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Topic: Is this the lowest of the low? (Read 907 times) |
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pubgirl
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Is this the lowest of the low?
« on: Nov 3rd, 2005, 7:19pm » |
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What is the lowest thing you can do to someone on here?
In my book it is accusing another sufferer of being a fraud and not having CH at all and duping people.
This has been posted about me, and if anyone else feels the same way and thinks I am faking being a CH sufferer, I would prefer they all came out and said it now so at least I know where I stand. I can't prove it beyond a dodgy eye and a houseful of 02 that quite a few people here have seen, but how many of you could prove you had CH, or even felt you had to another CH sufferer?
Flash has posted this, and it isn't just me who reads it as a suggestion that I don't have CH. He also refused to deny that this was his suggestion.
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"Wendy - earlier in this thread you referred to BobW / Pinkfloyd. It has since been brough to my attention that both BobW and myself were duped, and that this was little more than a damage limitation exercise. I have the utmost respect for people that have CH. I also have the utmost respect for people that support partners or close family members that have CH (like Margi to name but one). I also have the utmost respect for people that do not suffer from CH and are completely removed from it, but have chosen for whatever reason to help those of us that do. But I have an intense dislike for people that pertain to suffer from CH when they in fact do not. Get a life. "
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The whole OUCH Uk thing is boring everyone, and I am fed up telling Flash and his cronies that Pink/Bob tells the truth when he says I was trying to help, but this latest in my view is so personal that I am shocked and sickened that anyone may think this.
Wendy
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| « Last Edit: Nov 3rd, 2005, 7:36pm by pubgirl » |
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Jonny
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Re: Is this the lowest of the low?
« Reply #1 on: Nov 3rd, 2005, 7:36pm » |
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There is no diagnosing over the internet....is there?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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cootie
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Re: Is this the lowest of the low?
« Reply #2 on: Nov 3rd, 2005, 7:37pm » |
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That's really sad and all that shit gets old after a while......I'd ignore people giveing you such a hard time esp if saying things publicly to intentionally hurt your reputation. People are so easily enfluenced as it is and all stuff like this does is build the other persons army up stronger for those that take sides or follow the leader getting the most POINTS or saying the WORST things. Too bad it has to happen but it does and sorry all of us have to go thru it with you. No one can change who you are......only how people see you Pam
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mrs mac
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Re: Is this the lowest of the low?
« Reply #3 on: Nov 3rd, 2005, 7:59pm » |
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the whole thing is getting ridiculous, how any one could accuse you of not having ch is just totally out of order, and completely dis respectful!!!
i know the thread is getting a bit heated but to resort to such a vicious personal attack against you wendy is completely out of order
sandra xxxx
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BarbaraD
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Re: Is this the lowest of the low?
« Reply #4 on: Nov 3rd, 2005, 8:13pm » |
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Everyone needs to cool off, take a deep breath and let it go. These things happen, but we are made of tuffer stuff than this.
I suffer as much as any of you (I'm chronic) but anything that's said on this board I take with a grain of salt. Some of us react "typical" to CH - others do not, but the pain is the same for us all. We all get grouchy and out of sorts, and sometimes a good "fight" is a good thing,but don't take it personally.
Just get the steam blown out and go on to something else....
Granny has spoken.....
Hugs BD
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vietvet2tours
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Re: Is this the lowest of the low?
« Reply #5 on: Nov 3rd, 2005, 8:17pm » |
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on Nov 3rd, 2005, 7:36pm, Jonny wrote:| There is no diagnosing over the internet....is there? |
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 Fuckem
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Kill em all let God sort em out
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Kris_in_SJ
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Re: Is this the lowest of the low?
« Reply #6 on: Nov 3rd, 2005, 8:18pm » |
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I just wish we could all get along and do what we're supposed to here - support each other!
There are a number of people I really miss seeng on this board. I truly don't understand the animosity that occurs often enough to drive people away.
Looking through my rose-colored glasses. Kris
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mrs mac
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Re: Is this the lowest of the low?
« Reply #7 on: Nov 3rd, 2005, 8:26pm » |
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well said kris, couldn't agree with you more!!!!
sandra xxxx
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KMT
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Re: Is this the lowest of the low?
