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Topic: Re: Clusterville Implodes [A Re-post] (Read 904 times) |
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Cathi04
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Re: Clusterville Implodes [A Re-post]
« on: Oct 13th, 2005, 9:50pm » |
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Dear Me.......
That's one of your best so far, even if it is a rerun.......but, y'know the one I like best?It begins with....
"There Once was a princess................."
Steve, you are one of a kind, a true gem, and I miss you!
Cathi
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don
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Re: Clusterville Implodes [A Re-post]
« Reply #1 on: Oct 13th, 2005, 10:19pm » |
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Quote:| And you wonder why I don't come around so much |
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Ummm. No. Not really.
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gore2424
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Re: Clusterville Implodes [A Re-post]
« Reply #2 on: Oct 13th, 2005, 11:42pm » |
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so sorry you feel that way KOP I myself have nothing but a great time reading all the wonderfull posts which in begining I got a lot of info to give my neuro ideas what I could try next with helping me cope with the pain and have even learned just this week how to post my picture on "Getting to know you" message board Thank you Don so much for the great help you gave me and after I called you bitter sorry and to be able to chat and help someone that is feeling down or to talk to someone when I am down on the Chat Room PLUS if I hadnt found this site I would of never meet another clusterhead that has meet in a hotel just 6 blocks from my house last two January's and really looking forward to next one pain-free wishes to all Terry
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what the hamsalad was that ¿?¿
I said your hair looks nice Ü
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deltadarlin
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Re: Clusterville Implodes [A Re-post]
« Reply #3 on: Oct 14th, 2005, 8:01am » |
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Steve,
I enjoyed meeting you in Dallas and really loved your *laid back* attitude. I've only been a member here for a short while and I'm sorry, but I have to agree with you. I've been a member/moderator/admin of boards for many years now and some of what goes on here takes the cake. I don't understand why it goes on.
'darlin
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kimmiedawn81
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Re: Clusterville Implodes [A Re-post]
« Reply #4 on: Oct 14th, 2005, 8:25am » |
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I love this website. If it wasn't for this website and the caring people here, I would have a much more miserable life. I don't know what I would do if this website was ever shut down.
I guess I just don't see all of the in-fighting and such, but even if I did, there are still TONS of caring people here who would give you the shirt off of their back if they could.
-Kim
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DonnaHar
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Re: Clusterville Implodes [A Re-post]
« Reply #5 on: Oct 14th, 2005, 8:37am » |
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It is hurtful and sometimes very childish, but when you take a look at how many personalities dwell here, it's a wonder it isn't a lot worse.
I think we try pretty hard to bite out tongues sometimes. I've gotten pretty angry and swore I'd never come back, but there's more here than just what appears on the surface. It's a special place and a very needed place.
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Margi
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Re: Clusterville Implodes [A Re-post]
« Reply #6 on: Oct 14th, 2005, 8:55am » |
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Very well said, Donna. There have always been threads here that ruffle some feathers. I came here in the first year of ch.com and it was happening then too. Some will remember Waterdog. And LindaB. and..and..and. Nothing's changed.
This is a website for people in pain and with that pain, comes stress and close-to-the-surface feelings. Poo poo's gonna happen. But at the end of the day, if someone shows up here needing cluster support, they get it - unconditionally.
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| « Last Edit: Oct 14th, 2005, 8:55am by Margi » |
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kathy copelin, ch.com 8/8/06
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Bob P
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Re: Clusterville Implodes [A Re-post]
« Reply #7 on: Oct 14th, 2005, 9:04am » |
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Shut up Margi!
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Margi
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Re: Clusterville Implodes [A Re-post]
« Reply #8 on: Oct 14th, 2005, 9:06am » |
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and yet still others will remember BobP.
see? nothing's changed here.
 to Bob.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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jcmquix
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Re: Clusterville Implodes [A Re-post]
« Reply #9 on: Oct 14th, 2005, 9:29am » |
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on Oct 14th, 2005, 8:55am, Margi wrote:Very well said, Donna. There have always been threads here that ruffle some feathers. I came here in the first year of ch.com and it was happening then too. Some will remember Waterdog. And LindaB. and..and..and. Nothing's changed.
This is a website for people in pain and with that pain, comes stress and close-to-the-surface feelings. Poo poo's gonna happen. But at the end of the day, if someone shows up here needing cluster support, they get it - unconditionally. |
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Well SAID !!!! 
