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Topic: Morbid curiosity.(The great pain debate) (Read 1027 times) |
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thomas
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Morbid curiosity.(The great pain debate)
« on: Sep 22nd, 2005, 11:32am » |
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I wonder what the ratio of chers to migrainers we have on this board nowadays....... 
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| « Last Edit: Sep 22nd, 2005, 3:31pm by thomas » |
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Margi
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Re: Morbid curiosity.
« Reply #1 on: Sep 22nd, 2005, 11:35am » |
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question: does a can of worms make a pfffftt sound like a pop can when you open it up, Thomas?
you got a death wish, man?
I think me and Ree are the only out of the closet meegrainers here.
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rextangle
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No meegraines here Thomas... 100% pure chronic CH.
BTW, my new description for CH is:
"Headbutting with a Unicorn!"
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thomas
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Re: Morbid curiosity.
« Reply #3 on: Sep 22nd, 2005, 12:10pm » |
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I'm talking about misdiagnosis, not any supporters of chers who get migraines.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Woobie
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Re: Morbid curiosity.
« Reply #4 on: Sep 22nd, 2005, 12:18pm » |
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on Sep 22nd, 2005, 11:35am, Margi wrote:
I think me and Ree are the only out of the closet meegrainers here. |
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LOL Margi - me too.......... AND leesa too.
I think Clusters cause migraines for their supporters.
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cootie
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Re: Morbid curiosity.
« Reply #5 on: Sep 22nd, 2005, 12:24pm » |
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Hey you forgot sumone ! But mine are from my spine crap in my neck......either way they are BAD BAD BAD. Blood red eyes lookin on Pam
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minnie
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Re: Morbid curiosity.
« Reply #6 on: Sep 22nd, 2005, 1:26pm » |
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on Sep 22nd, 2005, 12:18pm, Woobie wrote:
LOL Margi - me too.......... AND leesa too.
I think Clusters cause migraines for their supporters.
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ADD ANOTHER SUPPORTER MINE SINCE MENNAGITIS.
FOR thomas BILLY GETS migraies had them since childhood.HUGE FAMILY HISTORY OF THEM.he thinks his GrandDad mayhave gotten clusters but he's gone and stories are sketchy.
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thomas
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Re: Morbid curiosity.
« Reply #7 on: Sep 22nd, 2005, 1:45pm » |
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It's more of a rhetorical question. It's to make you think. I know that there are several people here that have migraines as well as clusters. It is a believe of mine that CH sufferers have 3 types of headaches. I am just curious out of all the people that come and register, some don't even post, how many of them do not have CH. But have been told by a Dr. that they do. Some days my brain acts up, today is one of those days, you all must suffer the side effects of my musings.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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don
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Its a very good question.
Back in the day most CHers were being mis-diagnosed as Meegrainers and being treat as such.
Now it seems the tables have turned where meegrainers and other headache types are being mis-diagnosed as Chers.
Misdiagnose CH for Meegrain and the sufferer suffers more pain than neccesary.
Misdiagnose a Meegrainer for a Cher and the sufferer suffers more meds than neccesary.
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cootie
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Re: Morbid curiosity.
« Reply #9 on: Sep 22nd, 2005, 1:52pm » |
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Oh PS: Brad "rarely" gets ha's other then his ch cycle stuff or sinus or not eating on time deal. He has some history of migraine in his family tho and a sister has them pretty bad. Question answer Pam
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Jimi
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Re: Morbid curiosity.
« Reply #10 on: Sep 22nd, 2005, 2:02pm » |
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Interesting topic. I have been pain free now for 5 years after yearly cycles for over 30 years. Always left sided. Since my last cycle, I have been getting migraines, usually at least once or twice a week. Always on my right side. If 6 ibuprofen does not back it off enough, I will take 1/2 of a imitrex pill and it will go away within 45 minutes. But hey, I am not complaining, I will take these anytime. BTW, I didn't know they were migraines until I took an imitrex one day and it went away. I just thought they were regular headaches.
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minnie
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Re: Morbid curiosity.
« Reply #11 on: Sep 22nd, 2005, 2:08pm » |
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I know retoricle question but I'm gonna answer your ? with a ? .so deal with me on this ok . Migraines and how you deal with them ie..laydown ,dark room ect.compared to clusters (don't have to tell you the difference).Billy was misdiagnosed at first  damn doctors how many sinus infections do they think you can get in a year ?so of course off to the ent specialist 
.Guess what I'm rattling on about is it seems to me(my  ) is misdiagnosis is mainly but not only with sinus infections.does that make sense ?
Minnie
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thomas
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Re: Morbid curiosity.
« Reply #12 on: Sep 22nd, 2005, 2:17pm » |
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Right Minnie, you are describing an incorrectly diagnosed CH patient (told they have something else). I am talking about people who are incorrectly diagnosed with CH (they actually do have something else).
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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minnie
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Re: Morbid curiosity.
« Reply #13 on: Sep 22nd, 2005, 2:34pm » |
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 gotcha Thomas.Thank you for being so patient I understand what you mean .I bet there are those wrongly being diagnosed as Clusterhead either by a Dr. or self diagnosis.
Minnie
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Margi
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Re: Morbid curiosity.
« Reply #14 on: Sep 22nd, 2005, 2:37pm » |
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on Sep 22nd, 2005, 2:02pm, Jimi wrote:| BTW, I didn't know they were migraines until I took an imitrex one day and it went away. I just thought they were regular headaches. |
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I don't know about the other migrainers here but I find that quite insulting, Jimi.