« Reply #8 on: Nov 3rd, 2005, 8:44pm » |
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Wendy
Nobody can ever truely tell us what kind of pain they think we are in. You and only you know what you are going through. Sure all of us on here can definitely sympathise because we too experience the torture day in and day out. On another note so many deal with the pain differently some hide it as long as they possibly can, others wear it written all over their faces. Sweetie you know your pain, you know what you go through ignore the hurtful things that some may say and know that those of us that do understand are always here for you.
Please stick around....We Care.....Kim
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aka...................................................... KimY
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Grandma_Sweet_Boy
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Re: Is this the lowest of the low?
« Reply #9 on: Nov 3rd, 2005, 8:46pm » |
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Quote:
And this Grandma agrees with that Granny! Play nice kids - don't make us knock your pretty little heads together! 
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mrs mac
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Re: Is this the lowest of the low?
« Reply #10 on: Nov 3rd, 2005, 8:50pm » |
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maybe that's what's needed, i could think of a few heads you could start with 
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thebbz
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Re: Is this the lowest of the low?
« Reply #11 on: Nov 3rd, 2005, 8:55pm » |
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Oops I dropped my popcorn 
What thread  is this? Is this the right site? Hey I dropped my oar.  You all are so cool you make me freeze. Now PEACE or else....I'll come and steal your Imitrex.
jb
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Cerberus
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Re: Is this the lowest of the low?
« Reply #12 on: Nov 3rd, 2005, 11:32pm » |
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interesting...(this is what I get for lurking and not posting much) y'all just need a refresher on how to play well with others.
Flash I have never met... not much more to say than that.
Bob I have met and can say without a shadow of a doubt that he is of the highest grade stuff men are made of... after all he IS a CHISOX fan :-D ! for the latter reason alone, he will be totally insufferable for at least a year.... got 88yrs of angst to displace on a lot of sorry cub fans....  
As for what is the worst thing you can do here? methinks trying to dupe pretty much everyone here that there is a cure for CH (cant remember the freaks name/s who have been here several times before) but somehow I feel sorry for the sot, the guy has hisself snowed more than us... lie to others if you absolutely must, but to lie to yourself, and actually believe you? ya, thats a shame.
'Bus
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Jasmyn
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Re: Is this the lowest of the low?
« Reply #13 on: Nov 3rd, 2005, 11:52pm » |
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Wendy, it is only life happening here.
Take it as the way things are and that we cannot change people's opinions only influence some (and that is sometimes not even worth the effort).
You stick to who you are, that is good enough.
We will always be judged by others, some people will never like each other, some people will always fight but then again
some people don't judge, some people do like you, some people always care.
You have the choice of what you want to take and what you want to leave.
One thing you have to know is that YOU are more important than any thread or anything anyone can say.
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Jazz
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Charlie
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Re: Is this the lowest of the low?
« Reply #14 on: Nov 4th, 2005, 1:25am » |
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You're doing just fine Wendy.
We're glad you're here. Keep after em'
By the way, that bloody mess puter gif may be the best image of how some of us think of clusters. Wow.
Charlie 
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giffy76
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Re: Is this the lowest of the low?
« Reply #15 on: Nov 4th, 2005, 6:33am » |
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When shit like this goes on, I picture myself sitting in a large conference room with these ass wipes that enjoy personally attacking people for what ever reason and wondering how much of the crap they spew out of there mouth on the mb would be spewed out of there mouth in person. I have never been attacked on this site, if I did, they did a horrible job cause I didn't know, Heated discussions are always welcome but when that discussion turns into a personal attack, it's time to STFU and log off your computer. If someone was talking shit to me, in person, the way they talk shit to people on the mb, I would do things to them that would make CH seem like a walk in the park. 
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karma
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Re: Is this the lowest of the low?
« Reply #16 on: Nov 4th, 2005, 7:09am » |
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http://us.cnn.com/2005/LAW/11/03/toilet.suit.ap/index.html
Quote:| If someone was talking shit to me, in person, the way they talk shit to people on the mb, I would do things to them that would make CH seem like a walk in the park |
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Bastard 
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giffy76
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Re: Is this the lowest of the low?
