Author |
Topic: My new neuro (Read 190 times) |
|
Tiannia
New Board Hall of Famer
Life does not apologies......
 
Gender: 
Posts: 3241
|
 |
My new neuro
« on: Sep 19th, 2005, 1:59pm » |
 Quote  Modify
|
Well, I think it went well. He did not tell me that I can not be having headaches like I am describing. Nor did he throw meds at me.
I went over the meds that I have tried. As well as the other treatments. ie RFG and physical therapy.
He is going to get my file and MRI from last summer and the other Neuro. And I go in Oct 3rd for an EEG, Trascranial Doppler and a Brainstem Auditory Evoked Potenial. He says that he will not say that I have or dont have clusters at this point. Because if it is cluster then there is really no treatment for it. We know that I have Occipital Nueralgia right now and that it is triggering at least some of the HA that I have. He thinks that I might be having mulitple types of headaches that are compounding. So we have to "get the pieces fit toghether to help" me feel better.
He says that he has daily chronic headaches as well and that he can tell by looking into someone eyes whrn they talk about them if they are having that type of pain.
I felt like crying because I was so scared that I was going to get all the pat ansers that "I am a woman and there is no way that you are having those tyoe of Headaches" or "Well, I am not sure how to trreat this so try X med and see me in a month."
I wanted to let you all know what was going on. The information here is such a great help especially when the doctor actually listens to me. Thank you all for your support and thoughts.
/huggs Tia
|
|
 IP Logged |
The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
 
Gender: 
Posts: 6458
|
|
Re: My new neuro
« Reply #1 on: Sep 19th, 2005, 2:09pm » |
Quote Modify
|
It sounds like an awesome experience.
I sure hope you get some relief!!!
Hugs,
Eric
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: My new neuro
« Reply #2 on: Sep 19th, 2005, 3:21pm » |
Quote Modify
|
WTG Tia!! Good luck for your next appointment! 
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
yikes-another-one
New Board Old Timer
Gender:
Posts: 384
|
|
Re: My new neuro
« Reply #3 on: Sep 19th, 2005, 4:08pm » |
Quote Modify
|
Persistance is the key.
And keep us in the loop,
I have seen only 4 doctors about this head pain,
and still am seeking new information and treatments.
I am hoping you find pain relief and
that you can get your life back.
Any pain is a bad sign, and nothing to ignore.
Any doc that says, "You just have to deal with it"
isn't worth employing....
I have a friend diagnosed with migraines,
and when she had her MRI done,
the doctor called her in for a consult.
he said, "It's not a tumor, and you aren't dying.
Thank goodness it is just migraines."
Then he looked at her as if waiting for her to
shake his hand and get excited.
I mean the poor lady is having 4 migraines in 5 days,
everyday of her life since she turned 20..and now she's
40...and she is supposed to be greatful she isn't going to die?
He did hand her plenty of Zomig and Verapamil....
but of course the insurance company seems to think
6 pills should last the entire month....
same story told around her many times, I am sure.
Knowing the cause, doesn't make the suffering any easier. But knowing that someone is going through the same trouble and surviving is worth it's weight in gold...
|
|
IP Logged |
Psalm 23 - Goodness and mercy shall follow US all the days of our lives and WE will dwell in the house of LOVE forever.
|
|
|
unsolved1
Guest
|
Sounds like you found a good neuro.
Hopefully he'll pull something out of his magical hat and stop your pain
Best Wishes
Michael
|
|
IP Logged |
|
|
|
Barry_T_Coles
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1348
|
|
Re: My new neuro
« Reply #5 on: Sep 19th, 2005, 8:50pm » |
Quote Modify
|
Hi Tiannia
That sounds like good news.
I hope things go as well for me when I see the Nuro in mid november and dont get a smile & pat on the head after flying 1200 Km to the big smoke.
Keep us informed and I hope things work out for you.
Kind Regards
Barry
|
|
IP Logged |
Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi
[img]
|
|
|
lionsound
CH.com Alumnus
New Board Hall of Famer
breathe
Gender:
Posts: 2021
|
|
Re: My new neuro
« Reply #6 on: Sep 19th, 2005, 9:26pm » |
Quote Modify
|
Sounds like a positive experience. Good for you!
Please let us know how your treatment plan pans out.
Be well and PF!
-lionsound
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
Gender:
Posts: 14968
|
|
Re: My new neuro
« Reply #7 on: Sep 19th, 2005, 9:34pm » |
Quote Modify
|
Nice going kid.
It looks like you may have locked on to a good one. 
Keep us in the loop.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: My new neuro
« Reply #8 on: Sep 20th, 2005, 2:09pm » |
Quote Modify
|
Tia,
I hope that things will progress as smoothly in the future with this neuro.
I hope that the doc will find you the perfect treatment which helps you.
Good luck!
Sanna
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
Tiannia
New Board Hall of Famer
Life does not apologies......
Gender:
Posts: 3241
|
|
Re: My new neuro
« Reply #9 on: Sep 20th, 2005, 3:44pm » |
Quote Modify
|
Thanks everyone. I am really happy with it. I was totally shocked that he did not just diagnose me like all the others have done from what little they heard when I talked to them. I'll let you know how things go. After my tests on the 3rd (they are all in his office) - Then I make a follow up appointment and we go from there.
I hope you appointment does go well, Barry. Hell maybe there are a few docs out there that might know what they are doing.
|
|
IP Logged |
The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss