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Topic: Mommy (Read 250 times) |
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kimmiedawn81
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I'm 24 years old. And last night at 1:00 in the morning I called my Mom as I was balled up in the bathroom crying with a cold pack on my head. I guess at the end of the day when things get bad I just want my Mommy.
I am just so incredibly glad that you guys know what it's like. These damn things are a walk in hell. And I'm really glad that I don't have a gun in my apartment.
-Kim
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Jonny
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Re: Mommy
« Reply #1 on: Oct 14th, 2005, 7:29pm » |
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We are always here for you, but, get use to it. it could be a long road....sorry
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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BMoneeTheMoneeMan
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Re: Mommy
« Reply #2 on: Oct 14th, 2005, 7:30pm » |
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Sorry you got hit so bad. Im sure your mom was more than happy to provide support and comfort.
You have meds?
PF wishes
BMonee
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"
Think of how stupid the average person is, and then realize half the population is stupider than that.
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Sean_C
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Sounds like you had a tough night Kim. If I lose control I need support too. Just knowing someones there to make sure we don't die sometimes makes a difference don't it 
Hugs going over 
Sean...................................
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kimmiedawn81
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Re: Mommy
« Reply #4 on: Oct 14th, 2005, 7:33pm » |
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Yeah, BMonnee, I have meds...taking Lithium, Verap, and Inderal. I am running low on Trex injections, so I was gonna try to ride it out...not a good idea.
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Sean_C
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on Oct 14th, 2005, 7:33pm, kimmiedawn81 wrote:| Yeah, BMonnee, I have meds...taking Lithium, Verap, and Inderal. I am running low on Trex injections, so I was gonna try to ride it out...not a good idea. |
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No o2?
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kimmiedawn81
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Re: Mommy
« Reply #6 on: Oct 14th, 2005, 7:37pm » |
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No, the last time I had 02 the lpm's were wrong and I haven't had it prescribed since.
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Sean_C
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Can you get it?
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kimmiedawn81
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Re: Mommy
« Reply #8 on: Oct 14th, 2005, 7:39pm » |
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on Oct 14th, 2005, 7:38pm, Sean_C wrote:
How?
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BMoneeTheMoneeMan
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Re: Mommy
« Reply #9 on: Oct 14th, 2005, 7:49pm » |
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Hey Kimmee. I never heard of the inderal helping clusters. Verapimil yes, and they are similar drugs. Be careful with mixing the verapimil and inderal (propranolol). They both should reduce your heart rate and if you are taking enough, it could make your heart slow down too much, causing you to pass out.
I got O2 by going to a doc and demanding it. They probably use a DME (durable medical equipment)company to distribute and deal with home delivery logistics. Tell your doc you need a variable regulator that goes all the way up to 15lpm. Thats very important. Im sure the doc will balk, cause thats a lot of O2, most people havent even heard of taking that much O2. But get it. Along with that, tell the DME people you need a non-rebreather bag with a mask. (although i dont use a mask, just suck directly out of the bag).
O2 works well for lots of people. Hopefully it will work for you.
If the doc says its too much O2, or wont even give you o2, you need to press them, demand it and demand that they learn a thing or 2 about your condition before they tell you what you can and can not have.
When can you get more Trex? You have seen the imitrex tip on the left side menu here <-------------?
I just get it in syrenge and vial form anyway.
PF wishes
BMonee
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"
Think of how stupid the average person is, and then realize half the population is stupider than that.
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kimmiedawn81
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Re: Mommy
« Reply #10 on: Oct 14th, 2005, 7:54pm » |
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on Oct 14th, 2005, 7:49pm, BMoneeTheMoneeMan wrote:Hey Kimmee. I never heard of the inderal helping clusters. Verapimil yes, and they are similar drugs. Be careful with mixing the verapimil and inderal (propranolol). They both should reduce your heart rate and if you are taking enough, it could make your heart slow down too much, causing you to pass out.