God Bless & PFDAN's
Charlie
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Sandy_C
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Re: Clusterville Implodes [A Re-post]
« Reply #10 on: Oct 14th, 2005, 12:48pm » |
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KOP,
I know you and I have never met, because I've only met one CH in my life, and I don't think you and I have ever had any sort of interaction on these boards. As I have said in other recent posts regarding the subject of shutting down this site, I was here, joined up, in 1999. I didn't last long. I learned very quickly, that because I had not been "officially" diagnosed with CH, (you see, in 1999, my husband was unemployed and we had no health coverage, we had two daughters in college so getting "officially diagnosed" was out of the question). I was not accepted into the "club" of CH sufferers. If I voiced any opinion on any topic, I was ridiculed and personally attacked, by the "club members" (one person in particular). I was actually accused of fabricating CH as the "fad of the week" ailment. Oh, yes, there were a couple of people who actually tried to help me, to give me suggestions on what I could do to minimize my CH problems, but those people were few and far between.
I left the old board shortly after I joined. I was not made welcome. I was made fun of, and outside of one or two people, I was either ignored or riduculed. Why stay?
For the next few years, I battled my CH on my own - and by the way, was finally "officially diagnosed". This year, 2005, I decided to lurk on the board to see if anything had changed - and it HAD. I found real people here, people who suffer the same thing that I do and who do not judge, who do not ridicule, who do not make fun of (other than the obvious trolls) anyone. I re-joined, and found a whole new family.
This is a CH support board. In addition to sharing information about CH, medications, new medical information, we support each other. To be supportive, the conversations must go beyond just CH. Coversations must cover laughter, sadness, problems in our personal lives, our children, our spouses, our work, and our anger - not only at our CH, but at anything else in the world that is affecting our lives, as well as allowing each of us to be ourselves, including posting "questionable" jokes and pictures. We support each other in all things, good things and bad things.
I'm sorry that you feel this board (this is my assumption) should be relegated to CH and only CH, when there is so much else in all our lives that demand our attention, and require others to help us get through the hard times.
Give all of us a chance. Open your mind to anything, and everything that you read on these boards. Yes, many things are not quite "tasteful", many are downright obscene, some people are obnoxious, some are always sweet at sugar, but we are all suffering from the same thing, and we are all a family of sufferers. As a family, we accept each other for what we are. If you really read everything, you will learn just how much we all mean to each other.
Feel free to PM me and I'll give you my telephone number so that I can tell you personally just how much the people on these boards mean to me. They have saved my life and my sanity. I can overlook their "quirkiness" because they were there for me when I needed them.
Sandy
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BarbaraD
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Re: Clusterville Implodes [A Re-post]
« Reply #11 on: Oct 14th, 2005, 1:57pm » |
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on Oct 14th, 2005, 9:06am, Margi wrote:and yet still others will remember BobP.
see? nothing's changed here.
to Bob. |
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You're right Margi - Nothing ever changes here. Some of us have just been around so long we take it with a grain of salt - or else we just can't be insulted (Ok, Bob P I know I left that one open for you!)
Hugs BD
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Jonny
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Re: Clusterville Implodes [A Re-post]
« Reply #12 on: Oct 14th, 2005, 2:02pm » |
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on Oct 14th, 2005, 9:04am, Bob P wrote:
Now thats fucking funny!!!...LMMFAO 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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fubar
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Re: Clusterville Implodes [A Re-post]
« Reply #13 on: Oct 14th, 2005, 2:31pm » |
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KOP,
I think everybody who has been, or will be part of this family all share a common problem. It's a problem that goes far deeper than what most humans have to deal with, and because of that we all cycle through extreme emotions and sensativities. Everyone here has been ready (at some point) to:
- beg for help
- lash out at people who try to help
- praise the awesome family that is clusterville
- donate time/money/resources to clusterheads and events
- pack up their toys and go home to wallow in pity
- fill in the blank
The problem is we cannot all be in sync, and irrational behavior is really a regular occurance with people under our kind of stress. *Everybody* here is going to experience good AND bad here. You have to ignore the bull sheet and learn to benefit from the good stuff.
I've kept my mouth shut for the most part, but your post made me want to respond because I don't think it's any worse that it has always been... just maybe you are in a place where you're less tolerant of the bad stuff and less aware of all the good stuff. It's still the same place, but the people, including you, are cycling through different modes. Just chill out and ignore the crap, look for opportunities to help if your able, and it will all work out.