« Reply #17 on: Nov 4th, 2005, 7:19am » |
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on Nov 4th, 2005, 7:09am, karma wrote:http://us.cnn.com/2005/LAW/11/03/toilet.suit.ap/index.html
Bastard |
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Sticks and may break my bones but names will get you hurt
Actually, if I got any more laid back, I would be in a coma. I don't let most things bother me, but when someone attacks another person just to see how bad they can hurt them, (physicaly or mentally) it really pisses me off
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Wendy
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Re: Is this the lowest of the low?
« Reply #18 on: Nov 4th, 2005, 7:45am » |
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Wendy, the same thing kinda happened to me before. But it dind't bother me cause I KNOW and thats ALL that matters. And I keep finding ways to deal...........end of story! What anyone thinks doesn't really matter. You start good stuff here, we learn from people like you who start stuff so you f*ck them and keep doing what you're doing and that is helping people just by getting things started! You go girl
USA/Wendy
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Wendy
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Re: Is this the lowest of the low?
« Reply #19 on: Nov 4th, 2005, 8:12am » |
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on Nov 3rd, 2005, 8:17pm, vietvet2tours wrote:
Fuckem
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That is so f*ckin funny!!!1
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catlind
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Re: Is this the lowest of the low?
« Reply #20 on: Nov 4th, 2005, 8:21am » |
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In the last 3 months I have been to 4 different neuro specialists, one of them a neuro surgeon in the hopes of getting a pituitary tumor/cyst removed and getting rid of these damn 'headaches'. I would have gladly stood proudly and said I am not a clusterhead but I will continue to help.
To my dismay, each and everyone of them said well it might help the migrianes and the odd headaches that occur but it will not get rid of the clusters. Their theory was after seeing two letters of diagnosis from Walter Reed Army Medical center and Dr. Tepper at NECH I fully fit the IHS 3 classification.
Wendy, you have done a great deal of good and a great deal of supporting other sufferers here. You have shown your knowledge in the CH field through experience and learned knowledge. If there's one thing we know about CH, it's that it's always going to be different and change on us. YOU know what you experience, and YOU know what your doc has said, and YOU have spoken with Prof Goadsby.
In the infamous words typed here before, don't let black squiggles on a computer set you off balance.
I can't prove you are a clusterhead, I can't prove *I* am a clusterhead, but I know what I know, and that's enough for me. People have seen my hits, at my first convention I questioned it myself and was assured by long time sufferers I fit the profile. I'm sure you've had the same if not similar experience. Don't let the rest get to you.
Cat
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| « Last Edit: Nov 4th, 2005, 8:22am by catlind » |
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Jeepgun
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Re: Is this the lowest of the low?
« Reply #21 on: Nov 4th, 2005, 8:46am » |
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Wendy, the rumour-mill constantly spins in Clusterville. It never changes, and I guess people never get bored with it. The perennial favourites are:
1. "_______ doesn't REALLY have cluster headaches."
2. "_______ is sleeping with So & So."
3. "_______ said ____ about him/her, and they are a 'reliable' source, so it must be true."
4. "______ is gay/lesbian/bi etc."
5. "______ said _____ about you!"
Blah blah fuckin blah...
People start rumours and tell stories about other people for one reason:
They feel inferior and will do anything to make themselves appear better than others by trying to magnify others' shortcomings. (even if they have to invent them!)
Live your life, and don't let the ankle-biters drag you down.
-Frank
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| « Last Edit: Nov 4th, 2005, 8:49am by Jeepgun » |
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nani
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Re: Is this the lowest of the low?
« Reply #22 on: Nov 4th, 2005, 8:51am » |
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It's happened to me, too, Wendy. I have nothing to prove to anybody. Don't let the rumor mill get you down, it's all bullshit. Keep doing what you do and stick around.
hugs, nani
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thomas
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Re: Is this the lowest of the low?
« Reply #23 on: Nov 4th, 2005, 8:53am » |
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Well all I can say is it never amazes me, how far we will go as humans to hurt one another. Love ya Wendy.
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pubgirl
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Re: Is this the lowest of the low?
« Reply #24 on: Nov 4th, 2005, 9:20am » |
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Thanks folks, your support is appreciated and I know that no-one can prove anything on the Internet but it does feel bad to be thought a fraud.
Actually Flash is still a low-life for being that nasty, but it did me good last night to have an object to hate when I was waiting for phone calls from the States.
Thanks Craig, best therapy ever
Wendy
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Calling all Brits (and anyone else- all welcome) Join OUCH UK and help us fight CH together
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