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Topic: Specialist gaunlet nitemare !!! (Read 306 times) |
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cootie
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Specialist gaunlet nitemare !!!
« on: Dec 9th, 2005, 1:46pm » |
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Thought I'd share this story that jus happen'd to my mom......do you mind ? OK.......mom has these 'spell's I also get I call the jitts.....kind of like a hypoglcycemia attack and I get em more when I have too much on my mind while bein busy doin 10 things at once.....I think ya jus overload and yer body has ya sit down a spell so it can reload cuz ya burnt yourself out. I will crave carbs and that helps fast. Lotta people get it from time to time.....mine SEEMS to be very much so connected with stress and I think it is the SAME thing for mom. High stress runs in my family....no big deal cuz they pass in a few minutes but can leave ya pretty weak and shakey. (both been checked for sugar and are ok) Anyhow......so mom's been talkin to her doc about it. He sent her to a neuro.....he order'd MRI and exrays and all sorts of stuff and none of her docs have even CONSIDER'D it what I think it is. The first doc gave her tranquilizers. All those did was make her sit down longer and then feel groggy and foggy for hours verses the attacks last a few minutes and ya feel great afterwards. She doesn't seem to be following the 'try some carbs thing or get some of the glucose tabs just for that'.....doc says she is haveing siezures and I don't think the tranquillizers are helping her one bit cuz she still gets them and there not solveing it. So the neuro she was referr'd to had other tests stuff done (MRI and CT ect) and says she has several herniated discs in her neck that could cause it and she may need surgery and he sudgested she have it done or look seriously into it. He explained how they go in thru the front of the neck. Now my mom has NO NECK PAIN what so ever......NONE !! She doesn't have headaches from compressed nerves or any of that either. (I have a bad neck and I have a ha almost ALL the time now....she never has one !!!) OK so she makes an apt with this specialist up in Cleveland. He was supposed to have her and my step dad sit and watch a film on the neck operation the neuro STRONGER advised she have done and then this new doc explain it to her and go from there. Mom told me she had NO plans for a surgery she felt she did NOT need so I was comfortable knowing she wasn't goin to go for it unless sumthing was seriously wrong there. The new doc looks at her tests and MRI's ect ect and says she is fine cept for a little bit of arthritis....she's upper 70's but looks very good and is active. No mention of herniated dics or surgery for it. But.........then he set the test results down and said they did need to discuss her BRAIN ANEURYSM !!!!!!! Say what !!!?? I guess my mom about fainted it freaked her out so bad not to mention my step dad !!!!! The first they had heard of this....and this doc IS a specialist in that area and she'd had some special tests he read that would show that from the neuro. He told mom that she is haveing full blown siezures (NOT !!!!!) and that this aneurysm is probly the cause and he order'd more brain tests where the inject dye to show up all the vessels in the brain. Mom was pretty SCARED !!!!! But she got upset her neuro she liked so much NEVER mentiond an anuerysm to her and he has had her test results back for a month or so and even had her come in to discuss them and only mentiond the dics problem. Mom was pretty rattled and scared and upset and PISSED off it was let go so long. She called her neuro to talk to him about it and how it was handled.......and told him of the new tests she has to go thru soon rite after Xmas and was worried. Well here is the CLINCHER..............the neuro appologized to mom and told her NOT to go thru with the brain testing.......she did NOT have an aneurysm......he wrote on the report he thought she DID have one and seen evidence of it "so the insurence would pay the bill for the testing"........that report of course was sent to the specialist who in tern told mom they had to discuss it as if HE SEEN SHE HAD ONE on the results with all the stuff she had done and MRI ect ect ect he had before him. He never seen one cuz she don't have one........so WTF......can't he READ results and look at exrays and whatever else she had done (CT and stuff too) to diagnose for himself ? Mom was so scared for NO REASON......the specialist acted as if HE HAD SEEN ONE FOR HIMSELF but he didn't cuz it wasn't there !!! A bit WTF Pam
All in all NOW they don't still know what the attacks are from and I had already warned her these docs may send her to every specialist known to man for tests of all kinds before they EVER look into this as a simple thing happening. This is scarey when ya think about it.......ya know ?????? Sorry for the BOOK but can you imagine how she felt and was left thinkin she had this aneuysm for a few days before the neuro called her back to explain. 
Dam....sorry this got so WINDED but there were alot of details I couldn't leave out to tell the story. Mom no longer trusts docs.....I don't blame her.
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| « Last Edit: Dec 9th, 2005, 1:54pm by cootie » |
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pattik
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Re: Specialist gaunlet nitemare !!!
