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Topic: Looking for stats... (Read 4681 times) |
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Versilleus
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Looking for stats...
« on: Jan 2nd, 2005, 3:27am » |
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Hello everyone,
Happy New Year! Hope everyone has a pain-free free
Now for my question. I am looking for some information on
1. What percentage of people suffer from clusters?
2. What is the suicide rate of cluster sufferers?
The only information I can find for #2 is that there is an increased rate. To make that assumption there must me some statistac evidence to show this. Being a chronic I can definately understand why a sufferer would do that. Its too bad someone has too be in that amount pain to consider it.
Paul
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don
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Quote:| The only information I can find for #2 is that there is an increased rate. |
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Where did that come from?
28 years of CH and I have never known nor heard of anyone committing suicide soley due to clusters.
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| « Last Edit: Jan 2nd, 2005, 8:52am by don » |
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unsolved1
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(1) Between .1% - .3% of the population suffer from CH
(2) No known published statistics on suicide rate. I was told that it was as high as 40% before Imitrex came out. But that is hear say and not fact. Plz don't quote me on that one.
Unsolved
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justin
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what it is...
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Re: Looking for stats...
« Reply #3 on: Jan 2nd, 2005, 2:16pm » |
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my neuro has told me half of one percent of the US population have cluster headaches. that should put the number around 1 million in the US alone. the same number of people who have MS
as for suicide...i've read of one case. but don't know how accurate the source was. i've never heard first hand of anyone taking their life, although the thought has crossed the minds of most of us at some point which is scary enough i think.
j
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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Sean_C
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Just curious, why has this question been posed upon us?
Sean.........................
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toolong
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Re: Looking for stats...
« Reply #5 on: Jan 3rd, 2005, 4:59am » |
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Suicide is if anything more associated with depression than the CH.I've done an ton of research on CH and seen doc after doc.Not much has ever been mentioned about suicide.If it is an obsession with you I think you should speak with you doc about it.When the deamon hits me and he is a frequent visitor,I never consider suicide,but just the next PF moment.Good luck.  David
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Hey,watch this!I saw it on a cartoon and I think it might work!
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unsolved1
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Hey wait ... there was a lady who came here awhile back that wanted to be a supporter because of her good male friend who took his life because of CH. Is she still around ?? I forgot her screen name 
Unsolved
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Versilleus
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Re: Looking for stats...
« Reply #7 on: Jan 4th, 2005, 2:35am » |
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No suicide is not an obsession and before judgement is past on me I do not suffer from suicidal behaviour. I realize talking suicide is a touchy subject.
The reason am curious is because of what actually mentioned in a post. The act of suicide is labelled caused by depression; not by the root cause of indivuals sufferering from chronic pain. I'm not talking about depression causing pain. A suicideoligist I was reading last summer, I'll double check the book name later, suggested more people commit suicide due to the long term pain than is previously thought. Especially when final notes are deduced. The main reasons being the depression associated with those afflictions and the beliefs no one commits suicide from pain.
Anyways the main reason is was hoping to show cluster headaches can be more serious than people want to believe.
I have appreciated the information so far any more would be great.
Paul
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vig
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Re: Looking for stats...
« Reply #8 on: Jan 4th, 2005, 9:31am » |
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1. The standard rate in the books/internet is 69/100,000. (see www.clusterheadaches.com  )
2. the suicide rate at my house is 0. and will remain that way.
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never, Never, NEVER quit. -Winston Churchill
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don
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I might be wrong but I dont think this is accurate.
Quote:| good male friend who took his life because of CH. |
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If I remember correctly there was a lot of other stuff going on with that guy other than CH.
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Pinkfloyd
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Re: Looking for stats...
« Reply #10 on: Jan 4th, 2005, 7:28pm » |
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on Jan 2nd, 2005, 3:27am, Versilleus wrote:2. What is the suicide rate of cluster sufferers?
Paul |
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I once spoke with Dr. Lee Kudrow who had seen as many or more cluster patients than anyone. He stated he didn't know of anyone that had committed suicide due to clusters.
I know of one that jumped off a 7 story parking garage while at a treatment facility.
The Clusterbusters surveys show that 64.15% have contemplated suicide.
8.8% have actually attempted it. Maybe we have an increased "attempted" rate, we just (thankfully) suck at it.
I think that if a larger percentage of people suffered in the 3 hour duration range rather than the 1 hour end of duration, these numbers would both be much higher.
I think the term "suicide headaches" relates more to the 64% that contemplate suicide than people that actually go through with it. I'm sure many of us bring up the subject with our docs.
Unfortunately, none that were successful are able to complete the survey. That's not meant to make light of the subject, only stating a fact that would certainly make it difficult to come up with reliable stats. Knowing how we all like to hide our ailment, we'd probably write a note about not being strong enough to go on and feeling bad about letting people down, and skip the cluster part, JMHO. It's been my experience that many of us internalize the problem rather than blame the clusters themselves.
BobW
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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don
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Quote:I think the term "suicide headaches" relates more to the 64% that contemplate suicide than people that actually go through with it. I'm sure many of us bring up the subject with our docs.
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I dont like playing both sides of the fence but descibing a clusters as suicide headaches is a good marketing strategy when trying to impress upon someone the seriousness of this condition.
Bad strategy with insurance companies. It's one less big monthly medication payment to them bastards.
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Jonny
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30 years chronic......thoughts?....yup.....still here?.....yup
See this >>>> ......thats what I do every time I put my boot in the beasts ass!!
................................jonny
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Versilleus
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Re: Looking for stats...
« Reply #13 on: Jan 7th, 2005, 2:47am » |
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Thanks for all the information everyone. Getting exact numbers is definately not easy Cheers
Paul
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