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Topic: Heart Attack and CH (Read 281 times) |
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ClusterChuck
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Heart Attack and CH
« on: Oct 1st, 2005, 4:52pm » |
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While here in Oslo, at Svenn's klasehodepine symposium (see, I even learned some Norwegian! That means Cluster headache) I talked with one of the doctors about those of us with heart trouble, and our use of imitrex, or any triptans. I will do a full report, later, when I can get more of the information translated, but I have a question to ask.
Question 1:
How many of you have a heart problem, or have had one or more heart attacks?
Question 2: What does your doctor say about you taking triptans?
For myself, as you know, I have had quite a few heart attacks, and my doctor will not let me take triptans.
What does yours say?
And, as an add-on, all of you other clusterheads, how many full imitrex shots does your doctor say you can take in a 24 hour period? (Not how many do you take, how many does your doctor say you can take.)
Chuck
edited to add last question.
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| « Last Edit: Oct 1st, 2005, 4:55pm by ClusterChuck » |
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Jonny
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Re: Heart Attack and CH
« Reply #1 on: Oct 1st, 2005, 5:05pm » |
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on Oct 1st, 2005, 4:52pm, ClusterChuck wrote:And, as an add-on, all of you other clusterheads, how many full imitrex shots does your doctor say you can take in a 24 hour period? (Not how many do you take, how many does your doctor say you can take.)
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Aint that a given?
All docs tell you two.....but splitting them is something else 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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The mad viking
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Re: Heart Attack and CH
« Reply #2 on: Oct 1st, 2005, 5:05pm » |
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The rest will be privilege information 
Svenn
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Always Look on The Bright Side of Life
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unsolved1
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Question 1 - I've been told that I have blood flowing backwards in one of my ventricles. (?) Is that the same as PFO?
Question 2 - The day is coming when I will no longer be able to use Imitrex
Question 3 - "Use what you have to use" (as many as needed)
UNsolved
I look forward to hearing about your trip when you get back. Take Care !
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LadyElaine
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1. I have had one Heart Attack
2. He won't let me take any triptans
3. Before the heart attack I was told one in a 24 hour time frame.
I miss my imitrex 
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maffumatt
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Question 1:
How many of you have a heart problem, or have had one or more heart attacks?
me
Question 2: What does your doctor say about you taking triptans?
Verapamil caused a heart blockage at high dosage for me, doc still recomends trex as an abortive if o2 isnt available or an extra bad hit
And, as an add-on, all of you other clusterheads, how many full imitrex shots does your doctor say you can take in a 24 hour period? (Not how many do you take, how many does your doctor say you can take.)
2 full shots in 24 hrs, he likes the 2ml shots I take alot better
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Karla
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Re: Heart Attack and CH
« Reply #6 on: Oct 1st, 2005, 8:06pm » |
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I will do up to 4 20mg ns of imitrix as perscribed. I have no heart history but my family does. Both grandparents and both parents have heart disease. That is another reason why it is good for me to be on a preventative that works and not taking abortives.
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Karla
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nani
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Re: Heart Attack and CH
« Reply #7 on: Oct 1st, 2005, 8:13pm » |
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1. I'm at high risk for a heart attack. Overweight smoker, almost post-menopausal, with high blood pressure, high cholesterol, and a strong family history.
2. My doctor says NO to triptans. It would be like asking for a heart attack, according to him.
edited to add: oh, and add to the risks that I've already had a massive brain hemmorhage. 
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| « Last Edit: Oct 1st, 2005, 8:14pm by nani » |
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catlind
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Re: Heart Attack and CH
« Reply #8 on: Oct 1st, 2005, 9:44pm » |
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Chuck I'm sure you already know this, but I will contrbute. Pardon the typing and spelling, anti anxiety drugs have me even less sharp than the push end of a thumb tack. (read rehash topic)
I was doagnosed with palpitations at the age of 16. First offcial recorded CH attacks were in 2000, with a possible in 96 and 98.
I have since gone in for inpatient DHE treatment at which time cardiology found me an anomoly, really fast heart rate, really low BP (outside of an attack) and then BP goes through the roof. They've labelled it prinzmettal angina - whatever the fuck that means.
So there ya have it.
The cyst/tumor in my pituitary may or may not play a role.
Cat
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The mad viking
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Re: Heart Attack and CH
« Reply #9 on: Oct 2nd, 2005, 2:48am » |
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Most of you knoe me
Had a heartattack back in 2001.
My Neurollogist was freaking out after that when i did aSK FOR MORE TREX AND OF COURSE A big NONO
While in ICU after that i got hit and the first thing they gave me was 1 shot of trex.
The cardiollogist gave me that not the nurses.
Did have a discussion with my GP after i got home and he said "screw the damn neuro"you sre in title of quality of life Svenn , he said.Today im doing up to 8 full statdoze a day without any problem what so ever.If that dont help i also do the morphine shots
Svenn
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Lizzie2
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Re: Heart Attack and CH
« Reply #10 on: Oct 2nd, 2005, 10:55am » |
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Well I have hypertension and go through some episodic bouts of Sinus Ventricular Tachycardia (SVT when heart rate goes up into the 200s) - for me, this appears to be triggered by meds called phenothiazines like Compazine.
Can't take imitrex - makes my already tachycardic heart feels like it's going to flipping explode. But I do use frova and amerge. Was allowed to try Zomig NS, but after a few runs on it, I realized it was giving me a significant amount of chest pains/rapid heart rate once again - so am now relying just on the amerge and frova out of the triptans. Zero problems there.
Can take 2 in 24 hours - but also with the limit of no more than 2 days per week. We've worked it out and he does allow 4 days per week because of the fact that I work 4 days per week...and can't survive work if I don't prevent the beast hits.
No heart attacks thank goodness although when I was more or less o/d'd on verapamil, my pressure was 60s/40s with a heart rate in the 40s (try that on for size when normally my resting HR is 90-100) and I couldn't get up off the floor. Seriously thought I was having a heart attack until I realized it was from the verap.
Carrie 
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