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Topic: Almost 14 weeks ...grrrrr (Read 315 times) |
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PollyPocket
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Almost 14 weeks ...grrrrr
« on: Dec 4th, 2005, 7:57pm » |
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ok y'all, I am ready for this shit to be over.
I want off the meds, they're making me sick- first the nonsense with the topey and am starting to finally think clearly again.
Now the Vrap and I feel like crap. The room spins and I nearly fall over if I stand up or get up too quickly, just generally feel like crap.
I just want to stop taking the meds and feel normal again and I don't know if this damn cycle will ever end!
Sittin here can feel the shadows poking my temple and cheek and I just want it to end dammit.
I just needed to vent a little. I'm not gonna take any more meds, I can't stand it anymore. The only pills I should be taking should be VITAMINS, not this stuff. grumblegrumblebitchbitchbitch
bitchfest over.
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
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Jonny
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Re: Almost 14 weeks ...grrrrr
« Reply #1 on: Dec 4th, 2005, 8:01pm » |
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Its almost over....hang tight!!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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nani
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Re: Almost 14 weeks ...grrrrr
« Reply #2 on: Dec 4th, 2005, 8:02pm » |
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Quote:grumblegrumblebitchbitchbitch
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Psst...Jen...
www.clusterbusters.com
hugs, nani
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E-Double
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Re: Almost 14 weeks ...grrrrr
« Reply #3 on: Dec 4th, 2005, 8:11pm » |
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That's why I'm detoxing.......done w/meds.
Hopefull I can stick it out!
Good luck and keep positive!
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I can't believe that I have to bang my
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kissmyglass
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Re: Almost 14 weeks ...grrrrr
« Reply #4 on: Dec 4th, 2005, 9:23pm » |
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I don't think you should go cold turkey off of Verap....better check with your doc. 
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gMike
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Re: Almost 14 weeks ...grrrrr
« Reply #5 on: Dec 4th, 2005, 10:38pm » |
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Taper off of Verap so you don't spike your blood pressure. Last thing you need is another problem when you're trying to get off of the meds!
Mike
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Charlie
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Re: Almost 14 weeks ...grrrrr
« Reply #6 on: Dec 5th, 2005, 1:04am » |
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Quote:| grumblegrumblebitchbitchbitch |
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Works for me and the wonderful side-effects of the drugs made my day too. Topamax turned me into a babbling idiot.
Rant, beat the walls and scream.
Jonny is right. It's not going to last. 
Charlie
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sandie99
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Re: Almost 14 weeks ...grrrrr
« Reply #7 on: Dec 5th, 2005, 2:33am » |
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Jennifer,
Be careful if you're going to stop taking meds. Do it gradually. Verpamil helped me when the dose was big enough (600mg/day), but we're all different. I hope that you'll find that thing which works for you. 
Wishing you PF time asap,
Sanna
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Jasmyn
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Re: Almost 14 weeks ...grrrrr
« Reply #8 on: Dec 5th, 2005, 2:36am » |
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to you Jen
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Jazz
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unsolved1
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Re: Almost 14 weeks ...grrrrr
« Reply #9 on: Dec 5th, 2005, 5:23am » |
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5 years and 2 months. How many weeks is that ? 
UNsolved
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PollyPocket
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Re: Almost 14 weeks ...grrrrr
« Reply #10 on: Dec 5th, 2005, 6:56am » |
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on Dec 5th, 2005, 5:23am, unsolved1 wrote:5 years and 2 months. How many weeks is that ?
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that's how I know I'd never make it if I was chronic. You guys are the ones I feel the worst for cuz this shit episodic sux enough.
I'll take half the f'in Vrap (grumble and frown and act like child here). its a low dose anyway.
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened. " - Tori
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lionsound
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Re: Almost 14 weeks ...grrrrr
« Reply #11 on: Dec 5th, 2005, 7:04am » |
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Hi Jennifer,
please call your doc and ask how much of the verap to decrease by. Even half may be too much.
When I got off of it it was at a very slow rate.
and a side note: when I first started taking verap it did make me dizzy. That went away in a few weeks and I was okay. I undertand if you don't want to do that. you have every right to be frustrated.
Be well and PF,
lionsound
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| « Last Edit: Dec 5th, 2005, 7:04am by lionsound » |
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Redd
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Re: Almost 14 weeks ...grrrrr
« Reply #12 on: Dec 5th, 2005, 7:10am » |
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Do be very careful and call your doc about tapering off the verap. Low dose+ tip over/spinning room..reminds me of my situation which was my BP bottoming out. Not a healthy thing.
Definately reaf up at www.clusterbusters.com to see if this is something for you.
Pegg
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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zwibbs/Scott
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Re: Almost 14 weeks ...grrrrr
« Reply #13 on: Dec 5th, 2005, 8:32am » |
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Hang in there--will be ending soon....I know what you mean about verapamil--I made a sudden move on a ladder this past saturday and almost blacked out. Very scary stuff. My head was spinning, and I have learned my lesson. Hope you have comfort real soon.
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Beastfodder
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Re: Almost 14 weeks ...grrrrr
« Reply #14 on: Dec 5th, 2005, 9:19am » |
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Sounds like you're getting through the worst of it.
Hope that's sooner not later. I know exactly how you feel about the polypharmacy, got a bottle collection out of the past few years.
Carbazemine and pizotifen being two all time favourites. So this year it was straight down to clusterbusters and what a difference it made.
4 headaches opposed to 50 plus and a two and a half month cluster cycle down to a few weeks with no side effects.
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O2 and clusterbusters - naturally
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Kate in Oz
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Re: Almost 14 weeks ...grrrrr
« Reply #15 on: Dec 6th, 2005, 6:51am » |
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Hey Jennifer,
I'm so sorry to hear your having such a sh*t time of it. Perhaps you're peaking and very near the end of the cycle??! I hope so.
Sending you prayers and hugs from down under.
Kate
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