A migraine is in NO way a "regular headache". I'd say it's more probably that taking an imitrex was like firing an elephant gun at a squirrel for the headache you were having and that's why it went away. If it were true migraine, you'd be laying in a dark room, impaired vision and nausea that doesn't leave until the migraine does.
Sorry to interrupt, Thomas, this is a good topic. I think, sadly, there are a number of misdiagnosed folks out there who are prescribed cluster meds for non-cluster headaches. 
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| « Last Edit: Sep 22nd, 2005, 2:38pm by Margi » |
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ozzy
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Re: Morbid curiosity.
« Reply #15 on: Sep 22nd, 2005, 3:06pm » |
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Margi, but not "all" migraines are defined as having to lay down, photophobia, impaired vision, nausea, etc.
I am more with Thomas in the thought that CHrs suffer usually of different headache variations.
And Jimi, are you sure they are not "mutated" CHs? As a matter of fact, I'm thinking that line between chronic and episodic is only the periodicity of the pain. Meaning, we are never truly cluster free. Pain is pain. The Kip scale is pretty accurate, not perfect, but pretty accurate.
Ozzy
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Margi
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Re: Morbid curiosity.
« Reply #16 on: Sep 22nd, 2005, 3:19pm » |
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well, Ozzy, all my migraines are that way. Regardless, they all are WAY different that just a regular headache.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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don
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Margi I dont think Jimi was trying to be insulting. Afetr 30 years of intense pain from clusters anthing less than clusters would appear to me as a regular headache to. Wether it be a migraine or any other type of HA.
Quote:Regardless, they all are WAY different that just a regular headache.
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Not neccesarily to a long time cluster sufferer.
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ozzy
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Re: Morbid curiosity.
« Reply #18 on: Sep 22nd, 2005, 3:29pm » |
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on Sep 22nd, 2005, 3:23pm, don wrote:. Afetr 30 years of intense pain from clusters anthing less than clusters would appear to me as a regular headache to. Wether it be a migraine or any other type of HA.
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What about a Kip 2 or 3?
I can "deal" with them as much or better than a pounding hangover headache. I deal with both easier than a higher Kip CH. But to say that all clusters, emphasis on all , are worse than any headache, is kind of arrogant.
Ozzy
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thomas
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Re: Morbid curiosity.
« Reply #19 on: Sep 22nd, 2005, 3:30pm » |
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Yes, I too believe/know the migraines are different than normal HA's. The problem is that pain is only relative to the person experiencing the painful condition. There is no way to transfer pain, from person to person and no matter what type of pain, be it migraine, ch, gunshots, abdominal pain, the degree that it affects each individual is unique to that person. It is impossible to generalize pain of any kind. What brings me to my knees, may only be a minor nuisance to some one else. It is murky waters at best when we try to classify pain.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Jonny
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Re: Morbid curiosity.
« Reply #20 on: Sep 22nd, 2005, 3:34pm » |
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on Sep 22nd, 2005, 3:29pm, ozzy wrote:| But to say that all clusters, emphasis on all , are worse than any headache, is kind of arrogant. |
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Where in Dons post does it say "All"?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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BobG
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Re: Morbid curiosity.
« Reply #21 on: Sep 22nd, 2005, 3:37pm » |
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6 years ago it was "wimmin don't get cluster headaches".
Then DJ started this message board. And the world became aware of cluster headaches. More and more women came aboard stating they suffer clusters.
Now we know that the doctor were wrong all along. But, like others have said, are women now getting an incorrect diagnoses of clusters? Beats heck outa me.
Maybe it's just a fad. Seems that every year brings a new "in ailment", Carpal tunnel then tennis elbow then something else is "the thing" to have. Beats the heck outa me.
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Margi
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Re: Morbid curiosity.(The great pain debate)
« Reply #22 on: Sep 22nd, 2005, 3:42pm » |
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I didn't interpret Don's post that way either. As a migrainer, I'd be first in line to say that clusters are the worst kind of headache I've ever witnessed!
I know this is an unpopular theory here but I've been searching since you said that, Ozzy, that not all migraine has those symptoms. Every site I've found describe it very similarily - photo/phonosensitivity, aura, nausea. Symptoms outside that box indicate a different type of headache. I also get sinus headache and had one last weekend that lasted 48 hours in total. Sure, it hurt, but I was still able to function. Had it been migraine, I would have been doing my vampire impersonation - total dark and quiet, sleeping by my bucket. Oxygen actually helped abate the sinus h/a. I didn't take an imitrex though because I knew it wasn't migraine because I didn't have the rest of the symptoms (and the pain was about a 5, compared to a migraine. And, from what I've witnessed over the years, I'd say a migraine is maybe about a 3, compared to a cluster). ALL head pain sucks, regardless of what type it is!
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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ozzy
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Re: Morbid curiosity.(The great pain debate)
« Reply #23 on: Sep 22nd, 2005, 3:45pm » |
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Jonny, the emphasis was mine, and only mine. To stress the point, that we are not, superhuman that have the worst pain known to human beings every time we get hit (granted, some may).
We all go through the, just take an aspirin, blah, blah, blah. I've gone through it in the past few days as a matter of fact.
Are there people misdiagnosed with CH around this board, sure, it's been that way since I remember. Should we steer them in the roight direction? Absolutely, no need to over-medicate or wrongly medicate. Should we feel superior? No way!
Ozzy
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unsolved1
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Re: Morbid curiosity.(The great pain debate)
« Reply #24 on: Sep 22nd, 2005, 3:47pm » |
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I can only wish I didn't have clusters 
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