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Topic: My Nephew Saw A Bad Kip 8 (Read 323 times) |
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Carl_D
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A couple of weeks ago my sis in law was taking a bath and I was watching my nephew who is slightly autistic but otherwise normal until his sis got home. for some reason, He just hung on me all day, and usually he is pretty good about keeping to himself. That day he was feeling well and I went into a kip8 very fast. Lately I have been getting hit hard and fast with little to no warning and this was no exception. I ran into my brothers room and gave myself a shot of Imitrex, and then came out of the room and slumped down in the rocker/recliner with my fingers in my neck rocking back and forth.
Elijah looked right at me "Are you okay?"
"Yeah buddy I'll be fine. Give me a few minutes."
He backed up and sat on the couch quietly. "Your head hurts Carl?"
"Yeah It hurts bud. I'll be okay though. Just give me a few." He just sat there, staring directly at me, and then began sucking his fingers. That was when I realized how bad it affected him. I tried to ride it out the best I could and hid as much of it as I could. As it began to let up some, my neice came home from school on her usual "Blah. This sucks. Outta My way."attitude, took one look at me and was like "Whats wrong with you?"
"Guess?"
"Oh, cluster."
Later that evening I kept Elijah and my cousins daughter entertained by peeling sweet potatoes and talking in a british accent ala Julia Child and getting upset when the po-ta-to skins missed the trash can (for some odd reason Rock Lobsters old avatar of Samwise saying Po-Ta-Toes poped in my head and I kept saying it like that. I goT E saying it and by the end of the night Sarah wanted to kill me since Elijah was running around the house non stop yelling "PO-TA-TOES"
It breaks my heart though everytime I see that look on his face when he was looking at me during that attack. I have seen his face in my head several times since during an attack. I pray that if God is mericful, my niece and nephew will never have to experience these things in their lifetime.
Elijah, being somewhat autistic, doesn't forget things. He has mentioned my head hurting to me several times since that happened, and he always brings me the little dog I got my sis in law right after she had surgery. He doesn't miss a beat. I have done my best to hide from him when I get hit with a massive cluster, but he has seen me a few times unavoidably at lower levels. This was the first time he saw a hard hit though. I just felt good that I was able to keep him laughing afterwards and take his mind off of it a bit. Not able to play with him like I'm used to as I stay wiped out now, have no energy and 24/7 in pain with my legs back & shoulders & kidneys. Talk about things that'll ruin your holiday. 
Peace,
Carl D
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Kate in Oz
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Re: My Nephew Saw A Bad Kip 8
« Reply #1 on: Dec 10th, 2005, 6:12am » |
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Carl that's tough. I know how you feel, my son who is only 3 has witnessed a few of mine  What can you do but try your best not to start dancing?
Hope you get a break soon and if all else fails never, never loose your sense of humor.
Kate
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LeLimey
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Re: My Nephew Saw A Bad Kip 8
« Reply #2 on: Dec 10th, 2005, 7:45am » |
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Carl while you are able, explain it to him properly. Tell him you get really bad headaches and you have to wait for your medicine to work but then you are okay again. Its tough, you know best what level of explanation to give but just bear in mind the most scary thing is NOT knowing. Whe he knows you will be okay and you aren't going to die it'll help alot.
let us know how you get on
Helen
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PollyPocket
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Re: My Nephew Saw A Bad Kip 8
« Reply #3 on: Dec 10th, 2005, 8:01am » |
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Carl, don't let it ruin your holiday, ok? I know its tough when a child sees a big one-mine were right there when the cycle of 8+ to 10's happened. My daughter used to bring me her dolly and a pillow when I was headbanging on the kitchen floor. And then a blanket and covered me up when it was gone.
Helen is right, explain it when you can, but also know this: that child gave you a precious gift - unconditional love- during your attack. He brought you a little stuffed dog and was taking care of you the best he could. Let him know that you're proud of him for being so helpful.
I hope for you that the situation never happens again cuz I know how heartwrenching it was for you.
peace to you and your nephew.
Jen
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened.  " - Tori
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Melissa
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Re: My Nephew Saw A Bad Kip 8
« Reply #4 on: Dec 10th, 2005, 8:54am » |
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Eli was right next to me in bed last night when I got hit. He was up because he had a nightmare so I let him crawl in bed with me. Anyway, about 10 min. into the bout, I looked to my right and here he was sitting upright watching me, being ever so quiet. A 2 year old being quiet, ever hear of that?? LOL
The thing is, you can't protect them all the time from your condition. It may even be a good thing for them to witness some of the suffering because it gives them empathy and compassion. Besides, we can't do anything about what we've been given, but we CAN remove the secrecy about it.
Anyway, don't beat yourself up too much about it.
mel
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Charlie
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Re: My Nephew Saw A Bad Kip 8
« Reply #5 on: Dec 10th, 2005, 2:20pm » |
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You did fine Carl. 
One thing about children, especially the tykes is that that tend to handle other's pain better than we.
My own theory is that they look at something that happens to us as (a real stretch here) something not necessarily scary or abnormal. After all it's part of the life of someone that loves them or at least cares for them. It not as scary.
Charlie
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Tim_Z
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Re: My Nephew Saw A Bad Kip 8
« Reply #6 on: Dec 10th, 2005, 6:19pm » |
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Carl, I have had this longer than my kids have been alive. I don't talk about clusters with my kids much. I have told them what I have and what I need them to do, which is try to ignore me and not talk to me until after my attack. I answer all of their questions later. They handle it very well. I am the one who has problems feeling guilt about what I put everyone here through. They sacrafice a lot more than I do.
I think that we are all in the same boat on how we feel about others around us and what they go through. I know I think it is unfair for them. Kids are very resiliant and just like my kids your nephew will do just fine. Having clusters didn't tear my family apart it made us stronger, there is a lot of love for each other. It's true the more you give the more you will get in return.
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