« Reply #1 on: Dec 9th, 2005, 2:20pm » |
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All that, just to get the insurance company to pay? Well, I'm certain that a whole lot of money was saved on that test, but at what cost to your Mom and step-dad--and still no answers  Good intentions can really go wrong sometimes.
Pat
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cootie
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Re: Specialist gaunlet nitemare !!!
« Reply #2 on: Dec 9th, 2005, 2:40pm » |
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Mom and dad retired early.........so there kinda on a fixed income but they got BUCKS in the bank......there doin QUITE well but medical bills could wipe ya out in a week doin all these tests and possible sugeries bla bla blah. (she had lymphosarcoma and rebuilt nose out of it and dad had failing kidneys and was on dialysis) Dad has a donor kindney now so he is on MEGA bucks meds every day for the rest of his life and there premiums are goin UP each year now and co-pay. So guess the doc got these tests paid by adding his anuerism comments but it could of got out of hand considering the specialist doc was READY to operate by what was WRITTEN. Seem's if he looked close for himself he'd of not seen ANYTHING and kind of wonder'd what was goin on and possibly called the neuro and 'got the scoop' verses ordein this next test with the dyes and some other brain things based on what he read NOT SEEN FOR HIMSELF. I just would of thought a good doctor would of question'd the diagnoses if he looked at the results imageing cuz there really ISN'T anything on there. THAT sorta freaks me out........she had ALOT of tests too and has been goin havein all sorts for the last two months actually but most have been paid for. And it makes me wonder what her insurence will do when there policy is due to roll over.......cuz of it and all that stuff done and money THEY paid.......will it look bad for them and they raise there rates astronimical or deny them ? If it is something wrong the tests are of course very important....but this seems to be alot of wasted money and time cuz of lack of understanding of what is wrong. I think it is SIMPLE what she has wrong. Bet this goes on alot which makes me wonder. Mistrusting diagnostics Pam
Most of the test she had done I'd of had to pay more then half on if not more or sum deny'd payment on. My ins co does NOT like ultra sounds and will usually NOT pay a dime. Had to have one on a lump on my thyroid recently (nuther injury from horse raceing thank goodness and is ok) and they did not pay a penny !! Doc thought for sure they would cuz of the reason he needed it done.
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| « Last Edit: Dec 9th, 2005, 2:42pm by cootie » |
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Charlie
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Re: Specialist gaunlet nitemare !!!
« Reply #3 on: Dec 9th, 2005, 7:21pm » |
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What a story! WTF is the matter with these guys? First, do no harm. Sounds to me that they made your mom terrified.
Let me guess: The neurologist you saw happened to be a neurosurgeon? The one time I went to one was just to get him to write a new prescription for my Inderal that seemed to work a good portion of the time. My regular doctor was out of town. (Bear in mind that I'd known that I had CH for about 11 years prior to my visit) Anyway, not surprising, he sent me for all kinds of tests that I knew were redundant but...he is a doctor after all.
Whaddaya know? His being a surgeon, he recommended exploratory brain surgery. No way. You don't dig around in there unless there is a damn good reason. He said CH and seizures were separate. No shit.
That was 1978 and as I was later to discover, this kind of crap is way too common. Part of it is to cover their asses in case of a lawsuit but some is to make a buck on something hard to question. I'll understand how they can live with themselves. It's criminal. 
Hope your mom is feeling better. My advice is: see every neurologist you can. Take lots of time.
Charlie 
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| « Last Edit: Dec 10th, 2005, 3:16pm by Charlie » |
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Melissa
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Re: Specialist gaunlet nitemare !!!
« Reply #4 on: Dec 9th, 2005, 7:29pm » |
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Holy shit, how crazy is THAT??
I'd be so pissed if it were me, omg.
I really hope that your Mom gets the right RX soon Pam. Cripes.
mel
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cootie
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Re: Specialist gaunlet nitemare !!!
