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Topic: I've just been banned from the OUCH UK board!! (Read 11012 times) |
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Chuffy
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I've just been banned from the OUCH UK board!!
« on: Nov 2nd, 2005, 7:13pm » |
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I posted the following out of utter frustration (the text speaks for itself) and without discussion they banned me from the site, and I'm a fully paid-up member, the bastards!
The only annoying thing is I can't now get on there to see if thay have deleted the post. 
That's it I have had enough, one deleted post too far!!!
Please hear me out.
I am sick of post after post banging on about all the potentially lethal crap that Glaxo and their ilk make and how wonderful it is to stick in your body to get relief from this truly debiltating illness.
Anyone would think you are getting a back-hander from them, you're not, are you?
This is an organisation to help CH sufferers is it not?
Well, every time I try and suggest alternatives in even the most non-legal issue terms or guide people in the most round the houses way possible to REAL help, the post gets deleted as I'm sure this will.
The other OUCH sites openly discuss alternative therapies for the good of their members, why is this one so up it's own arse it won't even let you put a link up to another CH site or any site for that matter?
If no-one wants to listen fine, go on jabbing, swallowing and whatever else it is you recommend to do with all those Glaxo treats but count me out.
I have been Episodic for 25 years (10 of those mis-diagnosed, so I know what i'm talking about) and keeping the drug companies in clover during most of that time but am now pain free and best of all med free, save for a little bit of O2 now and again.
I can really help, that is why we are all here surely, but no-one gives a toss.
You can now send your Newsletters banging on about 'fun runs' and how 'so an so' nearly died from an Imigran overdose (oh REALLY, must keep pushing that stuff!!) to someone more deserving than I.
Reminds me of my local Neighbourhood Watch. Lots of coffee mornings and letters about what Deidre does in her spare time at No 18.......... I catch two scum bags red handed in next doors house, didn't even make the newsletter. This country! 
Dr Andrew Sewell at Harvard has me as one of his case studies but it appears I am of no use here, so it is with great regret I say,
Thankyou and Goodnight.
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| « Last Edit: Nov 2nd, 2005, 7:15pm by Chuffy » |
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Mr. Happy
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Re: I've just been banned from the OUCH UK board!!
« Reply #1 on: Nov 2nd, 2005, 7:32pm » |
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Stodgy bunch, at best, even on a good day. Great vent, just before you JUMPED.
Go for a pro-rated refund, at the very least.
Over here, it's Eternal Salvation Guarented,
or Triple your Money Back.
RJ
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TxBasslady
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Re: I've just been banned from the OUCH UK board!!
« Reply #2 on: Nov 2nd, 2005, 7:32pm » |
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Uh....DJ will delete posts here too. Hell, sometimes he shuts the whole board down 
Tis not kosher to bash Doctors by name...or Pharmaceutical companies by name.
Whether we like the Docs or the Med companies or not...we need them. We can't afford to lose their support of CH.
This (of course) is my personal opinion...and not necessarily the opinion of the other 9,000 members of CH.Com.
We also need to remember that even though a med does not work for one....it may possibly work for another.
Jean
(modified...'cause I signed my name twice...must be an age thingey)
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| « Last Edit: Nov 2nd, 2005, 7:41pm by TxBasslady » |
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Jonny
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Re: I've just been banned from the OUCH UK board!!
« Reply #3 on: Nov 2nd, 2005, 7:37pm » |
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on Nov 2nd, 2005, 7:32pm, TxBasslady wrote:| We also need to remember that even though a med does not work for one....it may possibly work for another. |
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This qoute should be carved in stone!!!!
Thank you, Jean! 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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mynm156
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Re: I've just been banned from the OUCH UK board!!
« Reply #4 on: Nov 2nd, 2005, 7:42pm » |
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on Nov 2nd, 2005, 7:32pm, TxBasslady wrote:
We also need to remember that even though a med does not work for one....it may possibly work for another.
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CAN I GET AN AMEN BROTHERS AND SISTERS
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unsolved1
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Re: I've just been banned from the OUCH UK board!!
« Reply #5 on: Nov 2nd, 2005, 7:45pm » |
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I wouldn't be here today without Imitrex injections
UNsolved
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Grandma_Sweet_Boy
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Re: I've just been banned from the OUCH UK board!!
« Reply #6 on: Nov 2nd, 2005, 7:46pm » |
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Quote:| CAN I GET AN AMEN BROTHERS AND SISTERS |
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Sure ya can - AMEN!!!!
Carol
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Jonny
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Re: I've just been banned from the OUCH UK board!!
« Reply #7 on: Nov 2nd, 2005, 7:50pm » |
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From the OUCH (UK) Guide lines
We have introduced a 'Yellow & Red card system to help keep the content of posts within expectable limits for the good of ALL members. May we remind our members that Laws vary across countries and many things that are acceptable in other countries are against the law in the UK. We ask that our users/members remember this and post in a suitable manner to protect both our web hosts and our charity from prosecution. A little adage that may help is "If in doubt - Leave it out ! ".
