, not sure).
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Sophie
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Re: Do you grow out of CH?
« Reply #14 on: Apr 1st, 2005, 10:17am » |
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I started getting CH in my early to mid 40's. So, now I'm in my early 60's. The CH is still here.
hazel eye female-------Sophie
it just goes to show you---anything is possible!
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AND WHY AM I IN THIS HANDBASKET?
Cluster Buster
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pattik
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Re: Do you grow out of CH?
« Reply #15 on: Apr 1st, 2005, 11:27am » |
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on Apr 1st, 2005, 1:53am, Kevin_M wrote:
Heeeey. That "much older" comment is... close to home Steve and spoils my denial of such true facts. |
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 ditto! Still getting them in my 50's, although more time between episodes than the yearly visits in my 40's.
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sandie99
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Re: Do you grow out of CH?
« Reply #16 on: Apr 1st, 2005, 12:53pm » |
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I sure hope I will... I'll be 25 soon and I've had CH since 2001.
My neuro did tell me to prepare that I'll be living with CH for the rest of my life... We'll see about that.
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Ouch
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Re: Do you grow out of CH?
« Reply #17 on: Apr 1st, 2005, 4:33pm » |
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In the words of my Dr. on my last visit....."this is something you grew into and something you will hopefully grow out of". I just hope he's right.
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Sean_C
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Re: Do you grow out of CH?
« Reply #18 on: Apr 1st, 2005, 8:38pm » |
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on Apr 1st, 2005, 1:35am, Mr. Happy wrote:| I've outgrown shoes, underwear and flannel shirts |
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Who are you shittin', men don't out grow underwear. They have to throw them away because they have holes in them or they're so stretched out your ol' lady throws them away because she's sick of tellinn ya your balls are hangin out again.
Sean.......................................
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pam s
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Re: Do you grow out of CH?
« Reply #19 on: Apr 3rd, 2005, 1:34pm » |
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I used to get mine every two years -- but once, 4 yrs. The last few years it's been 3 years. However, due to trex, the episodes have extended from 2 to 6+ weeks. I guess that's an improvement, maybe.
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Pam
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Jonny
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Re: Do you grow out of CH?
« Reply #20 on: Apr 3rd, 2005, 6:12pm » |
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Trex causes rebounds....dont let anyone shit you and tell you different!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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TxBasslady
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Re: Do you grow out of CH?
« Reply #21 on: Apr 3rd, 2005, 11:31pm » |
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on Apr 3rd, 2005, 6:12pm, Jonny wrote:| Trex causes rebounds....dont let anyone shit you and tell you different! |
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Right on....jonny 
I didn't even get CH till my 50's......WTF? 
I'm convinced I will have to deal with them from now on.
Just remember...everyone is different. T'would be great if the CH ended for all of us. I will always hold on to the hope that it will end....if not for me, then hopefully for some of my clusterbuds.
Jean
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mynm156
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Re: Do you grow out of CH?
« Reply #22 on: Apr 4th, 2005, 12:49am » |
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Mine seem to get worse with age. I just went chronic this year. Its been over a year that I have these every week two-three days a week.
Good Vibes
MYNM156
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