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Topic: CH on job (Read 515 times) |
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Edu_Martins
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...just a fear of sleep...
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How do you deal with co-workers, boss and job? I mean, they see you suffer the attacks, they see you taking some unusual medicines, like O2, injectable stuff...
I have a side effect of verapamil that causes me a bit of trembling, as i could see. My co-workers and friends are having fun of that, of course.  Unfortunatly, that's not the ideal life i wanna have.
I dont had any problem here, but im victim of some jokes. I dont think thats too much different to some people here. Am i wrong?
That kind of disease can make lots of differences, as i can see clearly now:
1. On work, at least with me, my boss know about my headaches and let me go to home when i have CH on work, but its a bit rare.
2. Your social life is modifyed, as you cant drink anymore (at least me). Many of friends of mine thinks thats strange, causa i always drunk a bit of beer.
3. Your private life is modifyed too. I have a big O2 tube in my room. I have to explain to everyone what the f**k is that thing and listen all the thoughs about it, like "do you tried another doctor?".
4. When i have crisis, im always tired. I have lots of bad humor and THAT affects a lot to me. I cant control myself sometimes.
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[]s Edu Martins
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davidj35
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Re: CH on job
« Reply #1 on: Feb 10th, 2005, 7:08pm » |
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I try to educate them. I have shown anybody at work who questions me about my O2 tank this web site. I ask them to read the opening and then ask questions. It has helped a bit but they still don't totaly get it. My friends do tease me about the tank but I take it as just that. Good luck.
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Edu_Martins
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...just a fear of sleep...
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Re: CH on job
« Reply #3 on: Feb 10th, 2005, 10:20pm » |
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on Feb 10th, 2005, 7:49pm, vig wrote:http://www.clusterheadaches.org.uk/home/index.cfm?address=../clusters/note_colleagues.cfm&added=04/01/04&code=CB
You can print this one out and give it to friends and colleagues. It's from the Ouch UK site.
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Very interesting text. Some of the stuff related there happens with me, like avoid people seeing me on crisis. Its a shame, but i cant agree with that. I hate people who asks me what they can do, as i know they can do nothing about it...
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sandie99
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Re: CH on job
« Reply #4 on: Feb 11th, 2005, 10:57am » |
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It's good that your boss knows. That's important. As much as your boss and colleagues know about how CH operates and how much impact it has on you when you're at work, the better.
It's true that CH causes some changes in your life, but don't let it control it complitely. Do things INSPITE of it. I've tried that and most of the time it works.
Good luck!
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CH happends, Live anyway! PF days to us all!
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"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Jeepgun
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Re: CH on job
« Reply #5 on: Feb 11th, 2005, 11:36am » |
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I either seduce then blackmail the women, shove the men down the stairs, or else decide to get REALLY mean, and come up with more devious means of.... er.... What was the question? 
Two of the people I work with have wives who have migraines, so they are both quite sympathetic to the fact that I have severe headaches.
-Frank
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BMoneeTheMoneeMan
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Re: CH on job
« Reply #6 on: Feb 11th, 2005, 8:58pm » |
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Hey, you mentioned that the verapimil give you tremors? Is that normal?
I am only on 180mg of verapimil and have noticed lately that I have the shakes pretty bad. Sometimes, I tremble so bad that I cant read from a paper that I am holding. Is that normal when on verapimil?
thanks for any help
PF wishes to all
BMonee
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"
Think of how stupid the average person is, and then realize half the population is stupider than that.
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Jeepgun
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Re: CH on job
« Reply #7 on: Feb 11th, 2005, 11:06pm » |
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I noticed, last cycle, that the Verapamil totally SCREWED my fine motor coordination. I play piano, type over 100 wpm, and do a lot of work with my hands that requires a sure, steady hand. (Get your minds out of the gutter: I work as a machinist at times, among other things. ) I also noticed my short-term memory being worse than usual.
-Frank
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| « Last Edit: Feb 11th, 2005, 11:06pm by Jeepgun » |
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Her: "Have you ever hit a deer?"
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Wendy1
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Re: CH on job
« Reply #8 on: Feb 11th, 2005, 11:27pm » |
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When I worked full time (6 yrs ago) I was lucky (oxymoron) enough to only have them during the night, so my worst effect at work would be a Demerol hangover, which wasn't all that bad.
My sincere sympathies to everyone who has to deal with these on the job! I have a job now that if I had a h/a, I would be able to just get up and leave. I just don't know what I would have done if I had to explain it all to my former coworkers.
Hang in there.
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BarbaraD
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Re: CH on job
« Reply #9 on: Feb 12th, 2005, 9:05am » |
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E,
This is an ongoing problem with CHers. Our lives are changed by the darn things, but you just have to build up a sense of humor, let everyone know to get the hell out your way when you get hit and do the best you can.
But the sad part is that you're not alone. We all go thru (or have gone thru) exactly what you described. When I was episodic, I never got used to it, but after I went chronic (in 97) I've just built up a shell that says - this is how I am - I can't do a damn thing about it so accept it or go away!