I got O2 by going to a doc and demanding it. They probably use a DME (durable medical equipment)company to distribute and deal with home delivery logistics. Tell your doc you need a variable regulator that goes all the way up to 15lpm. Thats very important. Im sure the doc will balk, cause thats a lot of O2, most people havent even heard of taking that much O2. But get it. Along with that, tell the DME people you need a non-rebreather bag with a mask. (although i dont use a mask, just suck directly out of the bag).
O2 works well for lots of people. Hopefully it will work for you.
If the doc says its too much O2, or wont even give you o2, you need to press them, demand it and demand that they learn a thing or 2 about your condition before they tell you what you can and can not have.
When can you get more Trex? You have seen the imitrex tip on the left side menu here <-------------?
I just get it in syrenge and vial form anyway.
PF wishes
BMonee
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I know all about mixing the drugs, heard that many times. And I never asked my new doc about the O2. I know that it helps a lot of you and I know that I should. And I do use the Imitrex tip. Thank you!
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Gator
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Re: Mommy
« Reply #11 on: Oct 14th, 2005, 8:12pm » |
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Kim, don't be shy with the doc. Tell him you want oxygen and that you want it at 15lpm via non-rebreather mask.
Here is something to take to him to show him that the high flow rate is justified in ch treatment. If he still balks, then it's time for a new doc. A doc who thinks he knows everything and can't learn a new trick is worthless.
http://www.chhelp.org/mhni.html
Best wishes for some much deserved pf time.
Mike
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Jonny
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Re: Mommy
« Reply #12 on: Oct 14th, 2005, 8:13pm » |
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on Oct 14th, 2005, 7:54pm, kimmiedawn81 wrote: And I never asked my new doc about the O2.
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Charlie, wheres the "Loser" smiley"? 
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| « Last Edit: Oct 14th, 2005, 8:13pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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kimmiedawn81
CH.com Alumnus
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Stuck in the middle with you!
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Posts: 1426
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Re: Mommy
« Reply #13 on: Oct 14th, 2005, 8:18pm » |
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on Oct 14th, 2005, 8:13pm, Jonny wrote:
Charlie, wheres the "Loser" smiley"?
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Ha ha ha 
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Opus
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Re: Mommy
« Reply #15 on: Oct 14th, 2005, 8:27pm » |
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Hang in there KD,
and don't be afraid to post if you run out of trex.
I am glad you could call your mother.
Many of us have family members who don't understand,
or worse think we are faking.
Opus/Paul
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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Jonny
CH.com Alumnus
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Give me a shovel Ill dig my own grave!
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Re: Mommy
« Reply #16 on: Oct 14th, 2005, 8:30pm » |
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Insist on 02, Kim........dont take no for an answer!
If you find yourself without, email me.....I will get you hooked up.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Mommy
« Reply #17 on: Oct 15th, 2005, 2:37am » |
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on Oct 14th, 2005, 8:27pm, Opus wrote:Many of us have family members who don't understand,
or worse think we are faking.
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Kimmie,
I'm so sorry that the beast is torturing you so strongly right now...
I do agree with Paul: it's great that your mom can offer you the support you need. I think that's just wonderful. 
I'm 25 and I do wish that my mother could be more suportive when she sees me during a hit. So don't worry about your age. We need our closeones during the moment we're in pain, it's natural.
PFDANs,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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sassy_lady
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Re: Mommy
« Reply #18 on: Oct 15th, 2005, 2:55am » |
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Jasmyn
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Re: Mommy
« Reply #19 on: Oct 15th, 2005, 3:49am » |
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Kimmie, so sorry you are getting hit so hard. 
<<<<<<<<<<Vibes>>>>>>>>>>
and
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Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
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Ree
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Re: Mommy
« Reply #20 on: Oct 15th, 2005, 6:47pm » |
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((((KIMMIE))))
and much love from ree who has witnessed what you speak of and would love a walk off the planet....
be well honey.....love ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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