« Reply #5 on: Dec 10th, 2005, 1:13am » |
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My mom is really upset over all this considering she was jus tryin to solve the mysterious 'spells' she was haveing and followin each docs recommendations havein all them dam tests and all that running around and all the appointments. And to end up bein told she had a dangerous condition by a specialist brain doctor that apparently didn't even LOOK at the MRI's or CT's and other imageing tests done and jus read the comment by the other doc jotted down on the paperwork which was only mention'd as "aneurysm" to get over on insurence. If mom hadn't of gotten upset over the second doc she liked so much (the neuro that also talked to her about ch cuz of Brad) and called him to ask WHY he didn't mention the aneurysm over a month ago she'd of been goin soon to get the other testing the specialist order'd with havein the dye injected and whatever else he order'd done and she'd of continue'd to THINK she had one. Thank gawd she went ahead and called the neuro guy and found out it was just a fluke with the word aneurysm on the report to get past insurence so she could cancel the testing. She feels pretty volnerable rite now cuz no tellin where this could of ended up and she was goin rite along with all these docs too beleiveing they were the best. Am sure they are but there has been a series of fuck ups goin on at her expense. I think it crushed her.....she liked these docs.......she felt they were doin what is best for her but they were talking BRAIN surgery !!!!! How serious of a mistake is that one !!!!!!!!! ?? And I keep thinkin how scared and upset she HAD to be leavein that office when that specialist told her she had one. Maybe she'll try my carbs cure for her jitter attacks or the glucose tabs yo can buy to fix an attack like I sudgested before all this started and them tell her she had siezures and herniated dics and anuerysms she doesn't really have. These are some top docs too makeing these mistakes here !!!! I'm jus floored by it all....and very concern'd what it has done to her mental state. She feels "used" I am sure !!! This is so bazaar.....so remenber it and BE CAREFUL out there......and get second opinions for sure. My mom trusts people and thinks doctors are great and they are here to help us all. Doctor cuts alot Pam
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Kate in Oz
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Re: Specialist gaunlet nitemare !!!
« Reply #6 on: Dec 10th, 2005, 6:22am » |
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 WTF That's terrible Pam! I don't know what to say I'm absolutely gobsmacked. That hole story is just outrageous. Your poor mum! What an awful thing to have to go through.
grrr Kate
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purpleydog
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Re: Specialist gaunlet nitemare !!!
« Reply #7 on: Dec 10th, 2005, 10:52am » |
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Pam, I'm sorry your mom had to go through all this crap. When you have MRI's and CT cscans done, and you go see other docs, they usually never send the actual films, they always go by the doctor's report who ordered the tests. Every neuro I've ever been to, I've offered to get the films to bring, and they just want the previous records, and a copy of the report the doc wrote as a result of the test.
Writing on the report that she had a brain aneurysm is just plain irresponsible. How is any other doc supoosed to know that it was written just so the insurance would pay for the tests? So yes, they would order more tests, like a dye test, because there was no evidence it had been done, so the surgeon could actually see what all this aneurysm entailed. Also, it's now a part of your mom's permanent medical records, so yes, insurance can and probably will be a problem in the future. An already existing condition and all that. What bullshit. I wouldn't trust those docs either.
If the insurance becomes a problem, I would insist the doc retract his comment about the supposed diagnosis. He could potentially have a lawsuit brought against him for falsifying medical records.
And if your mom is having hypoglycemic episodes, as you think, have her go see an endocrinologist. They can solve that puzzle in fairly short order.
ALWAYS get a second opinion. Geez. I'm sorry Pam.
Stupid fucking doctor.
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| « Last Edit: Dec 10th, 2005, 10:56am by purpleydog » |
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cootie
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Re: Specialist gaunlet nitemare !!!
« Reply #8 on: Dec 10th, 2005, 12:30pm » |
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I AGREE TOTALLY !!!!! Mom jus emailed me that the docs are callin her tryin to get stories straight and schedule MORE tests !! Now the new specialist (brain surgeon dude) says he "thinks" she has a vessel at the bottom of the brain stem that is constricted just a tad and that is what is causeing her episodes so she is goin the MORE TESTS GAUNTLET again on that one. And he told her no surgery for that (thank goodness cuz I think he is WRONG anyhow) but she will have to take blood thinners. DUH......she is already on meds for high blood pressure and is monitor'd regular for that. So if she has a restricted vessle why does she only have attacks (that's what she calls them) when my step dad yells at her or shows his road rage side or she gets stressed out or has too much goin on I wonder. Maybe I should take over the case.......ha-ha......don't want to see her on more meds she don't need and become lifeless. She has very high blood pressure and they just increased her meds this summer it was so high. Wrong track Pam
I'm goin to sudjest she check into AN endocrinologist.....didn't know the name before to direct her but not sure how she'd find one. Guess ya call clinics and ask ? Thanks all !!! This is jus NUTZ !!!
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cathy
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Re: Specialist gaunlet nitemare !!!
« Reply #9 on: Dec 10th, 2005, 1:52pm » |
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Wow Cootie that is outrageous thank goodness for the NHS for what it's worth thats a load of old pants too though.....I hope your mum gets a proper diagnosis at the end of the day without dyes, brain surgery or idiotic neuro surgeons doing half thier jobs!!
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