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Topic: Pheochromocytoma (Read 354 times) |
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catlind
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Pheochromocytoma
« on: Oct 6th, 2005, 3:03pm » |
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Anyone who has any info on this particular condition I would appreciate you letting me know.
Thanks Cat
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Langa
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So many donuts, such little time...
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Re: Pheochromocytoma
« Reply #1 on: Oct 6th, 2005, 3:19pm » |
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Catlind, i've sent you my phone number in case you want to talk further about this.
I know about this tumor firsthand. It's a genetic problem in my family. We get these tumors in our kidneys. It's a very deadly tumor in that the chemicals it produces can elevate your blood pressure so high and so fast, you'll go into cardiac arrest. Most people with these tumors go into surgery for removal of them as soon as they're found out. I had mine removed when I was 17.
Langa
A link I found that might be helpful.
http://www.endocrineweb.com/pheo.html
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| « Last Edit: Oct 6th, 2005, 3:28pm by Langa » |
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catlind
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Re: Pheochromocytoma
« Reply #2 on: Oct 6th, 2005, 3:57pm » |
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Thanks Langa, I had already used that website as well as the NIH one. If you don't mind, I will take you up on that offer of a phone number. I found out yesterday that's what's going on (or rather they are fairly certain but want to run a couple of other tests to confirm it).
Considering my already existing cardiac issues, and some that were rather severe (myocardial ischemic attack, atrial fibrillation and left atrial enlargement) she (my endocrinologist is a bit concerned).
Sorry I didn't want to go into the details of this on here, it's not for this board, I just wanted to find people who might know where I can turn to get support.
Thanks
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: Pheochromocytoma
« Reply #3 on: Oct 6th, 2005, 4:08pm » |
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on Oct 6th, 2005, 3:57pm, catlind wrote:| I just wanted to find people who might know where I can turn to get support. |
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1 - You are a clusterhead.
2 - You are on the general board.
3 - You are family.
Those tickets let you post ANYthing! It is your right, seeing you hold the above tickets.
I am fairly certain anyone of us have a spare shoulder to cry on. An extra ear to listen to you. A warm body, just to be here for you.
We may know nothing about what you have, but we still care, and want to do whatever we can for you.
Use us.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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unsolved1
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Cat
Forgive me I Know nothing of your situation and only wish you the best:
Is it possible that the Pheochromocytoma is causing your severe headaches and you don't really have clusters ? Maybe a surgery can solve alot of your problems ? 
Best Wishes
UNsolved
Symtoms of Pheochromocytoma include:
Headaches (severe)
Excess sweating (generalized)
Racing heart (tachycardia and palpitations)
Anxiety / nervousness (feelings of impending death)
Nervous shaking (tremors)
Pain in the lower chest or upper abdomen
Nausea (with or without nausea)
Weight loss
Heat intolerance
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| « Last Edit: Oct 6th, 2005, 4:19pm by unsolved1 » |
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Grandma_Sweet_Boy
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What Goes Around Comes Around!
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Re: Pheochromocytoma
« Reply #5 on: Oct 6th, 2005, 4:17pm » |
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Cat - What Chuck said!!!!
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catlind
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Re: Pheochromocytoma
« Reply #6 on: Oct 6th, 2005, 4:44pm » |
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Here's the NIH site:
http://www.nlm.nih.gov/medlineplus/ency/article/000340.htm
Symptoms Return to top
* Severe headache
* Palpitations
* Rapid heart rate
* Sweating
* Flushing
* Chest pain
* Abdominal pain
* Nervousness
* Irritability
* Increased appetite
* Loss of weight
Of course I couldn't get the weight loss one!!! hehe
Michael, it's possible this will fix the headaches, but as of this point, neuro, neuro surgeon and endo all believe it won't likely make a difference.
I may contact Marcello Bigal or Dr. Tepper at NECH and ask them about it though.
Thanks for the thoughts, here's hoping I just screwed up another test and failed by default.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Mark C
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Onward through the fog.
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Re: Pheochromocytoma
« Reply #7 on: Oct 7th, 2005, 11:36am » |
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Hya Cat......a little more here.
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Pinkfloyd
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comfortably numb
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Re: Pheochromocytoma
« Reply #8 on: Oct 8th, 2005, 4:22pm » |
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on Oct 6th, 2005, 4:44pm, catlind wrote:
* Palpitations
* Rapid heart rate
* Sweating
* Flushing
* Chest pain
* Abdominal pain
* Nervousness
* Irritability
* Increased appetite
* Loss of weight
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Hell Cat, I got all these just looking at Friday's Pics for men.
The older we get the harder it becomes to spell our ailments!
Be well and call if you need anything.
Bobw
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"Nothing is so firmly believed as what we least know."
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