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Chuffy
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Re: I've just been banned from the OUCH UK board!!
« Reply #8 on: Nov 2nd, 2005, 8:01pm » |
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Please don't get the wrong end of the stick with this.
The rant was borne out of frustration at OUCH UK's inability to deal with or even discuss the Shroom issue.
I was on Cafergot for years and yes, IT WORKED but when changing Doctors was prescribed Imitrex jabs as recommended by a specialist.
Luckily in the meantime I discovered the wonderful Clusterbusters and that has changed my life, so please forgive me for wanting to tell all and sundry about this life changing natural God given miracle.
Even my GP approves and has struck the Imitrex of my meds list.
Let me think, man-made chemical with potentially lethal side effects or something that grows in a field up the road?
Sorry that's just me, it works for me so as far as I am concerned I would be bonkers to go for the former.
My rant isn't aimed at Glaxo etc (even though reading it now it could be misconstrued as that) but again at OUCH UK for sending me newsletters telling me about a Fun Run and some bloke that nearly died of an Imitrex OD when as far as I'm concerned the whole frigging letter should be shouting about the Clusterbusters from all the rooftops in the kingdom.
Hope that clears it up.
PS No Doctors were maligned in the rant. I was stating that Dr Sewell deemed me worthy as a case study but OUCH UK kept deleting my posts.
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Chuffy
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Re: I've just been banned from the OUCH UK board!!
« Reply #9 on: Nov 2nd, 2005, 8:03pm » |
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on Nov 2nd, 2005, 7:50pm, Jonny wrote:From the OUCH (UK) Guide lines
We have introduced a 'Yellow & Red card system to help keep the content of posts within expectable limits for the good of ALL members. May we remind our members that Laws vary across countries and many things that are acceptable in other countries are against the law in the UK. We ask that our users/members remember this and post in a suitable manner to protect both our web hosts and our charity from prosecution. A little adage that may help is "If in doubt - Leave it out ! ".
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I think my 'rant' was well within the guidelines, that's exactly why I worded it like that.
Not a Shroom in site. 
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Jonny
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Re: I've just been banned from the OUCH UK board!!
« Reply #10 on: Nov 2nd, 2005, 8:07pm » |
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on Nov 2nd, 2005, 8:01pm, Chuffy wrote:The rant was borne out of frustration at OUCH UK's inability to deal with or even discuss the Shroom issue.
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Guess what?
They built the site and they make the rules.....you broke the rules....whats so hard to understand?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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unsolved1
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Re: I've just been banned from the OUCH UK board!!
« Reply #11 on: Nov 2nd, 2005, 8:08pm » |
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Why post about it here? (On more than one board)
UNsolved
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Chuffy
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Re: I've just been banned from the OUCH UK board!!
« Reply #12 on: Nov 2nd, 2005, 8:12pm » |
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on Nov 2nd, 2005, 8:08pm, unsolved1 wrote:Why post about it here? (On more than one board)
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Yeah, sorry, you're right , why bother with anything?
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majic
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Re: I've just been banned from the OUCH UK board!!
« Reply #13 on: Nov 2nd, 2005, 8:16pm » |
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on Nov 2nd, 2005, 8:07pm, Jonny wrote:
Guess what?
They built the site and they make the rules.....you broke the rules....whats so hard to understand?
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That would be all well and good if they had a sensible reason for the rules. However, in this case their reason for banning discussion of alternative treatments doesn't hold water.
Secondly, they built and run that site using money from their members. To then refuse to listen to those same people seems to me completely unreasonable.
Lastly, the trustees of OUCH(UK) are too cowardly to discuss this any public forum which makes me think that their stated reason for this cruel censorship is entirely spurious.
Richard
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TxBasslady
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Re: I've just been banned from the OUCH UK board!!
« Reply #14 on: Nov 2nd, 2005, 8:16pm » |
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on Nov 2nd, 2005, 8:01pm, Chuffy wrote:Please don't get the wrong end of the stick with this.
My rant isn't aimed at Glaxo etc (even though reading it now it could be misconstrued as that) No Doctors were maligned in the rant. I was stating that Dr Sewell deemed me worthy as a case study but OUCH UK kept deleting my posts. |
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I used the thing about the Doctors as a scenario...not as a fact.
And yes.....it certainly does appear that your rant was aimed at the named Pharmaceutical Co.
We support Clusterbusters.......no problem there for us.
There is no wrong "end of the stick".
Call it like it is......you already admitted you possibly worded your post wrong......and I can just about bet the farm...that you did.
No offense intended....just calling it the way I see it.
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas!
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Chuffy
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Re: I've just been banned from the OUCH UK board!!
« Reply #15 on: Nov 2nd, 2005, 8:18pm » |
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on Nov 2nd, 2005, 8:16pm, TxBasslady wrote:
I used the thing about the Doctors as a scenario...not as a fact.
And yes.....it certainly does appear that your rant was aimed at the named Pharmaceutical Co.
We support Clusterbusters.......no problem there for us.
There is no wrong "end of the stick".