-Shawn
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| « Last Edit: Oct 14th, 2005, 2:32pm by fubar » |
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Jimi
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Re: Clusterville Implodes [A Re-post]
« Reply #14 on: Oct 14th, 2005, 4:03pm » |
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And all God's chillins said........Amen.
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Re: Clusterville Implodes [A Re-post]
« Reply #15 on: Oct 14th, 2005, 4:27pm » |
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I like you too!
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Jonny
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Re: Clusterville Implodes [A Re-post]
« Reply #16 on: Oct 14th, 2005, 4:32pm » |
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on Oct 14th, 2005, 2:31pm, fubar wrote:| Just chill out and ignore the crap |
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Thats easy to say for some, DJ shut this whole site down for a whole weekend years ago (Im sure you remember)
That weekend was black...and I mean BLACK for a lot of folks. I try and warn the folks that this could happen when these threads get out of control with the BS, I cant speak for DJ, but dont be surprised one day that you click and it says "This site is down untill...."
WE can ignore and click to the next post, but, how long will DJ do that before another black weekend?
BTW, your post was excelent, Fubar
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Sean_C
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Re: Clusterville Implodes [A Re-post]
« Reply #17 on: Oct 14th, 2005, 4:36pm » |
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on Oct 14th, 2005, 4:32pm, Jonny wrote:BTW, your post was excelent, Fubar
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My thoughts exactly
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fubar
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Re: Clusterville Implodes [A Re-post]
« Reply #18 on: Oct 14th, 2005, 4:44pm » |
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I know 'chill out' sounds trite and is probably unrealistic for some people, but it's the only rational thing to do IF you can do it. Fact is, we will always have irrational people here and sometimes it's the person in the mirror. By being concious of this fact before, during, and after posting... you can avoid falling into those emotional traps that only make your problems seem worse than they are. I've fallen for the political rants and some other BS threads in the past... now I hardly read any threads unless they catch my attention. It's just my way of avoiding the mayhem that disheartens me. And I feel better for it too.
Thanks for the comment Jonny, Sean.
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rextangle
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Re: Clusterville Implodes [A Re-post]
« Reply #19 on: Oct 14th, 2005, 4:48pm » |
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Fubar, I think you're absolutely right.
Keep in mind we're not a normal bunch regardless of our backgrounds, political views, etc... how can we be with what we have to deal with on a regular basis?
I don't participate in these threads but get saddened when they turn to shit.
I post humorous threads every once a while to try to lift the spirits and make people laugh for a minute. Laughter's good medicine.
Cheers,
Rex
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Leesa
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Re: Clusterville Implodes [A Re-post]
« Reply #20 on: Oct 14th, 2005, 8:02pm » |
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The "game" doesnt change only the players do.
Den says it best "take what ya need and leave the rest." When youve around as long as some of us, you know the threads to avoid. KOP you are MISSED big time at least by ME!! Hey man BTW shoot me PM with your number honey!!! We need to TALK babe.
Love ya lots, Leesa 
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Jasmyn
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Re: Clusterville Implodes [A Re-post]
« Reply #21 on: Oct 15th, 2005, 7:24am » |
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Same ol same old stuff.
What Fubar said, good, that's what it is.
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Jazz
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karma
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Re: Clusterville Implodes [A Re-post]
« Reply #22 on: Oct 15th, 2005, 8:38am » |
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Quote:| Thats easy to say for some, DJ shut this whole site down for a whole weekend years ago (Im sure you remember) |
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So nothings changed accept the club has new members.
Same rediculous arguements, Same antoginists, Same opinionated, overinflated ego's, Same royalty Its like a rerun of " Groundhog Day" over and over again.
I think whats needed is to have a designation above Hall of Famer so that the old guard can feel
"special" (said with a lisp)
and anyone that arrived here in the last five or six years can aspire to joining that elitest crowd.
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LeLimey
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Re: Clusterville Implodes [A Re-post]
« Reply #23 on: Oct 15th, 2005, 9:00am » |
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Hmm.. you know, I've only been here just over a year and non of the "old guard" have made me feel like that 
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Linda_Howell
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Re: Clusterville Implodes [A Re-post]
« Reply #24 on: Oct 15th, 2005, 9:50am » |
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That's because you're cuter than a bugs ear Helen, so we tolerate you and your newbie-ness.
JK....lmao Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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