I get violent if anyone touches me during an attack. Not intentionally, but just don't touch me. People who are around me a lot KNOW this and stay out of my way. Anyone who doesn't is warned (in a loud voice most of the time) and heaven help them if they don't pay heed to the warning. We make jokes about this at the office and new employees are warned that if my eye starts swelling shut to close my door and DO NOT get near me.
It's just something we live with and have to accept. Our social lives are curtailed to a certain extent and that we live with that too.
The hard part is learning to live with our disability and do the best we can. I think we go thru the 5 stages (you know, anger, ........ acceptance) and when we reach the acceptance stage we do a lot better.
Anyhow that's just my 2 cents on the subject. Good luck at work....
Hugs BD
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Edu_Martins
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...just a fear of sleep...
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Re: CH on job
« Reply #10 on: Feb 14th, 2005, 11:22am » |
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Barbara,you could describle almost exactly what i desire here on my job.
I can go away from here if i got a hit, but its pretty boring to me to have a hit and just leave my work here and go home. I dont accept this stuff.
What im trying here is to let people know what i have (the disease) and know that is a f****ing pain. I think they will understand correctly when they see my face, with my right eye almost on bloody red.
A coworker here usually do boring jokes about my trembling problem, propably due to the use of verapamil. I dont like it, but im simply trying to ignore that idiot.
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Wendy1
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Re: CH on job
« Reply #11 on: Feb 15th, 2005, 11:17pm » |
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My closest friends and family know I have clusters, and know I have pain, bad enough to go to ER, however, seeing me in action with one is a whole different ball game. Scares the shit out of them.
I would prefer to run as fast as I can to ER or home or O2. GOSH I HATE THESE THINGS!!!!
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De_Minimis
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Re: CH on job
« Reply #12 on: Apr 8th, 2005, 12:18am » |
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I printed out the OUCH information and gave it to my boss. My only concern is that I'll be in a jury trial and I'll get hit. If I don't have a pinch-hitter to come take over for me, game over. I'll have to walk away. Then I worry that if that happens, for example, that person I was prosecuting then goes out, gets drunk again and runs over some kid because he/she got a pass before because of this stupid condition. Other than that, I've told those around me that if I close my door, to just stay away as I don't want them to see me going through this and there is nothing they can do, but I apreciate their concern.
Other hassle is I go to school half-time at night (because undergrad and law school weren't enough I guess). Haven't made a single class this quarter yet because of this. I just ain't got noth'n left.
So, in a nutshell, educate those that you need to. They will either understand and, in turn, will earn your respect. If they don't, then f 'em as they're self-centered jerks.
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| « Last Edit: Apr 8th, 2005, 12:19am by De_Minimis » |
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bigAl
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Re: CH on job
« Reply #13 on: Apr 8th, 2005, 7:00am » |
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on Feb 11th, 2005, 11:36am, Frank_W wrote:| I either seduce then blackmail the women, shove the men down the stairs, or else decide to get REALLY mean-Frank |
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Have you tried voodoo dolls?
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sandie99
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Re: CH on job
« Reply #14 on: Apr 9th, 2005, 3:01am » |
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Al, I'm trying to decide whether that voodoo doll is cute or just plain scary... 
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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De_Minimis
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Re: CH on job
« Reply #15 on: Apr 9th, 2005, 4:53pm » |
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You mentioned the beer thing too. Today, my old college is in the NCAA Hockey finals against the weak and lame Denver. Friends are coming over to watch the game (slaughter) in a couple of hours. They will be enjoying the finest hops to be found. Me, unless I want to be screaming in uncontrollable pain within 45 minutes, will be drinking water and Diet Coke. Oh god, why do you torment me so?? (you have to picture me shaking my clenched firsts towards the sky for the full effect). The pain, the placing my life on hold for approx eight weeks, the embarrassment and isolation would all be a little more manageable if only there was beer. Sweet golden nectar, oh how I miss thee..
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De Minimis
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Langa
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Re: CH on job
« Reply #16 on: Apr 9th, 2005, 5:21pm » |
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on Apr 9th, 2005, 3:01am, sandie99 wrote:| Al, I'm trying to decide whether that voodoo doll is cute or just plain scary... |
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Exactly...it's almost both at the same time...LOL
Edu, I printed the information on the link Vig posted and handed it out to friends, co-workers and even relatives a while back. It works. I'm blessed that I have a very understanding boss. He'll either lemme go to my car to use the 02 or trex when I needed it. Sometimes it's really hard to get back into work mode after a hit (sometimes I just can't and go home), but you learn to plug through.
CH is a part of our lives and we have to learn to live around it, not stop living...I had to learn that the hard way...
I have a huge tank of 02 in my bedroom too...I know THAT feeling of having to explain.
I can't drink either, and after all these months I don't even miss it...
It's all a matter of adjusting and doing the best you can with what you have.
Hey, at least you know we can all relate to what you're going through.
Hugs,
Langa
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