Call it like it is......you already admitted you possibly worded your post wrong......and I can just about bet the farm...that you did.
No offense intended....just calling it the way I see it.
Jean
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None taken.
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Cathi04
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Re: I've just been banned from the OUCH UK board!!
« Reply #16 on: Nov 2nd, 2005, 8:19pm » |
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Chuffy,
Say what you need, express yourself- here......
IT"S ALL GOOD!!!!!!!!!!!!!
Oh, and I am glad to know that SOMETHING has helped you find relief from this pain/sleep dep/depression that is CH.
PF,
Cathi
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pubgirl
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Re: I've just been banned from the OUCH UK board!!
« Reply #17 on: Nov 2nd, 2005, 8:23pm » |
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Chuffy
How do you know you have been banned? Are you sure you aren't trying to access the old board? It crashed so badly a new one had to be started a couple of weeks ago.
If someone is banned they warned first and their posts deleted and the reasons explained to them in an email, you aren't just banned without warning
Wendy (pubgirl)
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| « Last Edit: Nov 2nd, 2005, 8:24pm by pubgirl » |
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rextangle
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Re: I've just been banned from the OUCH UK board!!
« Reply #18 on: Nov 2nd, 2005, 8:23pm » |
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I applaude you Chuffy for speaking your mind! I always do, and often have to pay the consequences, but to me it's worth it. Everyone has the right to express how they feel without bullshiting, or constantely be in fear of the big "PC World".... Fuckin' shit!
Rex
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| « Last Edit: Nov 2nd, 2005, 8:26pm by rextangle » |
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Chuffy
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Re: I've just been banned from the OUCH UK board!!
« Reply #19 on: Nov 2nd, 2005, 8:24pm » |
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Thanks Cathi04.
Seeing as it's 1.20am in the UK and I have to be up at 7, I'm off to bed, so you can all talk about me behind my back! 
Laters.
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Jonny
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Re: I've just been banned from the OUCH UK board!!
« Reply #20 on: Nov 2nd, 2005, 8:25pm » |
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on Nov 2nd, 2005, 8:16pm, majic wrote:
That would be all well and good if they had a sensible reason for the rules. However, in this case their reason for banning discussion of alternative treatments doesn't hold water.
Secondly, they built and run that site using money from their members. To then refuse to listen to those same people seems to me completely unreasonable.
Lastly, the trustees of OUCH(UK) are too cowardly to discuss this any public forum which makes me think that their stated reason for this cruel censorship is entirely spurious.
Richard |
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I guess you have a bitch with them....why bring it here to us?
You can always post here (At no charge) and talk about almost anything.......(just leave out the animal sex talk...makes the chicks here squirm )
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Chuffy
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Re: I've just been banned from the OUCH UK board!!
« Reply #21 on: Nov 2nd, 2005, 8:25pm » |
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on Nov 2nd, 2005, 8:23pm, rextangle wrote:I applaude you Chuffy for speaking your mind! I always do, and often have to pay the consequences, but to me it's worth it to me. Everyone has the right to express how they feel without bullshiting, or constantely be in fear of the big "PC World".... Fuckin' shit!
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Right On Bro.
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Chuffy
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Re: I've just been banned from the OUCH UK board!!
« Reply #22 on: Nov 2nd, 2005, 8:27pm » |
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on Nov 2nd, 2005, 8:23pm, theoldboiler wrote:Chuffy
How do you know you have been banned? Are you sure you aren't trying to access the old board? It crashed so badly a new one had to be started a couple of weeks ago.
If someone is banned they warned first and their posts deleted and the reasons explained to them in an email, you aren't just banned without warning
Wendy (pubgirl) |
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No, it's the new site, it says I'm 'Banned because I asked to leave', fair comment.
And so to bed.
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majic
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Re: I've just been banned from the OUCH UK board!!
« Reply #23 on: Nov 2nd, 2005, 8:28pm » |
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on Nov 2nd, 2005, 8:23pm, theoldboiler wrote:Chuffy
How do you know you have been banned? Are you sure you aren't trying to access the old board? It crashed so badly a new one had to be started a couple of weeks ago.
If someone is banned they warned first and their posts deleted and the reasons explained to them in an email, you aren't just banned without warning
Wendy (pubgirl) |
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Instead of spending your time worrying about which posts to censor and who to red card/yellow card or ban for discussing this topic, why don't you and the other trustees come over here and have an open debate about the reasons behind this policy?
Richard
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pubgirl
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Re: I've just been banned from the OUCH UK board!!
« Reply #24 on: Nov 2nd, 2005, 8:31pm » |
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I'm sure you'll get a refund if you want to leave OUCH, but the money is used to great effect to help other sufferers so it would be a shame to take it back
Wendy
added: Piss off Richard, I'm not a trustee and I have no moderator privileges on the board so I don't delete anything, so you can get off my fucking back
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| « Last Edit: Nov 2nd, 2005, 8:34pm by pubgirl » |
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Calling all Brits (and anyone else- all welcome) Join OUCH UK and help us fight CH together
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