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Topic: Before CH.COM ! (Read 352 times) |
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LadyElaine
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Before CH.com I felt alone. I felt crazy. I stayed Scard. I thought I was going to die from them.
I had clusters when my Kids were little and I found it so hard to deal with them and clusters. I worked but it was hard. I was lucky I had great bosses that tried to understand.
I notice now taking care and having clusters is so different than when my kids where little. The whole difference is I am no longer alone in this fight, I am no longer scard. I don't feel crazy! It has made a difference in me. Clusters use to be the main topic in our house.
Its no longer a everyday topic here. Even though I come here and support people who are in cycle. Its not our main topic.
The change is all because of this site. I have learned I can deal, I now have somewhere to vent besides to my family. I can vent to people who understand. I know its real now and I am not crazy. I know I am not going to die from it. Knowing these things have made my life and my familys so much nicer. I am in cycle now, I am able to enjoy life now. That means everything to me.
Thanks Clusterville for giving me a life again. I came here in 1999 its been the best 6 years of my life!
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Jasmyn
CH.com Alumnus
New Board Hall of Famer
Each day will be a new trick in life's journey
 
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Posts: 2762
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Re: Before CH.COM !
« Reply #1 on: Dec 1st, 2005, 8:23am » |
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Elaine, very true words.
Best thing that ever entered my life to help me cope with life.
Thanks again to all over the years and the biggest THANKS to DJ for making this happen.
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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vig
CH.com Alumnus
New Board Hall of Famer
CHit Happens
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Posts: 4401
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Re: Before CH.COM !
« Reply #2 on: Dec 1st, 2005, 8:40am » |
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what a great post Elaine!
keep 'em comin'!
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never, Never, NEVER quit. -Winston Churchill
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boonie
New Board Veteran
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Posts: 249
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Re: Before CH.COM !
« Reply #4 on: Dec 1st, 2005, 11:07am » |
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I found ch.com May of 1998 it was a new site then just a few posters, the old board had all the posts on one page very easy to read you could scroll down and read everything. I learned all I know from this site But mainly that I wasn't alone. tears actually ran down my face. I have been on the board almost everyday since and I will never be able to thank D.J enough and the people on the board who filled me with hope and insight to this disorder . Many folks over the years have come and gone some I have dearly missed. Thanks Elaine for all your support through the years. and to all of you that have made this site a home.
Thanks again DJ
boonie
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boonie
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The mad viking
CH.com Alumnus
New Board Hall of Famer
Always Look on The Bright Side of Life
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Re: Before CH.COM !
« Reply #5 on: Dec 1st, 2005, 1:06pm » |
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Great post Elaine.
Could not agree with you more on this.
I will go so far as say that many of us owe our life to DJ for what he did when he created Clusterville,me included
THANK YOU DJ
Svenn
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| « Last Edit: Dec 1st, 2005, 1:07pm by The mad viking » |
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Always Look on The Bright Side of Life
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Beastfodder
New Board Old Timer
O2 and clusterbusters - naturally
Gender:
Posts: 294
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Re: Before CH.COM !
« Reply #6 on: Dec 1st, 2005, 3:21pm » |
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Well said
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O2 and clusterbusters - naturally
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zanychef
New Board Newbie
i'm busting with a masx cant really go wrong can i
Gender:
Posts: 46
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Re: Before CH.COM !
« Reply #7 on: Dec 1st, 2005, 4:46pm » |
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a big thank you dj thats for sure
i still cry when i read the entry page 
Ian
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plenty of time to sleep now me headaches aint too bad
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seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
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Re: Before CH.COM !
« Reply #8 on: Dec 1st, 2005, 4:59pm » |
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My guess is that DJ is probably the kind of guy who on one hand recognizes what a great thing this forum is, but probably dismisses his role in truly changing people's lives for the better. When the big guy takes your inventory one day DJ, hopefully he'll illuminate for you how much your efforts have changed people's lives, not only sufferers, but supporters as well. My life has been altered from landing here and learning -- for the better.
Best wishes to you Elaine for planting the seed to think about it a little.
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seasonal boomer
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Jonny
CH.com Alumnus
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Give me a shovel Ill dig my own grave!
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Re: Before CH.COM !
« Reply #9 on: Dec 1st, 2005, 5:41pm » |
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on Dec 1st, 2005, 4:59pm, seasonalboomer wrote:| My guess is that DJ is probably the kind of guy who on one hand recognizes what a great thing this forum is, but probably dismisses his role in truly changing people's lives for the better. |
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Your guess is right on, Bro!
DJ always says that all he did was put up a website, its the people that come here that makes this a family...its the people that come here that makes this a haven for sufferers and supporters.
We all know what he did, and he knows we know
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| « Last Edit: Dec 1st, 2005, 5:42pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
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Posts: 6721
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Re: Before CH.COM !
« Reply #10 on: Dec 1st, 2005, 6:47pm » |
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You're right. DJ is a very humble guy.
Unless he makes a "birdie" on the 7th. hole.
Then you can't get to to shut-up about it. 
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
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Posts: 14968
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Re: Before CH.COM !
« Reply #11 on: Dec 1st, 2005, 8:44pm » |
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Oh yeah. 
Right on Elaine and Co.
I can't stay away. Thanks DJ. I wouldn't have it any other way now.
Tis fine thing you have done. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
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Re: Before CH.COM !
« Reply #12 on: Dec 2nd, 2005, 2:14am » |
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I've always had a great life...great family. I've always had lots of friends...and never felt lonely, or alone.
January 2002, I had my first CH. I was afraid, scared, and for the first time in my life, I felt alone. I told noone about the pain. As the CH progressed, the pain became more unbearable. I found this site, and read for hours and days on end.
I decided to tell a good friend of mine about the ha's, but I didn't mention this site. One day he gave me a print out of some pages. The pages he gave me was this site. That was like an omen to me. I knew this was where I needed to be. It wasn't until then that I took the cluster quiz, and confirmed what I already knew.
When I made my first post on this board, I felt that I belonged. I felt the warmth and the love and the genuine concern not just from those who suffer, but from those who support.
I found peace...understanding...and a family unlike any other. I feel your pain, when I'm painfree... I feel your love, when I'm in pain. I have met many of you....we have laughed... and cried together....and thru the laughter and the tears I have come to realize just how much I love you...and how very important each of you are to me.
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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